A Hundred Stuttering Posts!

So here we are at a hundred stuttering posts. Thanks of course to all the visitors from 66 different countries who have stopped by. I think things are still going pretty strong. It’s getting difficult to post every day (not through lack of ideas, mind you), but hey, a few times a week is still pretty decent, right?

I put this two-part story below together for Tom over at Stuttering Brain as a guest post, but he ended up being busy and didn’t put it online … so I’ll share it here instead. I think it sums up nicely where I am with my stuttering and being determined to push through it when I really want something.

Please keep on reading, commenting and sharing! I appreciate any and all feedback.

Cycling and Stuttering

I’m someone who stutters, and I’m someone who also likes to ride my road bicycle. But when I came to Saudi Arabia more than three years ago for work, I didn’t know anybody who also rode. And since I was a covert stutterer, I didn’t really ask around too much either. I would occasionally go on solo rides on the wide open roads we have in our small town, but I missed the camradarie of riding with even one other person.

One Friday morning just a few weeks ago I was coming back into the compound with my family. I saw something strange. Two guys. Road bikes. They were also heading back into the compound. Finally! Other people who rode! I was in our car, about 500 feet behind them as we went through the security checkpoints. My wife knew about my cycling angst and thought I should go up to them and find out who they were. Yes, I needed to find out.

Excuse time. Remember, I’m a covert stutterer. Pulling up to cyclists in a car would necessitate an immedate greeting and question. They probably wouldn’t stop. I’d be stuttering. It’d be horribly awkward. What to do? I was trying to figure it out as they pulled away — I had to stop for some checkpoints that they sailed through.

I was getting angry and frustrated with myself. Here it was, the perfect opportunity to go riding with some guys, and my stuttering was getting in the way. Unacceptable. We followed them into the compound, but they split up. After parking the car, I thought I saw one of them go into a nearby house, but wasn’t sure. Great. Thanks stuttering. Thanks a lot.

As we got out of the car, my wife said she thought she heard a door nearby close. Oh? I was angry enough at my stuttering that I said to her, ok, you take the kids and go to our house, and I’ll catch up. I went over to the door that she said was probably it.

I knocked. No response.

I knocked again. I had no plan on what to say. I just wanted to start doing something before my stutter protested.

No response. Oh, fine. Still angry at myself. I went back to my house and told my wife that nobody was there. She mentioned that she knew the security guards pretty well and that she could call them and find out. Really? Yes, can you please call them? I felt like a coward for not making the call myself, but I’d make up for it soon enough.

To be continued …

Summing up a Day of Stuttering

For the past three posts, I’ve outlined a hypothetical day in the life of a cover stutterer. I wanted to show how easy it can be to hide your stuttering from coworkers and friends. By “easy,” I mean doing things to minimize talking and interacting. All the mental planning to do so is certainly not easy and quite exhausting at times.

Here’s the Morning, Afternoon, and Evening.

Let’s review some of the actions from the entire day. Most of it was probably pretty obvious. For those of you who stutter or are covert, you can laugh and nod along. For your friends and family, I hope they see how sneaky we are really being. And what might seem like a “quiet” person may in fact be a covert person who stutters…

After about an hour, his buddy comes by and asks about going downstairs to the cafe for some coffee. They both go down, and when his buddy orders, he follows up with “the same.”

The nice thing about having a work buddy is familiarity. For me at least it’s easier to talk to them, and I don’t stutter as much. But then again, the pressure is also on in speaking situations to not stutter in front of them … even though they probably already know. The interesting thing about a drink order is that after a while, you’ll justify to others why you like it so much — even though several months ago you didn’t want it in the first place. It’s all you could pronounce. Small stores are also nice because you can just collect your snacks and drinks and put them on the counter, quietly giving cash or a card.

Back at his desk, he pulls out the power bill. Thankfully he sees that there’s a Web site on there.

Yeah, it’s 2014, and this is certainly possible. But not necessarily for every utility company. In the past, depending on the fee or problem, I would just let it go instead of calling to correct it. This is of course is annoying because on just about every personal finance page they talk about calling your credit cards and asking for reduced interest rates. Or calling your cable company to ask about a different package to save money.

Before going to the staff meeting, he prints out the spreadsheet that his boss will review during the meeting.

For me being prepared and comfortable with a situation reduces the stuttering possibility. I’ll know what I’m talking about. I can say, and hold up a piece of paper, yes, it’s been done. The other good thing about being organized is being able to bail out a coworker who isn’t.

He’s got a dentist appointment on Wednesday afternoon. But he’ll just send an e-mail to his boss who should be cool about this.

Yeah, because saying a “d” word during a staff meeting would have been pleasant …it’s also easier to e-mail a reason, date and time than say it.

“Can we talk about this?” The other person responds, “Eh, well, I’ve got a meeting in a few minutes, so …”

I don’t do this that often, but there’s the cousin of this action — checking a calendar, finding someone busy, and then calling them to leave a voicemail. (painful in and of itself, but maybe you just hang up and then they’ll see your number.) The evasive maneuvre above is high risk, high reward, though. The person could easily just have said, “yeah, let’s talk. I was going to go to a meeting, but they cancelled it.”

Our PWS offers up the fast food place, “I ate healthy over the weekend,” but his buddy turns it down, “I didn’t.” Ok, well then how about no. 4 — we can get sandwiches there, and it shouldn’t take too long.

Ah lunch. A special kind of social pain. Again, this is a high risk, high reward tactic. Ordering fast food is also pretty nerve wracking. So his buddy could have agreed to it. But remembering what they did last week (maybe a lot of fast food) and maybe a text or two from the weekend about his buddy’s activities, he figured it was worth a shot. The restaurants were definitely not a viable option — having to talk to people — unnecessarily. And option 4 — I’m looking at you, Wawa and Sheetz, with your glorious touch-screen sandwich-making awesomeness.

Our PWS dials the number. As it’s ringing, he swings his chair towards the side of his cubicle and begins going through some folders.

The other option of course is to let the person who you called pick up, and then not say anything. And just look at the other person in the room like, “um, if you want to start talking right now, that’d be super helpful …” The best part is they’ll often say into the phone who they are as well as who you are! One less time of having to say your own name!

Our PWS whips out his iPhone and pulls up the pizza place’s web site. He puts in an order and hits submit.

Our PWS could have pre-empted this by asking on the invite call — should I stop by somewhere and get anything? Or, can you order pizza/sandwich for me? I’ll admit that no, there aren’t too many pizza-ordering apps out there. And maybe the local place doesn’t have an app after all. What our PWS would do in this case is maybe search around online for coupons to the local pizza place (but not call). Then when the buddy comes back from his errand and asks what’s wrong, say, oh, nothing, just looking for a coupon. Or do you have any? No? Then push it onto the buddy to call because it’s his place and he knows his own phone number and address …

Our PWS quickly gets up from the couch and walks to the kitchen to talk.

He’s being polite! He doesn’t want to interrupt the tv-viewing experience of his buddy.

They do this off and on for the second half of the game.

By doing this, he’s staying connected to his family without the added stress of the telephone. And it’s become such a regular thing, that his family doesn’t make a big deal out of it.

So there you go. Day after day, week after week … and so on. Pretty soon you can avoid having to talk to people without too much effort.

An Evening without Stuttering

After work, our PWS goes back home with not much to do but watch television. He gets a call from another buddy asking if he’d like to come over to watch the Monday Night Football game. Sure thing.

He heads over, and it’s just the two of them. His buddy asks about food. “Just call and order a pizza. I gotta run next door to my neighbor’s house to pick up his keys. He’s going to be out of town for a few days.”

Alright, no problem.

Our PWS whips out his iPhone and pulls up the pizza place’s web site. He puts in an order and hits submit.

During the game, our PWS doesn’t say too much about what’s happening on the field. He’s keeping an eye on his fantasy football team on his buddy’s iPad. He remembers an article he read about one of the coaches that was very interesting. He pulls it up and hands the iPad to his buddy. “This is crazy. Check this out.” His buddy reads the article and starts commenting on it for a few minutes.

