– Hello. I stutter.

Authenticity in Stuttering

August 19, 2014 by Rehan Nasir

Onto the penultimate workshop from the NSA Annual Conference.

I attended Authenticity: Stuttering’s Greatest Gift.

What I got from this workshop was that we need to stay true to ourselves even if that means stuttering and not being as covert as we would like. If we’re covert, if we’re hiding, if we’re avoiding, then that’s not really who we are. We aren’t saying what we want to say. We’re not engaging with who we want to talk to. We’re not standing up for ourselves in our times of need.

Obviously being 100% authentic as someone who is covert and who wants to be overt isn’t going to happen overnight. They talked about weighing the costs of being authentic. How important is this issue that you need to speak and struggle?

Emma made a comment to the group that I thought was very interesting, and I’ll use my own name — “Rehan who stutters is not the same as Rehan who has a stutter.”

My understanding of this point (and what they said at the workshop) is like this — we attach a lot of labels to ourselves: Engineer, father, husband, American, photographer, etc., But we also add “stutterer.” And what happens is that instead of seeing all of those labels and those traits, we only shine the light on the stuttering. But it should be only a part of who we are. What I started thinking is that as someone who stutters, other people are only ever shining the light on the stuttering. And that bothers me.

But it turns out that no, I’m the one shining that light on my own stuttering. It’s me who has issues with stuttering, not anybody else. They have their own problems!

It almost seems like the stuttering permeates every other trait. I want to be a better photographer, but I’m afraid to engage with experienced photographers to get better. I am a father, but I change words when talking to my kids. I am a husband, but I don’t always communicate clearly and concisely with my wife.

The key I think is to isolate the stuttering and kick it out of everything else. Deal with it on its own. But obviously that’s pretty tough to do.

Filed Under: NSA Conference, Uncategorized Tagged With: authenticity, confidence, fears, nsa conference, stammer, stammering, stutter, stuttering

Online Stuttering Workshop

August 18, 2014 by Rehan Nasir

Next workshop that I attended at the NSA Annual Conference was a panel discussion — on online communities. And I was a panelist …

Katie Gore, MA, CCC-SLP, put the panel together. The point was to talk about what types of online stuttering communities there are, how they came to be, what their purpose is, and how they carry out their mission. There were very diverse representatives — a stuttering blog/podcast, a video blog, a podcast, a Google Hangout, and me with my blog.

Katie actually approached me through Reddit. She is active on there, and the stuttering discussion is growing.

She’s got a practice in Chicago:

Speech IRL was founded in the spring of 2013. I had spent the past few years working individually with adult clients, and realized that students and professionals have communication demands that go far beyond the usual scenarios targeted in a traditional speech therapy clinic setting. At the same time, I realized that most of the practices in Chicago were structured around a pediatric or hospital-associated rehabilitative model. My goal in forming speech IRL was to create a practice that could provide flexible, intensive speech therapy that simulates real-life challenges as much as possible. This allows us to do whatever it takes to achieve your goals– the city of Chicago is our clinic!

Daniele Rossi & Samuel Dunsiger were on the panel to talk about Stutter Social, which is a Google Hangout for people who stutter to meet up online and talk.

What is Stutter Social?

Stutter Social is an organization that connects people who stutter (PWS) through Google+ Hangouts. Participating in a Hangout is a fun, free, and safe way to connect with other PWS. Discussion often revolves around stuttering-related issues, but sometimes we just chat about our day or a good movie. We are a very welcoming and friendly bunch so don’t be shy and come join us whenever is convenient for you. We have a Hangout Calendar that lists all the different Hangouts occurring each week.

I also had a chance to buy Daniele’s book. I read through it almost non-stop when I got back to Saudi. I’ll post a review in a few days.

Daniele also talked about his podcast.

And you can participate:

Record an mp3 of yourself speaking and e-mail it to me. Talk about whatever you like! Your positive and negative experiences with stuttering, any tips you have, how your day went, what you day job is, your favourite colour, whatever you like. Send me your audio as often as you wish. You can even sing if you want to. You don’t even have to reveal you’re name. Then I’ll play your submitted audio on my podcast.

Pamela A. Mertz was also on the panel from Make Room for the Stuttering. Not only does she have a long-running blog, but also a long-running podcast, the Women Who Stutter Podcast:

Make Room For The Stuttering was created by me, Pamela A Mertz (initials: pam) after realizing that I have a story to tell. I was a covert stutterer for many years, and was afraid to stutter publicly. Life circumstances and maturity have helped me realize that I wasted a lot of time, and that I much prefer the authentic me. My defining moment was getting fired from a job that I loved and had held for more than 20 years, because I had stuttered publicly.

The final person on the panel was Jacquelyn Revere, who’s been blogging and video blogging about stuttering. Jacquelyn is very active on twitter and has a youtube channel as well.

As I’ve said before, I’m blown away by people who stutter who just put themselves out there. I do it, sure, but on my own terms and certainly not on video. But … it’s something I need to work up to. Maybe a podcast episode first …

I need to update the links and resources on this site based on the above. I’ve noticed there are a lot of people active on Twitter with great links and resources. Most of the Sunday link roundup information comes from Twitter. Speaking of which … I think I may move that to Friday once and for all.

So how did I do talking about this blog? Well, like I said before the conference, I was going to wing it instead of preparing a bunch of talking points. Not exactly wing it, I suppose. I thought about some main points pretty thoroughly before the panel as well as while sitting up there nervously. I really thought that I would be confident with this — it’s my own blog, I know why I want to do it, I had been stuttering and talking a bunch at the conference a lot already. Maybe this could be a nice smooth delivery?

Not so much. I stutter, so I stuttered. But anyway, I got my point across — that another voice in the stuttering blogosphere is good for everybody — and that’s what’s important.

Filed Under: NSA Conference, Uncategorized Tagged With: fears, introductions, nsa conference, public speaking, stammer, stammering, stutter, stuttering

Stuttering Speed Talking

August 13, 2014 by Rehan Nasir

The next workshop I went to after lunch on the third day was Speed Talking. The premise was like open mic, but everybody was guaranteed to get involved. Two rows of chairs were set up facing each other. One row would stay in place, and the other would move to the next seat every 3 minutes. Like speed dating, but with stuttering. The idea was just to … talk.

Since one of my personal themes was “talk as much as you can” during the conference, I was interested to see how this would go. There were about 40 people total, so it would take up about an hour.

There are a lot of interesting dynamics when it comes to speed talking as someone who stutters. Here are my observations:

1. We had to introduce ourselves. For me this meant stuttering out my name. I was doing horribly at this, so about 30-45 seconds (or so it seemed to me) was chewed up by this. Any negative reactions by the person who I was talking to? Of course not! Stutter on!
2. Anything you want to try to ask starts with a “w.” Where are you from? What do you do? When did you start going to these conferences?
3. I decided not to substitute or avoid any words. Which made me stutter more.
4. I wanted to talk, I wanted to meet people! So I was pushing out questions really hard and interested in keeping conversations going.
5. Just like with any meeting of strangers, some people were better at making random small talk than others.
6. I was using some “canned” material, so I didn’t stutter as much on that. But I did get some random questions which took a while to answer.
7. As for “small talk” overall, it’s been a while since I’ve had to do it — not a lot of meeting new people here. So at times it was difficult to articulate what I was doing for a living and where I lived and the whole situation.
8. Maybe I should have talked to each person about the blog, but for whatever reason I didn’t. I don’t know — it didn’t seem like the right venue.
9. Three minutes goes by pretty quick when you’re stuttering (although it seems like forever at the time)
10. There were a lot of people talking in close proximity. So I had to raise my voice quite a bit and really focus on speaking. It was sort of like being at a noisy bar, really.
11. I did talk to some really interesting people, but I was lousy about following up with anybody after the workshop. I mean, I didn’t do any follow up. Need to do a lot better on that next year in Chicago.

So all in all, it was another great chance to … talk. And introduce myself. And stutter. A lot. And be put on the spot. And not to be judged. So that was awesome.

But it was absolutely exhausting.

Filed Under: Uncategorized Tagged With: nsa conference, speed talking, stammer, stammering, stutter, stuttering

Covert stuttering workshop

August 12, 2014 by Rehan Nasir

Covert stuttering exposed! Second workshop, third day. I wrote my thoughts on covert stuttering before.

This particular workshop was a panel of people who were formerly covert. They basically stood up and told their stories. Which were … amazingly like mine. They talked about avoiding situations, substituting words, not participating in activities, the whole bit. Indeed, I was not alone in my stuttering silo!

