This Is Stuttering

July 17, 2014 by

The third workshop that I went to was a movie, thisisstuttering.

It was made by Morgan Lott.

Now, remembering that I’m a covert stutterer who doesn’t like to talk about stuttering, I had never seen his movie. Or even heard of it. I only found out about it while reading the description in the NSA program.

So I didn’t know what to expect.

I hadn’t even read this which is on his site:

Morgan is a filmmaker from Simi Valley, CA. During the summer of 2012, he began another round of speech therapy with a new speech therapist, Mrs. Alyssa Lukiewski. Upon her asking Morgan to film all of the sessions and weekly vlogs, simply for her own usage in studying her client, Morgan realized he was filming a fascinating documentary on accident. thisisstuttering has already drastically changed his life and he hopes the story will encourage and motivate others not only with stutters, but in any difficulty life decides to through our way.

This isn’t going to be a review of the movie. It’s more of my feelings during the viewing. That being said, the movie is basically about Morgan and some “confessionals” during his time in speech therapy. There are also numerous shots of him stuttering — out in public, on the phone, etc.,

My thoughts? Wow. Just, holy crap. He is out there, he is on video, and it’s forever! I really, really hate hearing myself on tape (or mp3, I guess) and seeing myself on video. (That’s why I haven’t done a YouTube channel or Podcast) I’ll leave the room if a video of me comes on (even if I’m not stuttering in it). When I’m making videos of the kids, I don’t even like to talk. If I do, it’s slow and very deliberate. And I make sure I won’t stutter. If I stutter badly enough. I’ll delete the video. That’s right. My stuttering supersedes childhood memories that will never happen again. That being said, I’m getting better — if it’s a little stutter, I’ll let it go. I suppose my kids may appreciate a nasty stutter when they’re older though. That’s how dad is.

Back to Morgan’s movie.

I’m watching this movie, and all I can think of is, well, that’s my life right there. He’s on the phone, stuttering to say a word. He hangs up, turns to the camera and says the word without stuttering at all. Over and over again. And just shakes his head about it.

What was amazing is hearing what he said about the movie afterward. Particularly that these snippets were all never to be seen by anybody else. And yet he had the strength to put them together into a really powerful movie. He also talked about how vulnerable he’s felt since making the movie and being out there. That’s an insane amount of courage. I mean, I’m only writing a little blog — put to make a movie and put it forth for festival consideration — chapeau.

(When Morgan stood in front of us after the movie was over to talk, I had the same thoughts that I did about the previous presenter — he’s hardly stuttering! But then he talked about how he’s been doing these presentations for a few months now. So again, confident and familiar.)

For someone who stutters, there’s nothing new or earth-shattering here regarding treatment or putting yourself out there. But I think if you’re fluent and want to know what stuttering is like, this is a perfect place to start. If you don’t stutter but know someone who does, you might hear a few minutes of their stutter here and there. Maybe every day, maybe only once or twice a week. And not think it’s a big deal. (And if your stuttering friend is trying to be covert, they’ll likely stutter even less). But thisisstuttering strings it all together and shows just how emotionally taxing stuttering is.

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Stuttering your way to financial ruin and social ridicule

July 15, 2014 by

The second workshop that I attended had the subject title and was done by Steve Brown.

For the record, here are all of the descriptions for these workshops — so you can read the description on there of who Steve is and what this was going to be all about.

Alright, so I had just come from the First Timer’s Workshop and was feeling good. I was feeling good about jumping into the deep end and actually going to this conference. But I was mentally taxed a good bit already — I usually have to stutter our my name once a month (or even less) — and I had just done a year’s worth of really rough introductions in less than an hour. Thankfully everybody had name tags, so even if I forgot someone’s name, they happily pointed to it. They also had our hometown on there. Mine was listed as Lancaster. That’s true, but I’m living in Saudi now … I can’t remember if the registration form had that space on there or if they just used the billing address for our credit card. Anyway, at first during the first timer’s I wasn’t saying much about my hometown. But by the end of the conference, people were pretty surprised that I was living and working in Saudi.

I walked from the first workshop to the second — and had to go past hundreds of other conference-goers to do so. Should I have been jumping in again and introducing myself? Yeah, probably. But the old me was still leading the charge. You’ve just stuttered your head off! Look at these people! You stutter still! Avoid at all costs! Go put on more deodorant, too!

Ok, ok. Fine, but we’re going to meet some new people eventually, dammit.

I went into the next workshop room and assessed the situation. Smaller room. The speaker would be standing up front, so he might call on me if I sat in front. Unacceptable. But I can’t sit in the back! No! I didn’t come all the way here to hide in the back. I’ll sit in the middle. Should I slide in next to someone who I know? I don’t know anybody. What about a stranger? I could meet someone here, right? You will! No, let’s just sit down and see what this is all about.