At halftime, our PWS gets a call from his dad, whose favorite team is playing that evening. Our PWS quickly gets up from the couch and walks to the kitchen to talk. “Yeah, things are good. I’m just at a friend’s house. Yeah, we’re watching… I know, right? I can’t believe it either…That guy is incredible… Uh-huh… Yeah… Ok… Yeah… No.., work’s fine… It’s fine. Alright… I’ll talk to you later.”

Since he knows his dad isn’t a big texter, he texts his younger brother who is still living with his parents. They do this off and on for the second half of the game.

After the game, our PWS says goodbye and heads home.

In the next post I’ll go through what our PWS did during the day and point out all of his covert actions.

An Afternoon without Stuttering

We continue following our person who stutters from the morning into lunch. After tomorrow (when I talk about what he does in the evening) I’ll go back and review his actions and what manner of sneakiness he showed through the day.

For those who are covert, none of this is new. But if you stutter and your friends wonder what it’s like (or don’t think you stutter) then you can show them these posts.

Just before lunch, our PWS has a list of questions about a project he’s working on. He needs to talk to someone in a different department. He opens up Outlook and checks their calendar. He sees that it’s 11:15 now, and the person has a meeting at 11:30 for an hour. He gets up with his list and walks up a floor to meet them. “Listen, I’ve got a bunch of things I wanted to know about this project,” he starts, looking at his page of questions. “Can we talk about this?” The other person responds, “Eh, well, I’ve got a meeting in a few minutes, so …”

“So maybe it’d just be better if I e-mail them to you?”

“Yeah, that’d be awesome.”

“Alright, cool.”

And that’s that.

Next up, lunch. The same coffee friend comes by and asks about lunch — where do you want to go? The options work out basically to: 1. Sit down place where the waiter takes your order. 2. Counter place where you order, 3. Fast food place and 4. Electronic ordering place.

Our PWS offers up the fast food place, “I ate healthy over the weekend,” but his buddy turns it down, “I didn’t.” Ok, well then how about no. 4 — we can get sandwiches there, and it shouldn’t take too long. “Ok, that’s good. Let’s go.”

After lunch is done, our PWS continues working quietly at his desk. He doesn’t get too many phone calls, but maybe the occasional visitor stopping by to ask something. Here comes someone now.

“Hey, how are you? Listen, for this report, it’s got this spreadsheet as backup. Where did you get these numbers from?”

Our PWS replies, “Oh, it’s from another department. Then I just check them against our information.”

“Ok, but there are a few things here that don’t add up. Can you get this resolved? I need this as soon as possible. Can you call them?”

“Yeah, sure.”

Our PWS dials the number. As it’s ringing, he swings his chair towards the side of his cubicle and begins going through some folders. “Let me see what we did last time for this.”

The phone picks up, and the person who stopped by sees that the PWS is busy rifling through folders. He begins talking to the person on the phone about the problem. Our PWS swings back and pulls up the spreadsheet on the computer and listens to the phone conversation intently. They work through the issue over the phone, and the person walks away satisfied.

Before leaving for the day, our PWS gets an e-mail from the electric company — the extra charge has been resolved and will be reimbursed.

A Morning without Stuttering

So for this thought exercise, we’ll be making a bunch of assumptions about age, career, education and so on. But you’ll see the concepts are the same — there is a possibility to avoid speaking in this day and age.

Starting with the morning, our fictional person who stutters wakes up. He gets dressed and decides to try something new for breakfast. Instead of cereal, he wants to cook some eggs. Not just regular microwave-scrambled eggs, but something with more flair on the stovetop. He had this idea last week, so this morning, he fires up his iPad and pulls up a Youtube video. He could have casually asked a coworker last week. No need. When he’s got a question or concern about how his egg is turning out based on this particular Youtube video, he searchs for another. Then finds out what he was doing wrong.

Since our person who stutters got home late last night, he didn’t notice the envelope from his power company on the floor by the front door. He picks it up and opens it. He sees that there is an extra charge on the bill. He folds it and puts it into his pocket and heads out to work.

He drives to work trying to think of what’s on the menu for today. Is there a staff meeting? I think so, it’s Monday. So that’s at 9. Once he gets to work, he smiles at a few people, saying hello. Let’s make him an engineer who works on datasheets and specifications for an engineering company. His company has an open-plan cubicle arrangement. After about an hour, his buddy comes by and asks about going downstairs to the cafe for some coffee. They both go down, and when his buddy orders, he follows up with “the same.”

Back at his desk, he pulls out the power bill. Thankfully he sees that there’s a Web site on there. He brings it up and searches for an e-mail address or help page. He finds it, enters in his information, and quickly types out his issue briefly.

Before going to the staff meeting, he prints out the spreadsheet that his boss will review during the meeting. It’s got a list of activities for the team members, and what progress is expected this week. He also looks at what was supposed to be done last week. It’s all done.

During the meeting when his boss calls on him, he quickly nods his approval “yeah” when his boss asks about last week, and then when asked about the next five days says, “no problem.” He knows that there is a problem, but it’s pretty small. He’s got a dentist appointment on Wednesday afternoon. But he’ll just send an e-mail to his boss who should be cool about this. Then just stay an extra hour or two to finish the work.

Days without Stuttering

Many years ago, after learning how to drive, I learned something else: that you have to pump and pay for gas. It’s simple, yes, but of course it’s an additional interaction that I had to deal with. More stuttering.

In those days (Let’s say the late 90s when I was leaving high school and getting into college) you’d pull up to the pump, get out, pick the gas you wanted, pump it, hang the pump back up, and then walk inside to pay. All the pumps had numbers, so you simply told them what number pump you were on.

Tell them. Numbers. Easy words. Not many words. Just one, really. Maybe a hello first.

I hated this. Some of the numbers were easier to say, sure, but you never knew how many other cars were going to be there. And you never knew how many other people would be standing in line inside, waiting to pay for sodas and Twinkies. And of course it was like, why would you hesitate on this answer? They’d ask, you’d say. How can you not know? The number is right there — it’s huge. And if there was a line, you’d feel the pressure of that as well.

Miraculously, a few years later, most of the pumps started to change. They took credit cards. I had a credit card. You swipe, pump, and go. No talking. No pointing helplessly. No anxiety. Swipe, pump, go. Swipe, pump, go. Everything should be this easy!

Over the past few years a lot of things have become this easy …

So over the next few days I wanted to write out a thought experiment of sorts — morning, noon and night as someone who stutters but has decided to not talk to anybody for anything. What would that look like?

I think it’s important to consider technology in our lives and what it can do to help those of us who stutter. If I have 30 activities in a day, I can choose a path where I don’t talk to anybody for all of them. The next day, I can challenge myself. I can talk on one of them. Then the next day, two, and three, and so on. I can slowly build confidence on my own terms.

Another way of putting this is to show people (those who don’t stutter) just how easy it can be to be a covert stutterer. (Note — I’m not talking about the emotional stuff — just the interactive stuff.)

What I’m Stuttering on These Days

Ok, so yesterday’s post finally closed out my trip to the NSA Conference, Tour de France chasing, and visit with Tom Weidig experience. Back to regular programming here … whatever that might entail.

Let me go with what I’ve been stuttering on lately since I haven’t done one in a while. Three main things come to mind, mostly news-related.

1. The whole Ray Rice incident that’s going on in the States. Since I’m in Saudi, I’m talking to non-Americans about these things. So I’d like to say the guy’s name, but of course I’m suffering on those two Rs. Then again, since I’m talking to non-Americans, I can also get away with saying “this football player.”

2. Apple announced their new iPhone as well as Apple Watch. The phone, sure, I know who’s interested in probably buying it. But when I’m talking to people, I’m wondering if they’d like to get the watch when it comes out. But boy oh boy is that a tough w word. Just this morning I spent a good 30 seconds (or so it seemed) making three attempts to get it out. Finally worked though. I’m not even sure that calling it the “iWatch” would have helped me any. I’m guess not since it’s a vowel rolling straight into that w.