Just as in previous workshops, I was amazed at how these people just got up in front of a large group and stuttered away, not bothered at all.

They mentioned that there’s not a lot of research out there on covert stuttering. Well … of course. We don’t like to talk. About anything. Or want to associate ourselves with stuttering. So while I didn’t seek out research studies on this kind of stuff, I probably would have considered answering some questions if I ran into a study — say at my doctor’s office or something. But that rarely happens.

Also, there are varying degrees of success when it comes to covert stuttering. I thought this was interesting because it really sums up my life a lot. I have basically a “positive feedback loop” on being covert. What I was doing — avoiding, being silent, etc., was working. My life wasn’t getting any worse, and career-wise, things were continuing to improve. So there wasn’t any motivation in not being covert.

And what is it about being covert that’s so necessary? Well, aside from the usual shame/fear bit, it’s that society really places an emphasis on fluency. Like, perfection. Turn on the tv. Watch any show. Any of them. Nobody stutters. Ever. They’re all reading their lines perfectly. Even on the nightly news if they’re talking to a correspondant and not using the prompter, their words are succint and perfect. Radio personalities are perfect. Books on tape are perfect. Youtube video presenters are perfect. So where does this leave me? Well, I want to be perfect. If I can’t, then well, I’m just not going to open my mouth.

Filed Under: Uncategorized Tagged With: covert, fears, stammer, stammering, stutter, stuttering

Avoid avoiding

August 11, 2014 by Rehan Nasir

Back to talking about the NSA Annual Conference.

I’m only up to Day 3 — July Fourth from our nation’s capital.

The day started off with You Make the Difference: Avoid Avoiding.

I managed to only write down a few things. The first is, “the environment of strangers has a lot of negative connotations.”

And of course this is why we avoid speaking or even trying to speak. Better to just shut it all down than to be embarassed (again). I do this kind of thing all the time. Why mingle at a wedding when I can just hang out with the few people I know at my table? Why linger at a company function after dinner when it’s just easier to eat and leave? Why try to navigate the drive through and having to speak through a speaker when I can just go inside and point to what I want?

“What have we done to avoid avoiding?”

This is about challenging ourselves to not be as covert, and to be out there with our speaking. We don’t have to be afraid all the time. Sure, sometimes we get a negative reaction, but the percetages are really, really low. It’s just that those instances really stick in our minds. We need to remember the positive and forget the negatives.

One thing she mentioned was stuttering on our voicemail message. So there, you got a call from a stranger, and they heard your stutter. They know you stutter. What are you afraid of now? That they’ll make a comment about it? Ok, so? Then what? Can you move on to talking about work or whatever? Isn’t a few seconds of discomfort better than hours or days of avoidance and having to resort to other means of communication?

(Quick aside — here in the Kingdom, I actually don’t have voicemail. Not on my cell phone, and not on my work phone. At work it just shows a log of missed calls. So if you see that someone called, then you just call back. Same for the mobile — or they could just text me. Does this mean that I may stutter on my voicemail when I get back to the States? Well … maybe.)

One note I wrote down to myself during this workshop was “Avoiding — now I have children.”

This means, quite simply, that we need to be able to speak for our children. Full stop, no excuses. You take your two-year-old to the doctor, and they’re sick, and they’ve been coughing or sneezing and whatever else, so all of that needs to be told to the doctor. What are you going to do, write it all down? Then what happens when the doctor asks you what they’ve been eating or where they’ve been playing? Didn’t think of that, did you? And you have to make sure to give exact answers. This is your kid’s health!

I think in broader terms maybe this is what’s really pushing me to lose the covert and be more overt. My kids. They can’t speak for themselves all the time. They can’t see that something’s not fair. I need to be able to stand up for them. I need to be able to ask about after-school programs, or where to get academic help, or what they’ve been up to in class when it comes to a parent-teacher conference.

As I’ve said many times before though, I’m not perfect, and I didn’t just go to the conference and come back with some sort of fearless streak. I came back with way more confidence and a different attitude, sure, but it still has to be executed on a daily basis. And some days are better than others.

Programming note … I think I may just go to a M-F publishing schedule. It seems most of the readers are visiting during the traditional work week anyway. I think I’m trying to do too much without considering the time it’s all going to take. Better to ease back a little and publish slightly less but with better quality and consistency.

Filed Under: NSA Conference, Uncategorized Tagged With: avoiding, children, covert, fears, nsa conference, phone, stammer, stammering, stutter, stuttering

Some stuttering notes

August 7, 2014 by Rehan Nasir

I’ll be out Friday and Saturday, but should be back to posting by Sunday. Here are some general notes and observations from the conference. I may have alluded to some of this before as well.

Sunday I’ll work on a link roundup — should be a pretty big one since I haven’t done one in a while. There’s a lot of good stuff that’s just been produced out there on stuttering.

1. If you’re going to go next year to Chicago, make sure to bring a hoodie or light coat. In some of the conference rooms, it was really, really cold.

1a. You know they’ve already posted the dates for Chicago? Crazy! And it looks like I may be able to do the NSA-Tour de France double again as well.

2. It was interesting being able to introduce myself (or stutter away at it, anyway) and not bail out and point to my name tag.

2a. A friend told me once to just say my name a few hundred times to get used to it. Yeah, that doesn’t help.

3. I was still having to steal a glance at other people’s nametags because as usual, I was so worried about saying my own name that I would forget theirs.

4. Nobody will finish your sentences or words for you. This was a little weird to me as well. I’m somewhat used to this happening, so maybe that’s why I don’t seem to stutter as much around the office. It’s annoying and degrading, and I’m still going to keep on stuttering through, but to be in such a friendly environment was a whole new experience.

5. After making some new friends, we’d sit around, and I’d hear my own stories come from their mouths. The same heartache on the phone, or while ordering food, or whatever.

6. I wish the conference could have been longer, but at the same time, I was pretty spent at the end of each day — thinking so much about my own stuttering as well as speaking and stuttering so much.

7. Maybe as you’re reading all this stuff about the conference, you think I’m going overboard a little. Well, mostly with stuttering everything that I remember is negative. So there is always a negative association. With all of these posts and remembering what happened, I want to focus on and emphasize the positive.

8. I was wondering why some of the workshops seemed light on attendance. Then I remembered we were in DC — and people wanted to get out and about in town. For me I was only interested in the conference and going to as many workshops as possible. I grew up only 2 hours from DC, so I’d already seen and done the touristy stuff.

Filed Under: NSA Conference, Uncategorized Tagged With: notes, nsa conference, stammer, stammering, stutter, stuttering

No excuses with Rohan Murphy

August 7, 2014 by Rehan Nasir

The last session of the second day at the NSA Annual Conference was the General Session — Opening Announcements and Rohan Murphy.

Here’s a link to more information on Rohan.

Rohan Murphy, who lost his legs at birth, started to wrestle his freshman year of high school. After a successful high school wrestling career he went on to wrestle at Penn State University. In addition to wrestling, Rohan Murphy is also an accomplished powerlifter, competing in international competitions all over the world representing the USA.

The main message that I got from listening to Rohan was “what’s your excuse?”

This really hit home for me on two main levels with regards to stuttering.

The first is that my “excuse” for not wanting to talk more and meet more people is that I stutter. I’m afraid of how they’ll react. I’m afraid of what they’ll think both short and long term. I’m afraid I’ll just look like a fool. I’m afraid that the impression that they have of me will change completely once they find out that I stutter.

That’s obviously all a bunch of crap. Do I still have some of these stuttering excuses? Yes, of course. They’re ingrained. But I am moving past them as much as I can as I get older. The NSA conference really helped. Meeting people and having them react positively has helped. Just saying what I want without a huge negative reaction or long-term consequence has helped. It’s all part of the reprogramming, so to speak.

The second is that my “excuse” for not starting this blog earlier was I didn’t know how others would react. It’s very similar to the above. I had been writing in a journal for many years about my stuttering. How it affected me, how it might affect me. I always wanted to write a book or start a site. But I kept making excuses — it’s too time consuming, what if nobody reads it, what if it doesn’t change anything, what if future employers find out.

Fortunately this year I dumped all of those excuses. The site had been brewing for way too long. It finally erupted and the lava started flowing.