Let me just summarize what Steve ended up talking about — his stutter, how he overcame it through really hard work, and how some of those techniques to avoid and use other ways to communicate made him stand out from his peers. He also talked about the importance of body language and setting ourselves up for success before our mouths are even open — don’t slouch! He told us to focus on the message, not the stutter.

Body language is something I really need to read up on. I find myself slouching or tightening up my shoulders all the time. I’ve been trying to practice more eye contact as well.

I liked Steve’s talk. It was funny, it was upbeat, and I could definitely relate.

But as a first timer, there was something off (for me). Something didn’t add up.

I mean, I’m sitting there, someone who stutters, and this guy says he does too. Yet he’s fluently telling us about his past and present. He’s easily walking back and forth on stage, making eye contact, telling jokes, waving his hands here and there.

But then that was the point.

I started thinking about it more — he’s done this before. He’s told these stories before. He’s confident with his material and being in front of people. That was inspirational for me. That could be me. I want to be up there telling my story some day.

So what did I take away from this? Well, that your stuttering really doesn’t have to stop you from your goals. That you can either stutter openly and fight through it, use alternate communication methods or a combination of the two.

(Also, looking back on it, I should have taken more detailed notes — but hey, I’m learning for next year.)

Just for reference, on the first day of the Conference there were 17 workshops across three timeslots. This is a lot of the reason why I want to go next year (and forever after) — I saw a bunch of stuff on the program that looked/sounded interesting that I wasn’t able to attend.

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First Timer’s Workshop

July 14, 2014 by

Alright, so I’m finally back home after the visit Stateside and French-countryside. I was trying to think about how to recap all of this, and I think I’ll just do it in chronological order. So, the first workshop that I attended was the First Timer’s workshop.

Just to set the scene — there’s me, the covert stutterer who doesn’t like meeting people (well, having to introduce myself at least). I don’t like conferences because I had what was probably my most embarrassing moment at one (so those chairs, lighting, carpet, large numbers of people sort of make me nervous) and I was still thinking I could just walk out on the whole deal.

Anyway, I slowly made my way into the conference room, and there weren’t a lot of people there. I saw a younger guy sitting down near the door, so I went right up to him (into the deep end!). I said hello, and he introduced himself.

He stuttered.

Since leaving high school, I have never talked to anybody in person who stuttered. Never even met anybody else who stuttered. 17 years.

Alright, so now it’s my turn. I stutter out my own introduction. I then sit down next to this guy, Mark, and we talk. We’re both stuttering. So this is what I sound like to others.

After a few minutes, more people walk in. They fill in the seats. Then I see Pam from Stuttering Rockstar and a few others get up in front of us. Pam talk to us. The others also speak. They’re all stuttering. They don’t seem to mind at all.

They tell us that the point is not for them to talk to us — we’re all here to talk to each other!

Do what now?

Maybe we could go up in front and have them read our name to the crowd? Then I don’t have to? Maybe?

No.

Ok, now they’re done talking, and we’re all standing up, and I’m looking around nervously.

I flew all the way from Saudi for this so … I’m stuttering and introducing myself. I’m forcing myself to make some small talk. I’m trying to remember who I meet. I’m looking and staring at name tags after they introduce themselves.

I’m not going to lie — I’m targeting people who seem to be about my age. I’m interested in talking to them after this and over the next few days. Also, I’m trying to figure out how long to talk to people. I try to make some small talk and then break away to search for others. Oh, social situations. Should I just bust into a group and introduce myself? Look for others who are wandering like me? I slowly move about, bumping into people, introducing myself, saying hello, exchanging where we’re from and what we do.

I’m stuttering a lot, and it’s bothering me somewhat. I know I don’t stutter all that much, but that might be because I’m so comfortable with my current batch of friends/colleagues. But here at the conference I’m really struggling. Maybe it’s because I’m not used to making this kind of small talk? It’s been a while since I’ve answered these kinds of questions. On the one hand, I want to talk and practice, but on the other, I want to listen and find out where other people are from.

Before I know it, this very first workshop is over. What? Already? There are so many people here who I haven’t met!

I really wished it had gone on for maybe another half hour or even hour.

Now that that was done, I was feeling a little better. The uncertainty was gone. I belonged here, and these are my people! I was excited for what the remainder of the conference. And it was easy to meet people. Everybody was patient. Everybody was welcoming.

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Link Roundup – Last fortnight or so

July 9, 2014 by

Alright, so now a more traditional link roundup.

We’ll start with Pam at Make Room for the Stuttering. She’s put together some nice thoughts on the NSA Conference.

Also, I met Sam at NSA, and he’s posted his highlights from the conference.

He says:

I led a workshop on the struggles PWS often face on the phone and how we can master it instead of avoid it. After the workshop, a woman in the audience even approached me to tell me I inspired her to overcome her fear of the phone. I was so happy to help!