3. One of the guys who used to work for me is applying for a job with a large multinational firm. I got a reference call from them today. My guy had asked me if it had happened yet (about a month ago) but I said no. Then forgot about it. Well, today when I got the call, I wasn’t really prepared and stuttered and stumbled a good bit. I did most of the talking, though. Nothing I said wasn’t true, but I felt like I was really trotting out a lot of cliches. The caller didn’t even ask anything real specific, just that they’re calling to find out about the candidate’s character. Fortunately I was able to take the call outside and be alone. I did say all the words I wanted to, and I think it was ok. I was thinking at the end of the call that I probably should have told the caller that I stuttered — maybe it seemed like I wasn’t sure or confused with all the stuttering. On the other hand, those kinds of calls are usually short. Just want to make sure there aren’t any red flags.

Lastly, a friend asked me if there were certain letters that I stuttered on more than others. I said yes, of course. I’ll make a list. It’ll have 26 items on it.

Your True Self

The third and final thing I picked up from the Stuttering Brain is this:

3. After the stutter, we feel regret or shame. We identify ourselves with the stutter, and thus become covert. This becomes who we are instead of our true selves. Thus, we lose our authenticity.

I talked about authenticity before, but I wanted to make some more points. What Tom said is that if we are interviewing with a company, and they make a big deal out of our stutter, do we really want to work for them? Is that the type of unnecessary hardship we want to put ourselves through?

On the same interview idea, they should know that we stutter. This is how it’s going to be. This is how we are going to present ourself, but we can still tell them we can maange it, and we have pushed through it before. The work should define us, not the stuttering. We need to be our true self.

One of the more tricky points though about authenticity (in my mind) is that after so many years of covert stuttering, our personalities are set. Many things are defined by the stuttering. And now, at age 35, I’m saying I’ll put all that aside and let my true self out. But what is that true self after so many years?

Is it the true self who wanted to speak up so many years ago, didn’t, but then learned from experience that being a loudmouth isn’t always desirable?

Is it the true self who wanted to ask a question in class but instead had to find answers on my own — leading to a drive to be more self reliant?

Is it the true self who wanted to participate in a group presentation but told the others I’d be happy to put more effort into the presentation — making me a valuable and reliable coworker?

I guess the main question is trying to compare our stuttering self with what we think our non-stuttering self would be like. And that’s very difficult. We’d like to think we would have done things differently, said different things, had different outcomes. We’d like to think that version is better. So if we ignore the stuttering, push through it, and educate our friends, that better version will come out.

But I think that really discounts a lot of the positive outcomes of stuttering. We sell ourselves short by doing that.

I’m not saying we should let our stutter define us. Definitely not. But at the same time, we should acknowledge that it has had a strong effect on our lives — sometimes for the better. We are probably better listeners. We don’t make silly comments all the time. We are more patient.

I’m not sure if I’ve really expressed this the way I want. I may revisit it again in a few weeks once I sort out some more feelings on it. I suppose a relevant thought exercise is this: If you woke up tomorrow morning and didn’t stutter, what would be different?

I think there’s a big difference in that answer at age 10, 20, 30, 40 and beyond.

Your Stuttering Associations

The second thing that I picked up from Tom is closely related to the first but slightly different:

2. During the stutter, we feel that if we are stuttering, it’s a negative situation. Thus, we make negative connections with situations. Then avoid them in the future. However, these connections can be broken and positive associations made.

Whereas the first thing I talked about — theories — is more of a drawn out, lots of thinking approach, this is more of a gut feel. These are the results of actually having engaged and stuttered in a situation. These are ones we don’t even bother thinking about anymore. With the theory, we talk ourself out of calling the credit card company or approaching a stranger. With these associations, we either make a quick excuse to friends first, or just change the subject or walk away.

For example, if we are listening to a radio station, and they’re asking trivia questions. And you know the answer. Eh, whatever. Not going to bother calling in. Of if the teacher is asking for volunteers for some kind of speaking role. Or if you’re in a room full of mostly strangers — you just hang on to the those who you know and talk to them.

The point of this is that these are all negative associations we have built up. But what Tom said is that they can all broken. And not only that, but they can be built again in a positive fashion.

Again I’ll reference my France trip — I went up to a stranger in a small town. Sure he was an older gentlemen, but a stranger nonetheless. I didn’t want to. I didn’t have to. But I did. I made a connection. I spoke, I stumbled, but overall it was positive. Score one for talking to strangers.

Is it a long process? Oh yes. Is it pleasant? Probably not. But can it be done? With enough work, yes. We can go from not wanting to pick up the phone to hesitating to pick up the phone to picking up the phone. These are small victories, but slowly those associations and pathways are being rewired. As I said yesterday, the world isn’t going to end.

I suppose one thing I could do to nerd this up a bit is to make it objective, put it all down on paper. I write down those situations that scare the crap out of me (still). Write down the experiences that I can remember that make now feel this way. (I bet I would struggle to do this). And then seek out opportunities to engage people and change my negative associations.

It would also then be worthwhile to write down all the positive experiences. And weigh them against the negative. I know it’d be way out of balance. I know the stuttering isn’t a big deal for the casual listener. But it’s so engrained that it’d really take a lot of practice to change my own perceptions. But I’m willing to do that.

Are you?

Your Stuttering Theories

So here’s the first part of what I got from Dr. Weidig, the Stuttering Brain

Before the stutter, we imagine what horrible things are going to happen to us if we stutter and if we are found out. But that’s just a theory. And theories should be tested.

What do we mean by this? Well, it’s rooted in fear and shame. We have fears of speaking and feeling humiliated. We are ashamed of our stutter, and how we are not perfect. So what we do is dream up scenarios (often elaborate) of why things will go south if we open our mouths:

1. If I call about reducing the APR on my credit card, they will ask for my name and date of birth. And other numbers. I don’t want to stutter through them. The APR is fine.

2. If I ask the police officer or security person for directions, he might think there’s something wrong with me. He might start asking me questions that I’ll stutter on. Better to just try to find a map and figure out where I am by myself.

3. If I ask the stranger on the subway next to me how to make a transfer, I might stutter. He’ll think I’m weird or on drugs or who knows what. I’m better off staring at the map and trying to figure it out myself.

4. If I advertise my stutter during an interview, they might not hire me. I’d better just suck it up at my current job.

5. If I speak up during a company meeting, my colleagues will think less of me. I’ll just stay quiet.

And so on.

So these are all theories. They deserve to be tested, no? Why not just speak and see what happens? Either what you think will happen will happen, or the opposite will. If it’s the opposite, then you got the information. You made a connection. You make your life easier. You conveyed information successfully. You’ve boosted your confidence. Your colleagues went up to you after the meeting and thanked you for speaking up and saying what they were all thinking.

If you stutter and crash and burn, so what? Did you die? No. (Tom made a strong point about this — it’s our caveman reaction to run from fear and avoid it. But we’re just talking. We’re asking for no whip on our venti nonfat mocha. We’re not facing down a mastodon). Did the world come to a halt? Did everybody at the Starbucks suddenly stop sipping and stare at you while you stuttered out your order in line? No, of course not.

I loved this idea because I really lived it while in France. I would go up to the bakery or whatever, roll out a “bonjour,” and then think of what I wanted and what I wanted to say. I was testing out theories. And in all cases, the world didn’t end. I didn’t get deported. My friend didn’t look at me funny. I got what I wanted when I tried to order.

Most importantly, I still want to go back and speak more.

Meeting the Stuttering Brain

After the shenanigans in France, my buddy and I headed up to Luxembourg to meet Tom Weidig of the Stuttering Brain. And yes, it was a full-on stuttering vacation, complete with three countries and plenty of people who stutter.

I met up with Tom, and he gave me a great walking tour of Luxembourg City. What I noticed first was that Tom stuttered, but he just plowed on through, still talking, still communicating. And none of it bothered him. I was still getting used to listening to other people who stutter, but this was inspirational for me. Tom didn’t slow down one bit in his tour (he also walked pretty fast) and as someone whose family is from Luxembourg, he had a lot to tell.