It’s funny because I can see the readership numbers. They’re not that high. But then again, when I was covert for so many years, how many stuttering blogs did I read? And why didn’t I read more? I get it. I understand it. Back then my stuttering was something I would rather not think about if I didn’t have to. So reading a blog about it wasn’t high on my priority list. But after starting this and then going to the Conference, all of that changed.

Rohan’s message permeated through the conference. I could see it everywhere. When I went to the bilingual workshop, for instance. What was my excuse for not trying to speak another language? Why not just do it? What was my excuse for not going up to a group of people? What’s the worst that could happen? What was my excuse for not wanting to promote my blog a lot more? If you’re going to do all this work, then tell everybody — the reaction is probably going to be much better than you think.

Do I still make excuses when it comes to my stuttering? Well, as I’ve said before, I’m not perfect. So yes, I do still make excuses.

But do I make as many?

No.

Filed Under: NSA Conference, Uncategorized Tagged With: excuses, fears, nsa conference, rohan murphy, stammer, stammering, stutter, stuttering

Stuttering Research

August 4, 2014 by Rehan Nasir

So the first workshop after lunch at the NSA Annual Conference on the second day was What’s Hot in Stuttering Research. Obviously this interested me because uh, well, how are we doing on a cure? No? That’s ok. I’m having a good time at the conference. We can do this again next year.

This workshop was put on by Dr. Ratner from the University of Maryland.

Instead of trying to write out exactly what Dr. Ratner talked about, I’ll just list points:

1. No cure!

2. Scientists are identifying genes that play a role

3. It’s definitely genetic. There’s not an outside influence. (so, no, I didn’t get my stutter from watching too much Porky Pig)

4. The therapist matters more than the technique

(I thought that no. 4 was interesting in light of no. 1. That is, if you’re a parent, you’re not going to get a straight-up cure for your child. But given the right therapist, you can certainly make your child more confident and comfortable with their stutter.)

I need to e-mail Dr. Ratner and get the presentation that she put on. (There was much more she said that I didn’t quite write down fast enough).

She also mentioned going to www.pubmed.gov and searching for “stutter*”. That will show the most recent papers written on stuttering. I did this a little today — you have to really look through it all carefully, though. She also said you could just e-mail the author and they would likely send you a copy of the paper if it’s not available. I will also try to do this. There are some free papers available that I did download that look very interesting.

One paper she talked about was from Dr. Change from the University of Michigan. Here is a link to the abstract. I haven’t read through the paper (note: I’m definitely not a scientist, just an engineer). But I will soon.

I would also encourage you to check out Tom’s site, the Stuttering Brain, if you find an older research paper. There’s a chance that he’s seen it already and has gone through it.

Given the research that is out there, there’s a lot more for me to look through and comment on. But I just wanted to write about the workshop itself that was very, very interesting.

Filed Under: NSA Conference, Uncategorized Tagged With: nsa conference, research, speech therapy, stammer, stammering, stutter, stuttering

Stuttering through Lunch

August 3, 2014 by Rehan Nasir

Back to talking about the NSA Annual Conference.

Before going to a workshop on What’s Hot in Stuttering Research, I went to … lunch.

There was a First Timer’s lunch, so I grabbed a bagged lunch and headed into the hall. Round tables. Chairs. Strangers. Flashbacks to getting seated at weddings. Having to introduce myself to strangers. Danger! I was already halfway into the room, so no turning back. Wait! You’re here to meet people! No, no! Where’s someone I know? Anybody? I looked around. I was still walking. I was being told where to sit and …

Seated.

Next to a stranger. Other strangers at the table. Someone I know seated next to me! Bonus!

(This is the kind of push-pull that I went through at the conference every day — I’m here to stutter and meet new people. But I’m also holding on to my old ways and fears.)

Alright, let’s get through the introductions. Not all the seats were filled, so that was good. Less stressful at least. The person to my immediate right was not someone who stuttered. She was a speech language pathologist. Well now, this is an interesting change of pace.

While talking to her, I was paying much more attention to my speaking and stuttering. I wasn’t stuttering as much. I wanted to “reset” things after all the stuttering I was doing over the past few hours. Need to keep moving on! Forget the stutter! I talked mostly about my stutter, growing up with it, the job I had now, how awesome the conference was going so far.

She told me about the kind of work she did in the southwest — working at a school district. One thing she said really struck me though — that they needed to do a plan for each student. And then measure progress against that plan. But then … if there’s no cure for stuttering, how could they measure progress?

I haven’t spoken to a lot of SLPs at all (remember, just coming out with all this) so I’d be very interested to hear how this works. I mean, I can see how confidence could increase, how some situations could get better (me ordering at Subway and Starbucks, for instance) but sometimes you just have a bad day, right?

I also wonder if any of this was in play when I did speech therapy during elementary school and high school. Did they figure I was getting better or figure I wasn’t having any serious school issues … so … no need for further therapy?

Filed Under: NSA Conference, Uncategorized Tagged With: elementary, fears, high school, nsa conference, SLPs, speech therapy, stammer, stammering, strangers, stutter, stuttering

Stuttering satellite renewal

August 2, 2014 by Rehan Nasir

Ok, so please allow me to ease back into the blogging after the week off. I’ll start with a quick stuttering story that just happened. Then this week I’ll continue with workshop reviews from the NSA Annual Conference.

Here in the Kingdom, we’ve got a satellite dish. I bought the service for this dish from a small shop that someone had recommended. I went in, said I wanted the same package, and the guy came the same evening to climb up onto the roof and install everything. I paid for the receiver, installation and subscription. I get hundreds of channels, but most are in Arabic or other languages. So I’ve “favorited” it down to about 30 that we use regularly.

Anyway.

After seven months, the subscription ran out. So what to do? It’s not like I have an online account or something.

I went back to the store. They said to bring in the receiver, and they’ll update it. Easy.

I went just yesterday with the box. Eh … where’s the remote? It’s at home. Well, we need the remote to program it.

Oh, right.

He suggested that I pay, he give me the code, then I call him once I got home. Then he could talk me through it.

I didn’t think much of the stuttering aspect at this point. I just wanted my channels back! (The Vuelta is starting soon, you know).

I got home and called. He then asked me what I saw when I hit Menu.

Ugh.

There were nine things on there to read. Over the phone. Not too bad, though. Menu, Settings, File … I was stuttering here and there, dragging out the words. Now, this guy isn’t a native English speaker, the cell phone connection might not have been the best, and he’s trying to figure out what I’m saying and what he can remember. He asks me to hit OK on one of them. Now what do I see? More reading! Aaack. More pushing the words out as hard as I can. By this time my kids were asleep, but my wife was sitting on the couch checking e-mail. I know she wasn’t judging me, but this was still annoying.

The guy couldn’t quite figure it out because “the software is new.” So … can I come in the next day and bring the remote? Sure. I did that today, and we’re back watching the dish.

In some ways being in Saudi is a little easier — I mean, at home, this would have been a “customer service” call maybe, and I’d have been moved around as people struggled to understand. At least here I can just take it into a store and sort it out quickly.

Filed Under: Uncategorized Tagged With: customer service, phone, stammer, stammering, stutter, stuttering

Stuttering away for a week

July 25, 2014 by Rehan Nasir

Alright, so the family and I will be off to Dubai for a week of vacation. The Eid holidays are happening here in Saudi (end of Ramadan) so we get a few days off. There’s a lot more for the kids to do in Dubai than here, so we figured why not.

I will certainly try to post this week if/when I can, but otherwise will be trying to speak and say whatever I want instead of whatever I can.

I’m still working on going through each of the workshops that I attended at the annual NSA conference, so there’s a lot more goodness there. Plus my French-speaking adventures in France chasing the Tour for two days and then meeting with Tom Weidig from The Stuttering Brain.

There’s also a steady stream of stuttering posts and information showing up on Twitter these days, so plenty of chances for commentary there as well.

As always, feel free to rifle through the archives and shoot me an e-mail or post a comment!

Filed Under: Uncategorized Tagged With: news, stammer, stammering, stutter, stuttering, vacation

Stuttering at the open mic

July 23, 2014 by Rehan Nasir

The second workshop on the second day was Open Mic.

It’s a simple premise, really. There’s the microphone, a room full of conference-goers, and that’s it. So you suck it up, take the mic, and start talking. To a bunch of strangers. About whatever you want.

Deep breath. I’m doing this, I’m doing this, I’m doing this.

I walked in there with someone who I met the first day. After the host explained the deal, my friend stood up and took the mic. Just like that. He didn’t even think about it, he just did it. Again, seriously? This is how people are rolling here?

After he was done, another hand went up, another person got up to speak. Everybody stuttered. Everybody in the audience listened attentively. I sat there in awe. Yes, I had just been to a few workshops where people made comments and stuttered. Or the presenters stuttered. But here are a bunch of people just getting up and putting themselves out there. Strangers to strangers.

About half an hour in, I looked around the room and started doing the math. There were way more people in here than time allowed. There was another open mic event later in the conference, though. I started making excuses in my head. The covert in me made an appearance and started making really persuasive suggestions.

No.

I came here to listen, yes, but I also came here to talk.

I put my hand up after someone finished. Don’t think about it. Just stand up and get up there. Start talking. Stop thinking so much.

I had been doing some thinking while in my seat. What would I say? I would talk about how I told my friends I would be attending a stuttering conference. And how all of them said the same thing — that they knew I stuttered, but it didn’t seem like a big deal to them (or me). But of course it was.

So I got up there. And tried to introduce myself. And stuttered. And then I started in on this little reflection. And stuttered some more. And more. But again, nobody reacted negatively. They just sat there and listened. I kept things short, and then sat back down. That was it. I felt good. I had faced the stuttering head on, and it didn’t do anything to me. I lived through it.

What was becoming a little alarming to me was how badly I was stuttering during the conference. This public speaking attempt really highlighted it. But then I thought, well, I’m definitely out of my comfort zone, I didn’t prepare anything, and I barely do any public speaking to strangers anyway. And oh yeah, you do stutter, and that’s not going to just go away because you think it should.

All in all it ended up being a pretty taxing speaking morning. First making a comment at the bilingual workshop and now this. Between all the introductions from the day before, I had spoken more to a room full of strangers in the past two days than in the past year.

And through it all, nothing negative was happening.

Filed Under: Uncategorized Tagged With: class participation, confidence, fears, nsa conference, public speaking, stammer, stammering, strangers, stutter, stuttering

Bilingual Stuttering Workshop

July 23, 2014 by Rehan Nasir

The first workshop that I attended on Day 2 of the NSA Annual Stuttering Conference was Bilingual Stuttering.

Again, I didn’t really know what to expect, and again, I was really impressed with the discussion and comments people made.

For me, I grew up in a bilingual household — my parents spoke Urdu as well as English. But I only picked up on the Urdu as far as some understanding. I rarely, if ever, spoke Urdu growing up. This was because others would usually laugh at what I was trying to say. So coupled with my self conciousness as someone who stutters, it was a receipe for never bothering to learn. And what was the point? Everything in the States is in English anyway.

In junior high and high school I took French. Again, I did pretty good “on paper” but rarely spoke because I was self-concious about how I sounded.

And now, here in Saudi, I’m surrounded by Arabic-speakers. I can read Arabic, but can’t speak or understand it.

So what did I take away from this workshop? The first thing that blew me away was that one of the presenters (a native English speaker who stutters) speaks a foreign language. At work. As part of her job. So, in front of clients, on the phone, the whole thing. I sat there in awe. Seriously? And here I am, afraid of practicing a few Arabic words at the office with friendly company?

Some said they stuttered while speaking another language, others said they didn’t. Some stuttered more because they couldn’t be covert — they couldn’t use another word to substitute because well, they didn’t know many vocab words.

I was sitting there getting a little nervous, though. I had a comment! And damned if I was going to come all this way and not say what I wanted to say. I was remembering the goals that I had set before the conference. Ok! So here we go.

Sutter, stutter, stutter, point sort of being made, stutter a lot more, nobody’s laughing, stutter, stutter, everybody’s just patiently waiting, stutter, stutter, make comment, ok, done.

Alrighty then.

What I managed to say is that I am afraid to speak in a foreign language because I know it won’t be perfect. And I want it to be perfect. I don’t want the listener to grab onto how I’m saying something instead of what the message is. This of course is a direct tie with stuttering — the person who stutters is afraid of how the message is perceived instead of what the message is actually saying.

I said that I needed to be more rational about this — it didn’t have to be perfect. Case in point, I’ve got a bunch of non-native English speaking engineers who report to me. Their English isn’t perfect. But they carry on anyway, not really caring. And I don’t care about how they’ve said something — and I can usually decipher the message.

Another important point they made is that we deserve to speak a foreign language. We don’t have to let our stutter get in the way of that, either.

Yes. I do deserve to speak the French that I learned. And Urdu. And Arabic. Need to get that into my head.

Another workshop done and another really great perspective on something that I had thought wasn’t going to change. I got a lot of encouragement and inspiration from those around me who were stuttering but still speaking foreign languages without any hangups.

This definitely had an impact on the trip to France that I took a few days after my Stateside vacation. But we’ll get to that in a few days.

Filed Under: NSA Conference, Uncategorized Tagged With: confidence, fears, nsa conference, public speaking, stammer, stammering, stutter, stuttering

First day wrap-up and some goals

July 20, 2014 by Rehan Nasir

I’ve been summarizing my time at the NSA Conference that took place over the July Fourth weekend in DC.

Here are links to the three workshops that I attended on the first day at the Annual NSA Conference:

https://helloistutter.com/2014/07/14/first-timers-workshop/

https://helloistutter.com/2014/07/15/stuttering-your-way-to-financial-ruin-and-social-ridicule/

https://helloistutter.com/2014/07/17/this-is-stuttering/

And these are the things I said I’d do at the conference. Let’s see how I did on them:

1. Go up to some hotel staff member and ask them where the bathroom/conference room/gym/elevators are, even if I already know. They’ll probably be hearing a lot of stuttering, so hey, might as well get my own practice in.

Well, I did ask someone where the ATM is. He led me right to it. Of course it was just a few steps away. I hadn’t noticed it there. I didn’t stutter when I asked him.

2. Go up to small groups of people and barge on in. Why not, right?

This is pretty much what the First Timer’s Workshop was all about. I also ended up approaching groups that had one person who I knew in them. Then introduced myself to the others.

3. Call down to the front desk, tell them my name, room number and then ask what time checkout is. And maybe if I’m feeling up for it, what the hours are for the gym.

This didn’t happen. The old covert me hung on to something.

4. Introduce myself to as many strangers as possible.

I probably could have introduced myself to more people, but really, as my first conference, I was really pleased with how many people I did meet.

5. I got invited to a panel discussion on online stuttering communities. So, no prepared talking points. No rehearsing what I want to say.

Well, I did sit up there somewhat nervously while the others were talking, trying to figure out what I wanted to say. And in my mind, it was all going to go very, very smoothly. I was rehearsing! In my head! Yeah, not so much. I stuttered. A lot. But hey, that’s alright. I got the message across about the site and what it’s all about. So a win there.

6. Ask any questions or make any comments during seminars that I might have. Right then and there. Not after the seminar or after a few days when I see the host again. Don’t rely on e-mail.

Yes, I did do this. On the first day I didn’t have any comments or questions because my head was still reeling from the speakers who were stuttering (or not) and how friendly/easy everything was. But it was in the back of my mind for the rest of the conference, and I’ll talk about that later.

7. Above all else — listen. To the new people who I meet, and to the speakers at the conference. I’ve lived in a silo regarding my stuttering since I was 7, so it’s time to get some perspective on it.

Yes, definitely. It was great talking to people, laughing with them, hearing them share similar experiences (especially with the phone). It’s been a while since I’ve laughed that hard, and it felt great. Definitely the right place for me.

Filed Under: NSA Conference, Uncategorized Tagged With: links, nsa, nsa conference, stammer, stammering, stutter, stuttering

This Is Stuttering

July 17, 2014 by Rehan Nasir

The third workshop that I went to was a movie, thisisstuttering.

It was made by Morgan Lott.

Now, remembering that I’m a covert stutterer who doesn’t like to talk about stuttering, I had never seen his movie. Or even heard of it. I only found out about it while reading the description in the NSA program.

So I didn’t know what to expect.

I hadn’t even read this which is on his site:

Morgan is a filmmaker from Simi Valley, CA. During the summer of 2012, he began another round of speech therapy with a new speech therapist, Mrs. Alyssa Lukiewski. Upon her asking Morgan to film all of the sessions and weekly vlogs, simply for her own usage in studying her client, Morgan realized he was filming a fascinating documentary on accident. thisisstuttering has already drastically changed his life and he hopes the story will encourage and motivate others not only with stutters, but in any difficulty life decides to through our way.