We ate dinner, and he shared his thoughts about stuttering and his attitude toward it. A lot of what he said echoed the workshops during the NSA conference. But with Tom, it was more direct. It was great to meet and talk to someone who had such a healthy relationship with his stutter.

After dinner we walked through the city some more. Tom even tried to find someone who he knew just so I had to introduce myself! Fortunately he wasn’t successful. We had some ice cream — I ordered what I wanted — and then we parted ways.

Let me briefly summarize my understanding of Tom’s points on Stuttering. Then I’ll get into them more this week.

He didn’t state them this way per se, but after thinking more about it, it follows a natural sort of course.

1. Before the stutter, we imagine what horrible things are going to happen to us if we stutter if we are found out. But that’s just a theory. And theories should be tested.

2. During the stutter, we feel that if we are stuttering, it’s a negative situation. Thus, we make negative connections with situations. Then avoid them in the future. However, these connections can be broken and positive associations made.

3. After the stutter, we feel regret or shame. We identify ourselves with the stutter, and thus become covert. This becomes who we are instead of our true selves. Thus, we lose our authenticity.

You can see how they are tightly connected and flow into each other.

What I really enjoyed about Tom is that I felt challenged after talking to him. Everything he said was clear and made perfect sense. Everything he said could be put into practice to make myself more accepting of my own stutter.

Stuttering in France Part 4

Alright, so this is the last installment of stuttering in France, and, well, it doesn’t involve any stuttering. But hey, I need to finish the Tour chasing story, right?

So here’s what happened in Fresnes from yesterday’s post:

As well as this from Pannes:

In the bottom photo — it’s blurry — but Matthew is giving us a thumbs up! We were waving the flag and screamed his name as loud as we could. He ripped past us at more than 60kph I’m guessing — they were coming off a little hill around a curve. So he’s giving us the thumbs up through the turn — quite the professional!

I posted both of those on Friday evening, and @matthewbusche favorited both of them. Success!

We had parked up in Pannes and took the photo above. Then we got back into the car and tried to get to a third spot. Unfortunately, the tour-chasing app wasn’t updating regularly since we had spotty reception out in the French countryside. So while we thought we were ahead of the peloton, we were actually just behind it.

And that was it! In two days we saw the peloton five times. We saw a run-in to the finish as well as the start. All-in-all a good taste of what chasing the tour is like.

After leaving Pannes, we headed toward Luxembourg. I had an appointment with the great Dr. Tom Weidig from Stuttering Brain. He gave me an awesome tour of his city as well as some great advice on stuttering. (So yeah, it was a real stuttering-centric vacation).

I’ll get into what Tom and I talked about next week.

Stuttering in France Part 3

Chasing the Tour wasn’t too difficult for these early stages — the peloton traveled on smaller roads near a larger highway. So right after Epernay, we made for the highway, and made as much time as we could.

We looked at the map and found a small town — Fresnes-en-Woëvre. It was sort of near the highway, and the peloton would be there shortly — there is a timetable on the Tour’s Web site. So we parked up about 200 meters away and walked over to the route.

There were a bunch of people from the small town just standing around. No cars were going through yet. As we walked around a little (to take some photos of sunflowers, etc.,) we ran into an older man. We said hello, but he realized that we didn’t speak French. And he called to some people across the road — in French, he said we don’t speak French! And did anybody speak English? No!

Ah, here was my chance! So I said to this older man (in French!) that yes, I did speak French. He was quite surprised! So, in whatever French I could muster, I explained to him that we were from America, we were here to chase the Tour, and that we worked as engineers. I also said we just arrived yesterday, and that we would be leaving tomorrow. (Yeah, I know, it’s real simple stuff. But seriously, this was a huge win for me).

Then he began talking, and it was a bit difficult to understand. But I did make out that he was retired, and he had worked with disabled children when he was working.

And that was pretty much that!

Did I think about stuttering at all while talking to the old man? Not really. I was more focused on what I wanted to say and making sure I had some sort of accent so he would understand me. If I didn’t say something, it wasn’t because I was avoiding — it’s because I flat out didn’t know how to express myself.

But just to review: Did I approach a complete stranger? Yes. Was I anxious about it? Yes. Did I stutter? Eh, maybe a little. Did the world end? No. No it didn’t. Positive reinforcement.

We had brought along a large American flag to wave around on the side of the road. Using a tour tracking app, we found out that American Matthew Busche was in the breakaway! So as they were about to go past, we busted out the big flag and screamed Matthew’s name. They went by in a blur, but it was still really exciting. A few moments later the peloton went by.

Then we hustled back to the rental car, checked the map, and pointed ourselves toward Pannes.

Stuttering in France Part 2

I know the expression “best day of my life” gets thrown around a lot, but hey, sometimes it’s appropriate. Of course there are the standard ones, birth of children, graduation from college, first job, etc., and so on. So let’s just throw this in the Top Ten of other stuff that doesn’t go in those categories.

And yes, one of the best days of my life involved talking to strangers. In a foreign language. And being anxious about stuttering. Continuing on yesterday’s post …

On our second day of chasing the Tour, we woke up in Reims and then drove down to Epernay. This was nice because the hotels in Reims were cheap that night! And it was easy to make the drive. Not too much traffic. We tried to get as close to the center of town as we could, but didn’t have any idea of where to really park or be. No matter. Just park about 2-3 km away and walk down. We got there pretty early — maybe around 10 — so we had time to walk around, get some food and take in the crowds that were already forming.

Before the riders pass through, there is the publicity caravan. They get going really early. So we stood around and watched them go by on the course, throwing out little samples and other stuff.

After that we noticed a large empty parking lot. We didn’t know where the teams were though — the buses? Were they parked up someplace else? We didn’t have any kind of local map or guide book to help us.

But after a while I figured, no, this giant parking lot is where the team buses are going to go. But when? Let’s let the stuttering try to take over:

Stuttering: Look, you already figured out that the buses and thus the teams are going to be here. Why do we need to talk to anybody?
Me: Because maybe they won’t be. Maybe there’s another parking lot within walking distance. It’s entirely possible.
Stuttering: No it’s not. C’mon. Think about it.
Me: Ok, smartypants, then when are the teams going to be here then?
Stuttering: They’ll be here when they’ll be here. Be patient.
Me: Unacceptable!

I saw a security-guard type fellow standing near the entrance of the parking lot — the parking lot led into a VIP-looking area. There were some other tourists milling about and talking to the security guard. I didn’t want to ask him something in French when people were around. (So, see, here we go — I’ll speak a foreign language to a complete stranger, but dammit, I’ll do it on my own terms.) Suddenly the security guard was alone, and I moved in quickly. My friend was right next to me the whole time even though I said, “hang on, let me check something.” I think my friend just wanted to hear the exchange.

I asked the security guard, in French, where the teams are. He said they would be here, in this parking lot. When, I asked. He said at 11 (I remember understanding the answer — pretty sure it was 11 … or maybe he said thirty minutes?). And that was all we needed. Ok! So, high school French used without issue! Did I stutter? No? Did I think about stuttering? A little — the anxiety part. Did I think I was going to stutter? Yes. But did I? No. So did anything bad happen speaking a foreign language? NO! Confidence boosted.

We then walked around to the other side of the parking lot, and when we got there, the buses started pulling in. Perfect! Apparently the parking lot was a wrist-band only VIP type area, but some of the buses parked along the perimeter fence so the public could walk right up. That’s where we were. First the mechanics came out to set up the bikes, and then a few riders came out to do interviews. As a cycling fan, it was all a dream come true!

After milling about for nearly an hour, we walked a block to the course and took up a spot with thousands of others. The peloton slowly rode by (they were still being neutralized) and then we ran back to the car to drive out into the French countryside and wait for the peloton to roll by again.

Next stop: Fresnes-en-Woëvre, and a lot more French speaking.

Stuttering in France Part 1

So after going to the NSA Annual Conference, I flew back to Saudi. But on the way, I stopped off in France for two and a half days to catch the Tour de France. I’m a casual cycling fan and like to get out on my bike as often as possible. Watching the Tour in person was something I’ve been hoping to do for many years.