This isn’t going to be a review of the movie. It’s more of my feelings during the viewing. That being said, the movie is basically about Morgan and some “confessionals” during his time in speech therapy. There are also numerous shots of him stuttering — out in public, on the phone, etc.,

My thoughts? Wow. Just, holy crap. He is out there, he is on video, and it’s forever! I really, really hate hearing myself on tape (or mp3, I guess) and seeing myself on video. (That’s why I haven’t done a YouTube channel or Podcast) I’ll leave the room if a video of me comes on (even if I’m not stuttering in it). When I’m making videos of the kids, I don’t even like to talk. If I do, it’s slow and very deliberate. And I make sure I won’t stutter. If I stutter badly enough. I’ll delete the video. That’s right. My stuttering supersedes childhood memories that will never happen again. That being said, I’m getting better — if it’s a little stutter, I’ll let it go. I suppose my kids may appreciate a nasty stutter when they’re older though. That’s how dad is.

Back to Morgan’s movie.

I’m watching this movie, and all I can think of is, well, that’s my life right there. He’s on the phone, stuttering to say a word. He hangs up, turns to the camera and says the word without stuttering at all. Over and over again. And just shakes his head about it.

What was amazing is hearing what he said about the movie afterward. Particularly that these snippets were all never to be seen by anybody else. And yet he had the strength to put them together into a really powerful movie. He also talked about how vulnerable he’s felt since making the movie and being out there. That’s an insane amount of courage. I mean, I’m only writing a little blog — put to make a movie and put it forth for festival consideration — chapeau.

(When Morgan stood in front of us after the movie was over to talk, I had the same thoughts that I did about the previous presenter — he’s hardly stuttering! But then he talked about how he’s been doing these presentations for a few months now. So again, confident and familiar.)

For someone who stutters, there’s nothing new or earth-shattering here regarding treatment or putting yourself out there. But I think if you’re fluent and want to know what stuttering is like, this is a perfect place to start. If you don’t stutter but know someone who does, you might hear a few minutes of their stutter here and there. Maybe every day, maybe only once or twice a week. And not think it’s a big deal. (And if your stuttering friend is trying to be covert, they’ll likely stutter even less). But thisisstuttering strings it all together and shows just how emotionally taxing stuttering is.

Filed Under: Uncategorized Tagged With: confidence, morgan lott, nsa conference, stammer, stammering, stutter, stuttering, thisisstuttering

Stuttering your way to financial ruin and social ridicule

July 15, 2014 by Rehan Nasir

The second workshop that I attended had the subject title and was done by Steve Brown.

For the record, here are all of the descriptions for these workshops — so you can read the description on there of who Steve is and what this was going to be all about.

Alright, so I had just come from the First Timer’s Workshop and was feeling good. I was feeling good about jumping into the deep end and actually going to this conference. But I was mentally taxed a good bit already — I usually have to stutter our my name once a month (or even less) — and I had just done a year’s worth of really rough introductions in less than an hour. Thankfully everybody had name tags, so even if I forgot someone’s name, they happily pointed to it. They also had our hometown on there. Mine was listed as Lancaster. That’s true, but I’m living in Saudi now … I can’t remember if the registration form had that space on there or if they just used the billing address for our credit card. Anyway, at first during the first timer’s I wasn’t saying much about my hometown. But by the end of the conference, people were pretty surprised that I was living and working in Saudi.

I walked from the first workshop to the second — and had to go past hundreds of other conference-goers to do so. Should I have been jumping in again and introducing myself? Yeah, probably. But the old me was still leading the charge. You’ve just stuttered your head off! Look at these people! You stutter still! Avoid at all costs! Go put on more deodorant, too!

Ok, ok. Fine, but we’re going to meet some new people eventually, dammit.

I went into the next workshop room and assessed the situation. Smaller room. The speaker would be standing up front, so he might call on me if I sat in front. Unacceptable. But I can’t sit in the back! No! I didn’t come all the way here to hide in the back. I’ll sit in the middle. Should I slide in next to someone who I know? I don’t know anybody. What about a stranger? I could meet someone here, right? You will! No, let’s just sit down and see what this is all about.

Let me just summarize what Steve ended up talking about — his stutter, how he overcame it through really hard work, and how some of those techniques to avoid and use other ways to communicate made him stand out from his peers. He also talked about the importance of body language and setting ourselves up for success before our mouths are even open — don’t slouch! He told us to focus on the message, not the stutter.

Body language is something I really need to read up on. I find myself slouching or tightening up my shoulders all the time. I’ve been trying to practice more eye contact as well.

I liked Steve’s talk. It was funny, it was upbeat, and I could definitely relate.

But as a first timer, there was something off (for me). Something didn’t add up.

I mean, I’m sitting there, someone who stutters, and this guy says he does too. Yet he’s fluently telling us about his past and present. He’s easily walking back and forth on stage, making eye contact, telling jokes, waving his hands here and there.

But then that was the point.

I started thinking about it more — he’s done this before. He’s told these stories before. He’s confident with his material and being in front of people. That was inspirational for me. That could be me. I want to be up there telling my story some day.

So what did I take away from this? Well, that your stuttering really doesn’t have to stop you from your goals. That you can either stutter openly and fight through it, use alternate communication methods or a combination of the two.

(Also, looking back on it, I should have taken more detailed notes — but hey, I’m learning for next year.)

Just for reference, on the first day of the Conference there were 17 workshops across three timeslots. This is a lot of the reason why I want to go next year (and forever after) — I saw a bunch of stuff on the program that looked/sounded interesting that I wasn’t able to attend.

Filed Under: Uncategorized Tagged With: confidence, fears, nsa, nsa conference, public speaking, stammer, stammering, strangers, stutter, stuttering

First Timer’s Workshop

July 14, 2014 by Rehan Nasir

Alright, so I’m finally back home after the visit Stateside and French-countryside. I was trying to think about how to recap all of this, and I think I’ll just do it in chronological order. So, the first workshop that I attended was the First Timer’s workshop.

Just to set the scene — there’s me, the covert stutterer who doesn’t like meeting people (well, having to introduce myself at least). I don’t like conferences because I had what was probably my most embarrassing moment at one (so those chairs, lighting, carpet, large numbers of people sort of make me nervous) and I was still thinking I could just walk out on the whole deal.

Anyway, I slowly made my way into the conference room, and there weren’t a lot of people there. I saw a younger guy sitting down near the door, so I went right up to him (into the deep end!). I said hello, and he introduced himself.

He stuttered.

Since leaving high school, I have never talked to anybody in person who stuttered. Never even met anybody else who stuttered. 17 years.

Alright, so now it’s my turn. I stutter out my own introduction. I then sit down next to this guy, Mark, and we talk. We’re both stuttering. So this is what I sound like to others.

After a few minutes, more people walk in. They fill in the seats. Then I see Pam from Stuttering Rockstar and a few others get up in front of us. Pam talk to us. The others also speak. They’re all stuttering. They don’t seem to mind at all.

They tell us that the point is not for them to talk to us — we’re all here to talk to each other!

Do what now?

Maybe we could go up in front and have them read our name to the crowd? Then I don’t have to? Maybe?

No.

Ok, now they’re done talking, and we’re all standing up, and I’m looking around nervously.

I flew all the way from Saudi for this so … I’m stuttering and introducing myself. I’m forcing myself to make some small talk. I’m trying to remember who I meet. I’m looking and staring at name tags after they introduce themselves.

I’m not going to lie — I’m targeting people who seem to be about my age. I’m interested in talking to them after this and over the next few days. Also, I’m trying to figure out how long to talk to people. I try to make some small talk and then break away to search for others. Oh, social situations. Should I just bust into a group and introduce myself? Look for others who are wandering like me? I slowly move about, bumping into people, introducing myself, saying hello, exchanging where we’re from and what we do.

I’m stuttering a lot, and it’s bothering me somewhat. I know I don’t stutter all that much, but that might be because I’m so comfortable with my current batch of friends/colleagues. But here at the conference I’m really struggling. Maybe it’s because I’m not used to making this kind of small talk? It’s been a while since I’ve answered these kinds of questions. On the one hand, I want to talk and practice, but on the other, I want to listen and find out where other people are from.

Before I know it, this very first workshop is over. What? Already? There are so many people here who I haven’t met!

I really wished it had gone on for maybe another half hour or even hour.

Now that that was done, I was feeling a little better. The uncertainty was gone. I belonged here, and these are my people! I was excited for what the remainder of the conference. And it was easy to meet people. Everybody was patient. Everybody was welcoming.