I talked my best friend from high school into coming for a few days as well. The more the merrier. The plan was pretty simple — we were going to catch two of the earlier stages — flat ones — and that’s it. I wasn’t interested in seeing Paris or any specific tourist trap. All I wanted was to see the peloton a few times.

With regards to stuttering, I was somewhat juiced up by the workshop where others talked about stuttering in foreign languages. And how we all deserve to speak a foreign language. Yes!

Before even going on the trip, I talked to the French couple who I met here in Saudi. I actually practiced some French with them — what I wanted to say at the rental car counter. I wanted a Skoda! (all the Tour cars are Skodas … so … yeah, I dunno. Seemed like a nice idea). Anyway, when I was talking to them, they told me my French was actually pretty good.

I didn’t go to France with any specific amount of French that I wanted to speak, but I wanted to try at every opportunity.

The first chance was at the rental counter. I got a few words in — hello, I have a reservation, here’s my passport … and then she realized I was American and spoke English, sot he rest of the transaction happened in English. No problem. We’re making progress. The other positive thing that happened was that she said she didn’t have the specific car I wanted. But I didn’t back down. I wanted a stick shift car, and well, not the VW Beetle she had. She looked and said it would be tough. Please? I really want this type of car. Ok, so she found something, but it was at the next terminal. Can I go over there? Well, I have some time before my friend arrives, so can they bring it here? Yes, they can. Super.

Since I had taken French in high school, I was able to read and understand mostly everything in and around the airport. I was pretty comfortable and very happy about it. I was also thinking I could make a life in France work …

After my friend showed up, we drove straight for a small town (he took Spanish in high school, so was completely useless with regards to … reading anything). We parked up, strode into town, and waited for the peloton. While standing there, we turned around and realized we were right in front of a bakery. Hungry! So we headed inside, bonjour, s’il vous plait, and well, they’re speaking English as well to us. But I wasn’t letting the stutter get any advantage at all.

The rest of the afternoon and evening was much the same — a little French at the beginning of an interaction, and then they started speaking English. Maybe they were practicing as well? No. Probably not. But I liked the confidence that knowing French gave me in France. And I felt more comfortable because everybody was speaking French and making it all sound normal.

During my French classes in high school, it all seemed so … textbook. And there was no “reality” around it — back in those days before the Internet (as it is today) we didn’t really watch any French speakers on YouTube or shows or anything like that. So it remained very … foreign.

Tomorrow I’ll get into Friday in France. One of the best days of my life for a variety of reasons — including how I spoke to a complete stranger (in French!) and other authority figures.

Stories untold

I think if you asked people who knew me very well, they’d say I was pretty outgoing. That I talked as much as anybody else, and am always up for a good time.

I think if you asked people who didn’t know me as well, they’d probably say I was pretty quiet and didn’t say much.

It’s that cliche of, if you get to know me, I’ll open up a lot more. And obviously that’s got everything to do with stuttering. I’m uncomfortable at first (and for a while, really) but once the initial hesitations are done, the stories will flow.

But not always.

I find myself [trying] to tell stories to friends. And I’m stuttering a bunch on them. Not just the introduction or a name here and there. Like every part of the plot. Names, places, times, relevant jokes. I’m bumbling around so much, that I think it’s not worth it. I’ll push on ahead, finish the story, and then store it away forever.

I think that there’s no way I can get through it again without stuttering, so I’m not going to bother trying with anybody else. It’s a once-told story. Then that same attitude goes toward a bunch of untold stories as well. I think about what I have to say, compare it to a mental list of Words I Hate, and well, nobody hears that story either.

On a related note, I suppose none of my friends really thought I stuttered much because often (in a group of friends) they’d defer to me to “tell the story.” Then it’s me on the spot. I have to get through it quickly and smoothly. Everybody is looking at me, expecting, smiling, wanting to laugh. Talk about pressure.

My stuttering for the week

I haven’t done one of these posts in a while, so I thought I should summarize what I’ve been stuttering on in the past few days.

1. As a cycling fan, I’m excited for this year’s Vuelta a Espana — the tour of Spain. The problem is the word “vuelta.” That v going right into a w. Oh man. I drag out the v a bunch, and then run into a block on the “w” sound. And it confuses the listener when you say it’s the Tour of Spain. It’s La Vuelta — so let’s just call it that!

2. The usual “w” sound on what. It feels like these days I’m asking a lot of questions, and I’m always getting stuck on the “what” part. Everything after that is usually fine, though.

3. One of the Saudis who I talk to regularly here refers to his “family” all the time. But it’s just him and his wife. I thought that was interesting. So he’ll say that he and his family went here, or went there. I’m always stuttering on “wife,” so maybe I should just refer to her as my “family” as well … at least I’d be including the kids, too.

4. We stayed in a hotel a few weekends ago, and for the first time ever, we were in Room 101. The room number (in most countries) is usually trivial, but the big thing here in Saudi are the included breakfasts. So you go down to the restaurant in the morning, and — you guessed it — tell the guy your room number. More w sounds! Awesome! I decided I didn’t care about my stutter and stuttered it out for both days — “one oh one.” It was rough. And he just stared and waited. A little smile came out. I could have very easily said “a hundred and one” which would have been faster. But that would be doing the covert thing which I’m trying to avoid little by little.

(Note: what I’ve done in the past if I get a really hard room number is just hand them the little card-holder thingy that the guy at reception wrote my room number on. If you’re not someone who stutters, and you saw this gesture, you’d think nothing of it. But it’s an old covert trick …)

5. I spoke up at a meeting the other day without stumbling and stuttering too much. I knew exactly what I wanted to say, and I had a good command of the room — there were only a half dozen people in there. I had met them all before. The thing about being a consultant is that you’re expected to talk and lead. So just sitting there isn’t doing anybody any good. I knew they were looking to our team for an answer, and being the manager, it was up to me to take charge and let them know exactly what we were going to do, and when it was going to be done. They had a concern which I also addressed, and the meeting was over in less than 15 minutes. I wasn’t thinking about the stuttering that much. I was focused on the message, and it really helped me drive through the stutter.

Stuttering in children’s books

Piglet

So what am I supposed to do with this? What do you do with this? This is from a Winnie-the-Pooh story. In this same book are stories about Mickey and Minnie, so we’ve only really read those. But I was flipping through to try to change things up, and I started reading this. I did a little bumble here and there, and then decided that my kid wasn’t paying attention so … let’s read something else.

As I’ve said before, I don’t stutter at all while reading children’s books to the kids. It’s pretty nice. I speak slower, pace myself, and breathe better. I guess I’m supposed to do the act and say the words that are printed? Does Piglet have to talk like that? I know he’s scared, but seriously, are the kids going to pick up on the difference?

So far this is the only time I’ve seen “stuttering” in a children’s book. But given how popular Pooh is, I’m sure it’s in every one of his books.

Stuttering and Exercising

I got up today and yesterday at about 5 a.m. to head out for an early bike ride with one of the guys here on the compound. I really enjoy going out for a ride.

However, it’s been really, really hot here. About 100F early in the morning, and 110F or more by mid-afternoon.

I’ve been exercising inside (in the evening) for the past few days because I knew this ride was coming up.

Here’s the thing — I could have made excuses on Friday about not being fit enough to go out. Or being too tired. Or lied about having a mechanical issue with my bike. Or expressed concerns about the heat. My friend would have forgiven me and gotten on his way, doing the ride alone. No hard feelings.

But Friday morning I got up. And within the first five minutes, I was so happy I did. This kind of thing always happens. I dread having to wake up and get ready. But when I’m out on the road in the silent morning, I’m glad I did.

Friday ended up being a little rough for me, but I got through. I could have made excuses for Saturday. But I sucked it up and headed out.

What’s the point? Well, I was thinking about how this is like stuttering — you can easily avoid a situation. You can easily make excuses, and you can easily walk away usually. You don’t have to talk. You can send that e-mail or text. You can drive by a business (or look it up on the Internet) instead of calling it for opening hours.

For me at least getting past that first painful stutter is always the hardest part. After that it doesn’t get “easier,” but it gets better. I take a breath. I slow down. I smooth things out. And then I’m glad I went through the pain of that engagement. I’m glad I picked up the phone. I’m glad I introduced myself.

Stuttering Fear, Feelings and Fluency

Alright, so this is it. The last review of the last workshop from the NSA Annual Conference.

The last workshop was called Fear, Feelings and Fluency.

So first the bit about fear. And what, did they say is fear? FEAR — False Evidence Appearing Real. False evidence like how people are going to react to your stutter. We have a fear of rejection and criticism. And we’ve been through these occasionally with our stutters. So we assume that all future situations will be like this. So the walls go up …

People who stutter often engage in a lot of self-talk that sabotages the self. We talk up how things are going to turn out when people hear out stutter. So the best protection is to be covert.

On feelings — talking about acceptance — there’s no cure. We should accept ourselves and have no guilt and no shame about the stuttering. That we don’t have to meet your expectations, we have to meet our own. For me, at a fundamental level, I get this mixed up all the time. It fuels the lousy feelings I have about my stuttering. It’s important not to get down on yourself with stuttering. It’s an individual journey, and, as the saying goes, “results may vary.”

On fluency — they talked about focusing on communication, not fluency. Are you getting your message across? Great. Are you stuttering while doing it? That’s fine. If your fear of not being fluent is hampering your ability to clearly articulate your message, then the stuttering has won.

I’ll talk more about these concepts when I talk about my visit with Tom Weidig from Stuttering Brain. He brought up these points as well as some on being authentic.

Next task for me is to make a separate page with all of the links from the conference as well as some parting thoughts. Then it’ll be on to talking about my trip to France that I took on the way back to Saudi after the conference. After that, back to posting on what’s happening around the Internet and other stuttering snippets that I’ve written down over the years.

Lastly, this is the three-month anniversary (or pretty close to it) for the blog. 80 posts, and people from 52 countries have stopped by to take a look. Please feel free to comment or shoot me an e-mail.

Authenticity in Stuttering

Onto the penultimate workshop from the NSA Annual Conference.

I attended Authenticity: Stuttering’s Greatest Gift.

What I got from this workshop was that we need to stay true to ourselves even if that means stuttering and not being as covert as we would like. If we’re covert, if we’re hiding, if we’re avoiding, then that’s not really who we are. We aren’t saying what we want to say. We’re not engaging with who we want to talk to. We’re not standing up for ourselves in our times of need.

Obviously being 100% authentic as someone who is covert and who wants to be overt isn’t going to happen overnight. They talked about weighing the costs of being authentic. How important is this issue that you need to speak and struggle?

Emma made a comment to the group that I thought was very interesting, and I’ll use my own name — “Rehan who stutters is not the same as Rehan who has a stutter.”

My understanding of this point (and what they said at the workshop) is like this — we attach a lot of labels to ourselves: Engineer, father, husband, American, photographer, etc., But we also add “stutterer.” And what happens is that instead of seeing all of those labels and those traits, we only shine the light on the stuttering. But it should be only a part of who we are. What I started thinking is that as someone who stutters, other people are only ever shining the light on the stuttering. And that bothers me.

But it turns out that no, I’m the one shining that light on my own stuttering. It’s me who has issues with stuttering, not anybody else. They have their own problems!

It almost seems like the stuttering permeates every other trait. I want to be a better photographer, but I’m afraid to engage with experienced photographers to get better. I am a father, but I change words when talking to my kids. I am a husband, but I don’t always communicate clearly and concisely with my wife.

The key I think is to isolate the stuttering and kick it out of everything else. Deal with it on its own. But obviously that’s pretty tough to do.

Online Stuttering Workshop

Next workshop that I attended at the NSA Annual Conference was a panel discussion — on online communities. And I was a panelist …

Katie Gore, MA, CCC-SLP, put the panel together. The point was to talk about what types of online stuttering communities there are, how they came to be, what their purpose is, and how they carry out their mission. There were very diverse representatives — a stuttering blog/podcast, a video blog, a podcast, a Google Hangout, and me with my blog.

Katie actually approached me through Reddit. She is active on there, and the stuttering discussion is growing.

She’s got a practice in Chicago:

Speech IRL was founded in the spring of 2013. I had spent the past few years working individually with adult clients, and realized that students and professionals have communication demands that go far beyond the usual scenarios targeted in a traditional speech therapy clinic setting. At the same time, I realized that most of the practices in Chicago were structured around a pediatric or hospital-associated rehabilitative model. My goal in forming speech IRL was to create a practice that could provide flexible, intensive speech therapy that simulates real-life challenges as much as possible. This allows us to do whatever it takes to achieve your goals– the city of Chicago is our clinic!

Daniele Rossi & Samuel Dunsiger were on the panel to talk about Stutter Social, which is a Google Hangout for people who stutter to meet up online and talk.

What is Stutter Social?

Stutter Social is an organization that connects people who stutter (PWS) through Google+ Hangouts. Participating in a Hangout is a fun, free, and safe way to connect with other PWS. Discussion often revolves around stuttering-related issues, but sometimes we just chat about our day or a good movie. We are a very welcoming and friendly bunch so don’t be shy and come join us whenever is convenient for you. We have a Hangout Calendar that lists all the different Hangouts occurring each week.

I also had a chance to buy Daniele’s book. I read through it almost non-stop when I got back to Saudi. I’ll post a review in a few days.

Daniele also talked about his podcast.

And you can participate:

Record an mp3 of yourself speaking and e-mail it to me. Talk about whatever you like! Your positive and negative experiences with stuttering, any tips you have, how your day went, what you day job is, your favourite colour, whatever you like. Send me your audio as often as you wish. You can even sing if you want to. You don’t even have to reveal you’re name. Then I’ll play your submitted audio on my podcast.

Pamela A. Mertz was also on the panel from Make Room for the Stuttering. Not only does she have a long-running blog, but also a long-running podcast, the Women Who Stutter Podcast:

Make Room For The Stuttering was created by me, Pamela A Mertz (initials: pam) after realizing that I have a story to tell. I was a covert stutterer for many years, and was afraid to stutter publicly. Life circumstances and maturity have helped me realize that I wasted a lot of time, and that I much prefer the authentic me. My defining moment was getting fired from a job that I loved and had held for more than 20 years, because I had stuttered publicly.

The final person on the panel was Jacquelyn Revere, who’s been blogging and video blogging about stuttering. Jacquelyn is very active on twitter and has a youtube channel as well.

As I’ve said before, I’m blown away by people who stutter who just put themselves out there. I do it, sure, but on my own terms and certainly not on video. But … it’s something I need to work up to. Maybe a podcast episode first …

I need to update the links and resources on this site based on the above. I’ve noticed there are a lot of people active on Twitter with great links and resources. Most of the Sunday link roundup information comes from Twitter. Speaking of which … I think I may move that to Friday once and for all.

So how did I do talking about this blog? Well, like I said before the conference, I was going to wing it instead of preparing a bunch of talking points. Not exactly wing it, I suppose. I thought about some main points pretty thoroughly before the panel as well as while sitting up there nervously. I really thought that I would be confident with this — it’s my own blog, I know why I want to do it, I had been stuttering and talking a bunch at the conference a lot already. Maybe this could be a nice smooth delivery?

Not so much. I stutter, so I stuttered. But anyway, I got my point across — that another voice in the stuttering blogosphere is good for everybody — and that’s what’s important.

Stuttering Speed Talking

The next workshop I went to after lunch on the third day was Speed Talking. The premise was like open mic, but everybody was guaranteed to get involved. Two rows of chairs were set up facing each other. One row would stay in place, and the other would move to the next seat every 3 minutes. Like speed dating, but with stuttering. The idea was just to … talk.

Since one of my personal themes was “talk as much as you can” during the conference, I was interested to see how this would go. There were about 40 people total, so it would take up about an hour.