Filed Under: Uncategorized Tagged With: fears, nsa, nsa conference, stammer, stammering, strangers, stutter, stuttering

Stuttering through Europe

July 12, 2014 by Rehan Nasir

Quick update from here in Luxembourg. I’ve spend the last day and a half in France chasing the Tour de France and in Luxembourg meeting Tom from The Stuttering Brain.

Obviously there are plenty of stories to tell including how I successfully (and without too much hesitation) busted out the high school French to ask a police officer what time the peloton was going to come by.

I’m flying back to Saudi on Saturday night, so by Sunday night or Monday I should be back to normal and posting on a daily basis again.

Tom especially brought up some very interesting points that I’ve got to consider and will share soon.

All in all, it’s been a great stuttering holiday as well as a chance to see Le Tour in person for the first time ever.

Filed Under: Uncategorized Tagged With: stammer, stammering, stutter, stuttering, stutteringbrain

When are these stuttering conferences?

July 9, 2014 by Rehan Nasir

Obviously last week was the 31st Annual National Stuttering Association conference. And you know what I thought about it — and will keep on thinking about it. But what about everybody who couldn’t make it? What other options are there to meet other people who stutter and talk about stuttering for a few days? (and of course, be able to stutter all day and all night without any inhibition).

Well during the conference, the NSA mentioned they’d do an “annual conference lite” in early October. Now that information is available on their site.

And of course the NSA lists a bunch of Family Fun Days on their Calendar page.

And what else is there? Why, plenty of course. Also at the NSA Conference, I learned about TISA – The Indian Stammering Association. They are planning their annual conference in early October as well.

The British Stammering Association has their annual conference coming up — it’s in Glasgow. I think next year I may try the NSA-BSA double.

I don’t see anything on the Canadian Stuttering Association’s page, but they have posted about a new meet up group for those who stutter. Looks like it’s just started.

The American Institute for Stuttering has an annual gala. A summary of 2014’s event can be found here.

Looks like the Irish Stammering Association doesn’t have an annual conference, but they have got a summer camp for teens.

On a somewhat related note, ASHA (American Speech-Lanugage-Hearing Association) also has an annual convention. I suppose if you stuttered, you could go crash it …

For Australia, I was able to find something that might help from the Speak Easy Association.

Lastly, I don’t know anything about the International Fluency Association, but they’ve got an event coming up in 2015.

Filed Under: NSA Conference, Uncategorized

Link Roundup – Last fortnight or so

July 9, 2014 by Rehan Nasir

Alright, so now a more traditional link roundup.

We’ll start with Pam at Make Room for the Stuttering. She’s put together some nice thoughts on the NSA Conference.

Also, I met Sam at NSA, and he’s posted his highlights from the conference.

He says:

I led a workshop on the struggles PWS often face on the phone and how we can master it instead of avoid it. After the workshop, a woman in the audience even approached me to tell me I inspired her to overcome her fear of the phone. I was so happy to help!

There were so many great workshops at the conference — I was sad that I had to miss some. Then again, that’s just motivation to go next year — fill in the gaps. And continue meeting amazing people.

The nice folks at Stutter Talk posted several talks during the conference. I should have hunted them down …

I know this is from early June, but I’m finding out about it now. It’s a review of ‘Out With It,’ by Katherine Preston on the Canadian Stuttering Association’s page.

The convoluted interaction between stutterer and unsuspecting listener is depicted, with neither knowing quite how to react, the results varying from traumatic to humourous. She employs various tricks to bypass her stuttering, such as avoidance, developing a huge vocabulary to navigate around difficult words, and choosing a small circle of empathetic friends.

Not sure about the circle of empathetic friends — I think since I never talked to my friends about it, I’ll never know, but everything else is pretty much spot on with regards to how I dealt with my stutter.

And something that’s awesome and horrible at the same time — McDonald’s is testing a new ordering app for your phone.

I say it’s awesome because obviously it saves me the trouble of stuttering out my order — and any changes I want to it — but it’s horrible because, well, I shouldn’t be afraid of stuttering in front of others. On the other hand, I’m not sure what the big deal about this is — at Wawa here in PA they have wonderful touch-screen ordering machines. You can build whatever kind of sandwich you want — and never have to talk to anybody! They’ve been around for years as well. Obviously as a former covert stutterer, the Wawa experience was absolutely magnificent.

Filed Under: Link Roundup, NSA Conference, Uncategorized Tagged With: links, nsa conference, stammer, stammering, stutter, stuttering

Link Roundup – Who I Met

July 9, 2014 by Rehan Nasir

Alright, I’m going to do two days of link round up goodness. Today will be a look at the people who I met at the NSA conference. I’ll have to update my Resources pages as well …

Tomorrow I’m flying out from the States to France for 3 days. Going to chase the Tour and meet up with Tom from The Stuttering Brain over in Luxembourg. It’s turning out to be quite the stuttering vacation. I will certainly try to set up some entries to post during my European adventures.

Ok, so first up is Pam from Make Room for the Stuttering. She spoke at the First Timer’s workshop, and I talked to her a little bit there and during the conference. She also spoke at the online panel discussion listed below.

What really got me right off the bat at the conference was that the people doing the workshops mostly stuttered. They were just up there, saying their piece, stuttering, smiling, and carrying on like it’s another normal day at the office.

Here’s a look at some of the leadership who were at the conference.

On I think what was the second day, I met Ben North at the Starbucks in the hotel lobby. He was standing in front of me. The person behind me asked what this conference was all about, and Ben replied. I thought, well, here we go, I’m here to meet people, so let’s keep meeting people. My usual state of sweating and being nervous surfaced, but Ben responded as everybody else did at the conference — with patience and understanding.

I was on a panel discussion hosted by Katie Gore regarding online communities for stuttering. Katie reached out to me through reddit. There’s a few people on reddit who discuss stuttering on a regular basis. Jump over there and join their discussion.

On that panel were:

Daniel Rossi, who wrote a book on stuttering. I bought the book and will start reading and reviewing it soon. He and Sam (below) work on Stutter Social.

Jacquelyn Revere. She’s started a vlog on stuttering.

Samuel was also on the panel. He talked about Stutter Social:

Stutter Social is an organization that connects people who stutter (PWS) through Google+ Hangouts. Participating in a Hangout is a fun, free, and safe way to connect with other PWS. Discussion often revolves around stuttering-related issues, but sometimes we just chat about our day or a good movie. We are a very welcoming and friendly bunch so don’t be shy and come join us whenever is convenient for you.

Not on that panel, but during the conference, I met Dhruv from the Indian Stammering Association. He’s working on setting up an annual conference for the Indian Stammering Association this October. Unfortunately I won’t be able to attend, but will find ways to help them out anyway.

I got to watch a movie about stuttering — not the King’s Speech, mind you. And no, I still haven’t seen that yet, either. Maybe I’ll finally watch it on the plane ride back to the Kingdom.

This Is Stuttering was shown during the conference. Watching Morgan stutter while talking on the phone during the film was just like watching myself. Morgan was also at the conference to talk about the movie and what has happened since releasing it to the public. If your friends don’t know what stuttering is like on a daily basis, by all means, send them the link.

Lastly, some people had mentioned going through therapy with the American Institute for Stuttering. I’m not going to pick one organization over another. I just happened to go to an NSA conference. My opinion is that the larger organizations are all there to help those of us who stutter, our parents, and children and teenagers.

So tomorrow will be a more traditional link roundup with stories from this past week and a half. If you’ve got any stories to share, do pass them along!

Filed Under: Link Roundup, NSA Conference, Uncategorized Tagged With: confidence, Indian Stammering Association, links, nsa, nsa conference, stammer, stammering, stutter, stuttering

Excuses, excuses

July 8, 2014 by Rehan Nasir

Clearly I missed the Sunday link roundup, but I have four somewhat-legitimate excuses:

1. I’m on vacation … so I am constantly losing track of what day of the week it is. No, really.

2. I went to the NSA Conference (see above) and well, the losing-track was in full effect. I often didn’t know what time it was — no windows + not a lot of clocks = casino-like state.

3. Because of the conference, there are a lot more links that deserve a lot more time in researching, snipping and commenting on. So I don’t want to half-ass anything for you.

4. I actually spent Sunday with my old college roommate in DC after the conference. Then I drove the 2-odd hours back up to PA where I’m staying with my parents.

That being said, I was thinking pretty hard about the conference during that drive up.