There are a lot of interesting dynamics when it comes to speed talking as someone who stutters. Here are my observations:

1. We had to introduce ourselves. For me this meant stuttering out my name. I was doing horribly at this, so about 30-45 seconds (or so it seemed to me) was chewed up by this. Any negative reactions by the person who I was talking to? Of course not! Stutter on!
2. Anything you want to try to ask starts with a “w.” Where are you from? What do you do? When did you start going to these conferences?
3. I decided not to substitute or avoid any words. Which made me stutter more.
4. I wanted to talk, I wanted to meet people! So I was pushing out questions really hard and interested in keeping conversations going.
5. Just like with any meeting of strangers, some people were better at making random small talk than others.
6. I was using some “canned” material, so I didn’t stutter as much on that. But I did get some random questions which took a while to answer.
7. As for “small talk” overall, it’s been a while since I’ve had to do it — not a lot of meeting new people here. So at times it was difficult to articulate what I was doing for a living and where I lived and the whole situation.
8. Maybe I should have talked to each person about the blog, but for whatever reason I didn’t. I don’t know — it didn’t seem like the right venue.
9. Three minutes goes by pretty quick when you’re stuttering (although it seems like forever at the time)
10. There were a lot of people talking in close proximity. So I had to raise my voice quite a bit and really focus on speaking. It was sort of like being at a noisy bar, really.
11. I did talk to some really interesting people, but I was lousy about following up with anybody after the workshop. I mean, I didn’t do any follow up. Need to do a lot better on that next year in Chicago.

So all in all, it was another great chance to … talk. And introduce myself. And stutter. A lot. And be put on the spot. And not to be judged. So that was awesome.

But it was absolutely exhausting.

Covert stuttering workshop

Covert stuttering exposed! Second workshop, third day. I wrote my thoughts on covert stuttering before.

This particular workshop was a panel of people who were formerly covert. They basically stood up and told their stories. Which were … amazingly like mine. They talked about avoiding situations, substituting words, not participating in activities, the whole bit. Indeed, I was not alone in my stuttering silo!

Just as in previous workshops, I was amazed at how these people just got up in front of a large group and stuttered away, not bothered at all.

They mentioned that there’s not a lot of research out there on covert stuttering. Well … of course. We don’t like to talk. About anything. Or want to associate ourselves with stuttering. So while I didn’t seek out research studies on this kind of stuff, I probably would have considered answering some questions if I ran into a study — say at my doctor’s office or something. But that rarely happens.

Also, there are varying degrees of success when it comes to covert stuttering. I thought this was interesting because it really sums up my life a lot. I have basically a “positive feedback loop” on being covert. What I was doing — avoiding, being silent, etc., was working. My life wasn’t getting any worse, and career-wise, things were continuing to improve. So there wasn’t any motivation in not being covert.

And what is it about being covert that’s so necessary? Well, aside from the usual shame/fear bit, it’s that society really places an emphasis on fluency. Like, perfection. Turn on the tv. Watch any show. Any of them. Nobody stutters. Ever. They’re all reading their lines perfectly. Even on the nightly news if they’re talking to a correspondant and not using the prompter, their words are succint and perfect. Radio personalities are perfect. Books on tape are perfect. Youtube video presenters are perfect. So where does this leave me? Well, I want to be perfect. If I can’t, then well, I’m just not going to open my mouth.

Avoid avoiding

Back to talking about the NSA Annual Conference.

I’m only up to Day 3 — July Fourth from our nation’s capital.

The day started off with You Make the Difference: Avoid Avoiding.

I managed to only write down a few things. The first is, “the environment of strangers has a lot of negative connotations.”

And of course this is why we avoid speaking or even trying to speak. Better to just shut it all down than to be embarassed (again). I do this kind of thing all the time. Why mingle at a wedding when I can just hang out with the few people I know at my table? Why linger at a company function after dinner when it’s just easier to eat and leave? Why try to navigate the drive through and having to speak through a speaker when I can just go inside and point to what I want?

“What have we done to avoid avoiding?”

This is about challenging ourselves to not be as covert, and to be out there with our speaking. We don’t have to be afraid all the time. Sure, sometimes we get a negative reaction, but the percetages are really, really low. It’s just that those instances really stick in our minds. We need to remember the positive and forget the negatives.

One thing she mentioned was stuttering on our voicemail message. So there, you got a call from a stranger, and they heard your stutter. They know you stutter. What are you afraid of now? That they’ll make a comment about it? Ok, so? Then what? Can you move on to talking about work or whatever? Isn’t a few seconds of discomfort better than hours or days of avoidance and having to resort to other means of communication?

(Quick aside — here in the Kingdom, I actually don’t have voicemail. Not on my cell phone, and not on my work phone. At work it just shows a log of missed calls. So if you see that someone called, then you just call back. Same for the mobile — or they could just text me. Does this mean that I may stutter on my voicemail when I get back to the States? Well … maybe.)

One note I wrote down to myself during this workshop was “Avoiding — now I have children.”

This means, quite simply, that we need to be able to speak for our children. Full stop, no excuses. You take your two-year-old to the doctor, and they’re sick, and they’ve been coughing or sneezing and whatever else, so all of that needs to be told to the doctor. What are you going to do, write it all down? Then what happens when the doctor asks you what they’ve been eating or where they’ve been playing? Didn’t think of that, did you? And you have to make sure to give exact answers. This is your kid’s health!

I think in broader terms maybe this is what’s really pushing me to lose the covert and be more overt. My kids. They can’t speak for themselves all the time. They can’t see that something’s not fair. I need to be able to stand up for them. I need to be able to ask about after-school programs, or where to get academic help, or what they’ve been up to in class when it comes to a parent-teacher conference.

As I’ve said many times before though, I’m not perfect, and I didn’t just go to the conference and come back with some sort of fearless streak. I came back with way more confidence and a different attitude, sure, but it still has to be executed on a daily basis. And some days are better than others.

Programming note … I think I may just go to a M-F publishing schedule. It seems most of the readers are visiting during the traditional work week anyway. I think I’m trying to do too much without considering the time it’s all going to take. Better to ease back a little and publish slightly less but with better quality and consistency.

Some stuttering notes

I’ll be out Friday and Saturday, but should be back to posting by Sunday. Here are some general notes and observations from the conference. I may have alluded to some of this before as well.

Sunday I’ll work on a link roundup — should be a pretty big one since I haven’t done one in a while. There’s a lot of good stuff that’s just been produced out there on stuttering.

1. If you’re going to go next year to Chicago, make sure to bring a hoodie or light coat. In some of the conference rooms, it was really, really cold.

1a. You know they’ve already posted the dates for Chicago? Crazy! And it looks like I may be able to do the NSA-Tour de France double again as well.

2. It was interesting being able to introduce myself (or stutter away at it, anyway) and not bail out and point to my name tag.

2a. A friend told me once to just say my name a few hundred times to get used to it. Yeah, that doesn’t help.

3. I was still having to steal a glance at other people’s nametags because as usual, I was so worried about saying my own name that I would forget theirs.

4. Nobody will finish your sentences or words for you. This was a little weird to me as well. I’m somewhat used to this happening, so maybe that’s why I don’t seem to stutter as much around the office. It’s annoying and degrading, and I’m still going to keep on stuttering through, but to be in such a friendly environment was a whole new experience.

5. After making some new friends, we’d sit around, and I’d hear my own stories come from their mouths. The same heartache on the phone, or while ordering food, or whatever.

6. I wish the conference could have been longer, but at the same time, I was pretty spent at the end of each day — thinking so much about my own stuttering as well as speaking and stuttering so much.

7. Maybe as you’re reading all this stuff about the conference, you think I’m going overboard a little. Well, mostly with stuttering everything that I remember is negative. So there is always a negative association. With all of these posts and remembering what happened, I want to focus on and emphasize the positive.

8. I was wondering why some of the workshops seemed light on attendance. Then I remembered we were in DC — and people wanted to get out and about in town. For me I was only interested in the conference and going to as many workshops as possible. I grew up only 2 hours from DC, so I’d already seen and done the touristy stuff.

No excuses with Rohan Murphy

The last session of the second day at the NSA Annual Conference was the General Session — Opening Announcements and Rohan Murphy.

Here’s a link to more information on Rohan.

Rohan Murphy, who lost his legs at birth, started to wrestle his freshman year of high school. After a successful high school wrestling career he went on to wrestle at Penn State University. In addition to wrestling, Rohan Murphy is also an accomplished powerlifter, competing in international competitions all over the world representing the USA.

The main message that I got from listening to Rohan was “what’s your excuse?”

This really hit home for me on two main levels with regards to stuttering.

The first is that my “excuse” for not wanting to talk more and meet more people is that I stutter. I’m afraid of how they’ll react. I’m afraid of what they’ll think both short and long term. I’m afraid I’ll just look like a fool. I’m afraid that the impression that they have of me will change completely once they find out that I stutter.

That’s obviously all a bunch of crap. Do I still have some of these stuttering excuses? Yes, of course. They’re ingrained. But I am moving past them as much as I can as I get older. The NSA conference really helped. Meeting people and having them react positively has helped. Just saying what I want without a huge negative reaction or long-term consequence has helped. It’s all part of the reprogramming, so to speak.

The second is that my “excuse” for not starting this blog earlier was I didn’t know how others would react. It’s very similar to the above. I had been writing in a journal for many years about my stuttering. How it affected me, how it might affect me. I always wanted to write a book or start a site. But I kept making excuses — it’s too time consuming, what if nobody reads it, what if it doesn’t change anything, what if future employers find out.

Fortunately this year I dumped all of those excuses. The site had been brewing for way too long. It finally erupted and the lava started flowing.

It’s funny because I can see the readership numbers. They’re not that high. But then again, when I was covert for so many years, how many stuttering blogs did I read? And why didn’t I read more? I get it. I understand it. Back then my stuttering was something I would rather not think about if I didn’t have to. So reading a blog about it wasn’t high on my priority list. But after starting this and then going to the Conference, all of that changed.

Rohan’s message permeated through the conference. I could see it everywhere. When I went to the bilingual workshop, for instance. What was my excuse for not trying to speak another language? Why not just do it? What was my excuse for not going up to a group of people? What’s the worst that could happen? What was my excuse for not wanting to promote my blog a lot more? If you’re going to do all this work, then tell everybody — the reaction is probably going to be much better than you think.

Do I still make excuses when it comes to my stuttering? Well, as I’ve said before, I’m not perfect. So yes, I do still make excuses.

But do I make as many?

No.

Stuttering Research

So the first workshop after lunch at the NSA Annual Conference on the second day was What’s Hot in Stuttering Research. Obviously this interested me because uh, well, how are we doing on a cure? No? That’s ok. I’m having a good time at the conference. We can do this again next year.

This workshop was put on by Dr. Ratner from the University of Maryland.

Instead of trying to write out exactly what Dr. Ratner talked about, I’ll just list points:

1. No cure!

2. Scientists are identifying genes that play a role

3. It’s definitely genetic. There’s not an outside influence. (so, no, I didn’t get my stutter from watching too much Porky Pig)

4. The therapist matters more than the technique

(I thought that no. 4 was interesting in light of no. 1. That is, if you’re a parent, you’re not going to get a straight-up cure for your child. But given the right therapist, you can certainly make your child more confident and comfortable with their stutter.)

I need to e-mail Dr. Ratner and get the presentation that she put on. (There was much more she said that I didn’t quite write down fast enough).

She also mentioned going to www.pubmed.gov and searching for “stutter*”. That will show the most recent papers written on stuttering. I did this a little today — you have to really look through it all carefully, though. She also said you could just e-mail the author and they would likely send you a copy of the paper if it’s not available. I will also try to do this. There are some free papers available that I did download that look very interesting.

One paper she talked about was from Dr. Change from the University of Michigan. Here is a link to the abstract. I haven’t read through the paper (note: I’m definitely not a scientist, just an engineer). But I will soon.

I would also encourage you to check out Tom’s site, the Stuttering Brain, if you find an older research paper. There’s a chance that he’s seen it already and has gone through it.

Given the research that is out there, there’s a lot more for me to look through and comment on. But I just wanted to write about the workshop itself that was very, very interesting.

Stuttering through Lunch

Back to talking about the NSA Annual Conference.

Before going to a workshop on What’s Hot in Stuttering Research, I went to … lunch.

There was a First Timer’s lunch, so I grabbed a bagged lunch and headed into the hall. Round tables. Chairs. Strangers. Flashbacks to getting seated at weddings. Having to introduce myself to strangers. Danger! I was already halfway into the room, so no turning back. Wait! You’re here to meet people! No, no! Where’s someone I know? Anybody? I looked around. I was still walking. I was being told where to sit and …

Seated.

Next to a stranger. Other strangers at the table. Someone I know seated next to me! Bonus!

(This is the kind of push-pull that I went through at the conference every day — I’m here to stutter and meet new people. But I’m also holding on to my old ways and fears.)

Alright, let’s get through the introductions. Not all the seats were filled, so that was good. Less stressful at least. The person to my immediate right was not someone who stuttered. She was a speech language pathologist. Well now, this is an interesting change of pace.

While talking to her, I was paying much more attention to my speaking and stuttering. I wasn’t stuttering as much. I wanted to “reset” things after all the stuttering I was doing over the past few hours. Need to keep moving on! Forget the stutter! I talked mostly about my stutter, growing up with it, the job I had now, how awesome the conference was going so far.

She told me about the kind of work she did in the southwest — working at a school district. One thing she said really struck me though — that they needed to do a plan for each student. And then measure progress against that plan. But then … if there’s no cure for stuttering, how could they measure progress?

I haven’t spoken to a lot of SLPs at all (remember, just coming out with all this) so I’d be very interested to hear how this works. I mean, I can see how confidence could increase, how some situations could get better (me ordering at Subway and Starbucks, for instance) but sometimes you just have a bad day, right?

I also wonder if any of this was in play when I did speech therapy during elementary school and high school. Did they figure I was getting better or figure I wasn’t having any serious school issues … so … no need for further therapy?

Stuttering satellite renewal

Ok, so please allow me to ease back into the blogging after the week off. I’ll start with a quick stuttering story that just happened. Then this week I’ll continue with workshop reviews from the NSA Annual Conference.

Here in the Kingdom, we’ve got a satellite dish. I bought the service for this dish from a small shop that someone had recommended. I went in, said I wanted the same package, and the guy came the same evening to climb up onto the roof and install everything. I paid for the receiver, installation and subscription. I get hundreds of channels, but most are in Arabic or other languages. So I’ve “favorited” it down to about 30 that we use regularly.

Anyway.

After seven months, the subscription ran out. So what to do? It’s not like I have an online account or something.

I went back to the store. They said to bring in the receiver, and they’ll update it. Easy.

I went just yesterday with the box. Eh … where’s the remote? It’s at home. Well, we need the remote to program it.

Oh, right.

He suggested that I pay, he give me the code, then I call him once I got home. Then he could talk me through it.

I didn’t think much of the stuttering aspect at this point. I just wanted my channels back! (The Vuelta is starting soon, you know).

I got home and called. He then asked me what I saw when I hit Menu.

Ugh.

There were nine things on there to read. Over the phone. Not too bad, though. Menu, Settings, File … I was stuttering here and there, dragging out the words. Now, this guy isn’t a native English speaker, the cell phone connection might not have been the best, and he’s trying to figure out what I’m saying and what he can remember. He asks me to hit OK on one of them. Now what do I see? More reading! Aaack. More pushing the words out as hard as I can. By this time my kids were asleep, but my wife was sitting on the couch checking e-mail. I know she wasn’t judging me, but this was still annoying.

The guy couldn’t quite figure it out because “the software is new.” So … can I come in the next day and bring the remote? Sure. I did that today, and we’re back watching the dish.

In some ways being in Saudi is a little easier — I mean, at home, this would have been a “customer service” call maybe, and I’d have been moved around as people struggled to understand. At least here I can just take it into a store and sort it out quickly.