I was thinking about my feelings before the conference — how I didn’t like the idea of going to a conference that was about everything I hated about myself. I hated the idea of having to meet new people. I hated introducing myself. I hated seeing the word stuttering everywhere. I never talked about it to others, never sought help or support, and just hated myself for doing it. Why was I doing this?

But then I went to the conference, and my attitude changed about everything. I saw and heard and experienced so many awesome things.

On the drive back to my parent’s house I realized that the NSA Conference did have a lasting effect on me: I didn’t hate anything about myself anymore.

Filed Under: NSA Conference, Uncategorized Tagged With: confidence, nsa conference, stammer, stammering, stutter, stuttering

Stuttering at the Conference Day 4 – Last day

July 6, 2014 by Rehan Nasir

Well today the NSA annual conference came to a close. It’s been a really amazing experience that definitely blew away any expectations that I had. I’m not sure what I really thought would happen before I showed up — maybe some seminars, sitting and listening, talking to a few people here and there.

It’s been so much more than that. Every workshop that I’ve gone to has really driven through the heart of my stuttering and given me new ways to look at it. There’s acceptance everywhere I turn here. Nobody finishes my words, phrases or sentences for me. They look at me, they make eye contact, and they wait patiently. I can say the words I want to say instead of the words that are easy to say. Nobody says stupid things like “did you forget your name?” or “you hardly stutter at all, you’re fine.”

Next year’s conference is in Chicago. I’ve already made up my mind that I’ll go. Whatever has to be done for scheduling, so be it. (Besides, many of the Middle East airlines fly direct to Chicago). I want to listen to others talk about stuttering again. I want to see the friends who I met over the past week. I want to be moved to tears — as I was twice today. I want to be mentally exhausted at the end of each day again. I want to scribble furiously in my little notebook as yet another speaker blows my mind with a new attitude or outlook that I never considered.

I want to meet new people, and I want to feel comfortable again in a room of a thousand people who get it.

I really wish I had gone to this conference when I was in high school. I’m not sure how different my life would have been, but I would have known that I wasn’t the only one. I would have known other kids going through the same experiences. I could have gone to seminars with adults who could have mapped out the next few years — the college years. I would have talked to people about all the uncertainty, the fear of speaking, and how it’ll be fine at the end of the day. I didn’t do all of that, but I’m doing it now. I’m 35, and I’m less covert in my stuttering as before. And that’s fine to come out on my own terms. And it’s even easier being here to see how others have done it, and how others have embraced it.

I’m going to go back over my notes over the next few days and see about how to relive some of the magic … I think I’ll devote a week to each day of the conference and elaborate on workshops and ideas that were presented. By all means, if you have any comments or stories, do send them along. As I said before, this site has only just started, and we’ve got a lot to cover.

Filed Under: NSA Conference, Uncategorized Tagged With: confidence, nsa conference, stammer, stammering, stutter, stuttering

Stuttering at the Conference Day 3

July 5, 2014 by Rehan Nasir

Insanely late post today (well, I suppose I missed on the fourth) but of course it can be attributed to the July 4th Holiday as well as having a really good time at the conference. I was up til midnight just now talking and hanging out with newfound friends from the conference.

Again, just a quick roundup, and then I’ll get into these aspects (and others) after a few days/weeks.

1. I went to a workshop where several people talked in detail about being covert stutterers. I could pretty much relate to everything they said. So I’m definitely not alone. And then most of them decided that enough was enough and to be open about their stuttering. I’m coming to terms with that, but this blog (and going to the conference) are certainly steps in the right direction.

2. I did a “speed talking” workshop. Basically about 18 people sit facing 18 other people. Then we talk for 3 minutes. Then one side moves seats. So it’s like speed dating but with just … talking. It was rough having to introduce myself to so many people, but once I got through that, it wasn’t too bad. I really have been struggling with my first name, but hey, that’s always been an issue.

3. It turns out when you go watch Fourth of July fireworks with a bunch of newfound stuttering friends, you end up talking about what topics come to your mind — stuttering related or not. So it was nice to spend some time outside of the conference getting to know so many different people.

4. There were some instances of stuttering discussion that arose in our little group. So it was nice to commiserate about the phone with people who “get it.”

5. Still meeting new people. Overall I’m still very satisfied by the number of people who I’ve met and gotten to know. I think I’ll definitely stay in touch with all of them.

Tomorrow is the last day of the conference. I’ll actually be speaking at an Online Presence workshop … where I suppose I’ll elaborate on what I’m trying to do with this site.

Filed Under: NSA Conference, Uncategorized Tagged With: nsa, stammer, stammering, stutter, stuttering

Stuttering at the Conference Day 2

July 4, 2014 by Rehan Nasir

Alright, so another great day at the NSA conference. As I said yesterday, I’ll post a few highlights this week and then expand on them in the weeks to come.

1. At the end of the day, I’m pretty tired mentally. I’m spending all day thinking and talking about stuttering. I’m stuttering a lot, and that’s ok. But meeting people is exhausting because well, I’m not used to doing it, and I stutter like crazy when I talk to strangers. So I have to keep “moving on” from the stutter in the conversation. I can’t let a lousy introduction get me down — the listener doesn’t care — they stutter too!

2. I went to a workshop on bilingual stuttering. As in, people who speak foreign languages who stutter. This went ahead and blew my mind because one of the moderators said she speaks a foreign language for work. And she stutters. When I think about my top like, five fears in life, that’s right up there. And here she was, stuttering and speaking in a foreign language and getting paid for it. Damn!

3. As part of the same workshop, she said how we deserve to speak a foreign language. I never really thought about it like this. As in, yes, I do stutter, yes, it’s going to be rough when I speak a foreign language, but hey, the listener can be patient, and I can enjoy speaking to them in their native tongue. I have been afraid of speaking Arabic for a long time, but this may change my mind a bit … slowly but surely. I don’t have to be perfect with everything I say in a foreign language.

4. I did an open mic workshop. It’s a simple concept. People in the room take turns standing up in front of everybody and talking. No prepared material, no specific topic, no order of appearance. So to recap: SPEAKING IN FRONT OF STRANGERS. I did end up volunteering, and I did end up talking. I said what I wanted to say (no real time to prepare or practice anything) and stuttered all the way through it. But you know what? So what. I stutter, so these things happen.

5. I’m also meeting more people slowly. I definitely didn’t have any quota in mind before I came here. But it’s nice just being able to go up to someone, stutter like crazy to introduce myself and then be able to chit-chat for a while. I’ve talked to people who stutter, parents of people who stutter and speech language pathologists.

There’s so much more that happened, but that’s a good roundup for now.

Filed Under: NSA Conference, Uncategorized Tagged With: fears, nsa conference, stammer, stammering, strangers, stutter, stuttering

Stuttering at the Conference Day 1

July 3, 2014 by Rehan Nasir

Well, today marks the first day of the NSA conference here in the DC. I’ll write way more about each workshop after I get back to Saudi, but in general, here are my thoughts so far.

1. After picking up my packet and checking into my room, I was still asking myself if this was the best idea. I could still walk out on the whole thing and spend a few aimless days in DC. I mean, for someone who stutters, going to a conference where you have to meet people is pretty intimidating.

1a. For those of you who don’t stutter, this is how things go down in my head:

Me: Let’s go to a conference and meet total strangers who stutter!
Self: No.
Me: Let me say it again: EVERYBODY THERE WILL STUTTER.
Self: Here’s what I heard: MEET TOTAL STRANGERS
Me: But they all stutter!
Self: But they’re strangers! I’ll stutter in front of them!
Me: Exactly!

2. Obviously I’m glad I sucked it up and went to the first workshop — for first timers. Still nervous, but Pam got up in front of all of us and put me at ease. She said she was in our shoes before. And felt nervous. But we’d meet people, we’d talk, and it’ll get better.

3. The main focus of the first timers workshop was to meet other first timers. So the hosts didn’t spend a lot of time talking. They let us mingle. This was scary for the first few minutes, but got way easier. In the end, I wished we had even more time.

4. I did introduce myself to the first person who I saw before the first timers conference. So for the first time in many years, I had a conversation with someone else who stutters.

5. I had a chance today to watch this documentary about stuttering. It was like a film about my own life. Damn. Definitely not alone at all.

Anyway, as I said, I’ll have way more on all the above in the weeks to come. For now I’m slowly taking in this conference. I’m hoping to meet more people … it’s only Wednesday today, so there’s plenty of time. Many of the other workshops also force social interaction which is pretty awesome.

Filed Under: NSA Conference, Uncategorized Tagged With: fears, nsa, stammer, stammering, strangers, stutter, stuttering, thisisstuttering

Stuttering in 35G

July 2, 2014 by Rehan Nasir

As I’ve said before, I’m a very social person — who’s stuck with this stuttering thing. If I don’t have to introduce myself (or start off with a random witty comment), I can usually chat people up without too many issues. Of course there’s still stuttering, but the lingering effects of an introduction don’t cloud the air as much.

Since I work in Saudi, I have to make some long flights back home — like the one I took a few days ago so I can go to the NSA conference. On the first flight, I had all three seats on the side to myself. (This was pretty nice, but I still have a hard time sleeping on airplanes.)

From London to Philly, however, a young lady sat next to me. This is about a 7+ hour flight.

So the considerations begin. Not only are there stuttering considerations, but general, “don’t by creepy” considerations. You definitely don’t want things to be awkward for the next 7 hours.

The stuttering, of course, starts right off the bat — I usually open with, “so …. where are you going?” If I’m not feeling that at all (the ‘w’ in ‘where’ being the sticking point) I might try to be more specific — “so … are you from Philly?” This one is also pretty tough because after the “so” comes out, there’s a horrid pause, and then no sound as I try to eek out a word that starts with a vowel. Sometimes I feel bad because they’re just sitting there. Staring at me. They can’t go anywhere. Captive audience! Ha!

Despite this, I always do try to initiate conversation if they’re not going to. I’m curious! They might be a friend of a friend of a friend! Maybe they work somewhere interesting or went to the same school I did. I need to know! I’ll never see them again for the rest of my life, but I need to know!

The main issue are those ‘w’ words: What do you do? Where are you going? When are you leaving to go home? Stutter, stutter and stutter.

The plane can be a really tricky place to try to talk because there are so many variables. First there’s trying to find something good to say. Then trying to find the right words that I won’t stutter on. Then when I’m ready to say them, making sure there’s not an announcement being made. Or someone else walking by saying “excuse me,” and getting my seatmate’s attention. Or maybe they’re still on their phone or getting a call while we’re at the gate. They might drop something and be distracted. Most of these things seem to happen as I’m trying to get a few words out. “I’m sorry, did you say something?” Eh … let me try to repeat myself.

Other horrid parts of the flight include having to give a drink order when I’m at the window seat. Why do I always feel like the flight attendant is in a hurry? Where are they going to go? But then I’m trying to say “diet coke” while my seatmate stares at me and while the flight attendant looks on indifferently. All that for 6 oz. Sometimes I’ll just say I’m fine and not ask for anything.

Assuming things get going in conversation, it’s important to stay away from being creepy and overly friendly. Keep things short and to the point. Try not to set up elaborate jokes. If you find out they’re much younger, there’s no need to delve into the daily actives of your three children.

The nice thing is that most people will understand the “um,” and then a point toward the back of the plane as the universal sign of, “move, so I can go to the bathroom. Please?”

Alternatively, there’s this.

I wonder if people don’t do these to me when they start to hear that I stutter …

Filed Under: Uncategorized Tagged With: fears, flying, stammer, stammering, stutter, stuttering

Stuttering at the Conference

June 30, 2014 by Rehan Nasir

The conference is only two days away now, so I’m starting to get pretty excited. The NSA has been e-mailing us as well as posting an inside look via twitter for their preparation.

Since I’ve been covert for so long about my stuttering, I still don’t really know how I’m going to react to all this. I need to make sure that my initial reaction on social situations gets beaten back so I can say what I want.

With that in mind, here’s what I’m thinking I need to do while there. I’ll also post an update on this after the conference is over to let you know how it went.

Things that I’m going to do at the conference in no particular order:

2. Go up to small groups of people and barge on in. Why not, right?

3. Call down to the front desk, tell them my name, room number and then ask what time checkout is. And maybe if I’m feeling up for it, what the hours are for the gym.

4. Introduce myself to as many strangers as possible.

5. I got invited to a panel discussion on online stuttering communities. So, no prepared talking points. No rehearsing what I want to say.

6. Ask any questions or make any comments during seminars that I might have. Right then and there. Not after the seminar or after a few days when I see the host again. Don’t rely on e-mail.

Filed Under: NSA Conference, Uncategorized Tagged With: fears, nsa, stammer, stammering, stutter, stuttering

Sunday Link Roundup

June 30, 2014 by Rehan Nasir

Again a little late. I’m in the States now, visiting friends and family. I came here to see them and of course head to the NSA conference.

For this past week in stuttering, there are a few items — thanks to Twitter, it’s easier to find items of note.

Let’s start with the NSA conference — it starts on July 2nd, and the program is available online now.

Carolina Pediatric therapy posted about children and stuttering — and what to look for during development:

As your child is learning to talk between 18 months and three years old it is common to go through a stuttering “phase”. In most cases it only lasts a few weeks or months and is no reason for concern. So, when should you become worried that your child’s stuttering may be more than a phase? There are a few simple questions you can ask yourself that may help you determine when to call a Speech Pathologist for an evaluation.

Of course you can find a speech language pathologist through the Stuttering Foundation’s site.

The Mighty Snail posted a little rant about stuttering at the workplace.

I enjoyed this tweet:

It's so difficult to order coffee before I've had my coffee #catch22 #stuttering

— Carls (@Carlywads_) June 26, 2014

Do you stutter less when you have caffeine? I think if I have a lot of it, I get going pretty well and don’t stutter as much. But of course that’s a pretty subjective view …

I will admit that I need to start listening to way more podcasts.

That may be a focus of 2015 for me.

And lastly, please do head over to Reddit and check out the Stutter sub-reddit.

Tomorrow I’ll get into what I want to do at the NSA Conference. The rest of the week (and next) will likely be conference-heavy commentary. If you’re going, do send me a note/comment — we should meet up.

It’s entirely possible that I’ve missed things this past week due to travel and whatnot. So let me know!

Filed Under: Link Roundup, Uncategorized Tagged With: childhood, links, nsa, SLPs, stammer, stammering, stutter, stuttering

Weekly Stuttering Roundup

June 29, 2014 by Rehan Nasir

Apologizes for the very late post. I was traveling all day Friday from Saudi to Philly, and then I spent today with family. Nonetheless, there was some stuttering during the past week … as usual.

One thing that did happen that I didn’t stutter on was not getting all my luggage in Philly. One of my two bags came through, and then they (British Airways) had a person make an announcement that well, a whole bunch of bags didn’t show up. Fortunately I didn’t have to speak — he just gave us a form. I always hate having to read off a number to someone behind the counter. The last time it happened they verbally asked for everything — name, address, phone number. Ugh.

What I did get nervous about during the trip was while standing in line for passport control in Philly. It’s always slightly nerve-wracking. I mean, it shouldn’t be — I’m an American citizen, so … here’s my passport, let’s keep things moving. But there are always questions — how long have you been out, what do you do, what are you doing here, who are you going to see, are you declaring anything? I do pretty well on the questions — keeping them short and to the point. Saying “two weeks” for the duration is tough, so I can get away with “ten days,” if need be. The declaration thing is a big issue, though — I always bring dates. That’s right. Dates with a big D on the front. Saudi dates are a favorite of my parents, so they always ask that I get them. And so if you’re bringing any kind of fruit, you have to declare it — otherwise if you get caught, it’s a huge fine. Not worth it. What I did this time was actually write “dates” on the form (there’s not a space for it, but whatever). I started stuttering out the “d” in dates, and then the passport control guy saw the written word — “dates?” Yep!

Also, the World Cup is going on as … pretty much everybody knows. And of course Luis Suarez was big news because of his biting incident. I would love to talk about this more, but Luis has a pretty tough name for someone who stutters — that L takes a long time to come out, and the ‘s’ of his last name is tied with a ‘w’ basically. Aaargh. So how to even refer to this guy? Just not … The other issue of course are the team names. I could say “Netherlands,” but man, “Holland,” is way easier.

Lastly I was talking to a colleague at work who’s from Sudan about dentistry. I wanted to tell him about how I had my wisdom teeth taken out. But of course … “wisdom” wasn’t going to come out. So I just said, “those teeth … in the back and up there.” He said he understood, but I was really more curious what other people in the world called wisdom teeth. Is that just an American thing?

Filed Under: Uncategorized Tagged With: roundup, stammer, stammering, stutter, stuttering, travel

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