There were so many great workshops at the conference — I was sad that I had to miss some. Then again, that’s just motivation to go next year — fill in the gaps. And continue meeting amazing people.

The nice folks at Stutter Talk posted several talks during the conference. I should have hunted them down …

I know this is from early June, but I’m finding out about it now. It’s a review of ‘Out With It,’ by Katherine Preston on the Canadian Stuttering Association’s page.

The convoluted interaction between stutterer and unsuspecting listener is depicted, with neither knowing quite how to react, the results varying from traumatic to humourous. She employs various tricks to bypass her stuttering, such as avoidance, developing a huge vocabulary to navigate around difficult words, and choosing a small circle of empathetic friends.

Not sure about the circle of empathetic friends — I think since I never talked to my friends about it, I’ll never know, but everything else is pretty much spot on with regards to how I dealt with my stutter.

And something that’s awesome and horrible at the same time — McDonald’s is testing a new ordering app for your phone.

I say it’s awesome because obviously it saves me the trouble of stuttering out my order — and any changes I want to it — but it’s horrible because, well, I shouldn’t be afraid of stuttering in front of others. On the other hand, I’m not sure what the big deal about this is — at Wawa here in PA they have wonderful touch-screen ordering machines. You can build whatever kind of sandwich you want — and never have to talk to anybody! They’ve been around for years as well. Obviously as a former covert stutterer, the Wawa experience was absolutely magnificent.

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Link Roundup – Who I Met

July 9, 2014 by

Alright, I’m going to do two days of link round up goodness. Today will be a look at the people who I met at the NSA conference. I’ll have to update my Resources pages as well …

Tomorrow I’m flying out from the States to France for 3 days. Going to chase the Tour and meet up with Tom from The Stuttering Brain over in Luxembourg. It’s turning out to be quite the stuttering vacation. I will certainly try to set up some entries to post during my European adventures.

Ok, so first up is Pam from Make Room for the Stuttering. She spoke at the First Timer’s workshop, and I talked to her a little bit there and during the conference. She also spoke at the online panel discussion listed below.

What really got me right off the bat at the conference was that the people doing the workshops mostly stuttered. They were just up there, saying their piece, stuttering, smiling, and carrying on like it’s another normal day at the office.

Here’s a look at some of the leadership who were at the conference.

On I think what was the second day, I met Ben North at the Starbucks in the hotel lobby. He was standing in front of me. The person behind me asked what this conference was all about, and Ben replied. I thought, well, here we go, I’m here to meet people, so let’s keep meeting people. My usual state of sweating and being nervous surfaced, but Ben responded as everybody else did at the conference — with patience and understanding.

I was on a panel discussion hosted by Katie Gore regarding online communities for stuttering. Katie reached out to me through reddit. There’s a few people on reddit who discuss stuttering on a regular basis. Jump over there and join their discussion.

On that panel were:

Daniel Rossi, who wrote a book on stuttering. I bought the book and will start reading and reviewing it soon. He and Sam (below) work on Stutter Social.

Jacquelyn Revere. She’s started a vlog on stuttering.

Samuel was also on the panel. He talked about Stutter Social:

Stutter Social is an organization that connects people who stutter (PWS) through Google+ Hangouts. Participating in a Hangout is a fun, free, and safe way to connect with other PWS. Discussion often revolves around stuttering-related issues, but sometimes we just chat about our day or a good movie. We are a very welcoming and friendly bunch so don’t be shy and come join us whenever is convenient for you.

Not on that panel, but during the conference, I met Dhruv from the Indian Stammering Association. He’s working on setting up an annual conference for the Indian Stammering Association this October. Unfortunately I won’t be able to attend, but will find ways to help them out anyway.

I got to watch a movie about stuttering — not the King’s Speech, mind you. And no, I still haven’t seen that yet, either. Maybe I’ll finally watch it on the plane ride back to the Kingdom.

This Is Stuttering was shown during the conference. Watching Morgan stutter while talking on the phone during the film was just like watching myself. Morgan was also at the conference to talk about the movie and what has happened since releasing it to the public. If your friends don’t know what stuttering is like on a daily basis, by all means, send them the link.

Lastly, some people had mentioned going through therapy with the American Institute for Stuttering. I’m not going to pick one organization over another. I just happened to go to an NSA conference. My opinion is that the larger organizations are all there to help those of us who stutter, our parents, and children and teenagers.

So tomorrow will be a more traditional link roundup with stories from this past week and a half. If you’ve got any stories to share, do pass them along!

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Excuses, excuses

July 8, 2014 by

Clearly I missed the Sunday link roundup, but I have four somewhat-legitimate excuses:

1. I’m on vacation … so I am constantly losing track of what day of the week it is. No, really.

2. I went to the NSA Conference (see above) and well, the losing-track was in full effect. I often didn’t know what time it was — no windows + not a lot of clocks = casino-like state.

3. Because of the conference, there are a lot more links that deserve a lot more time in researching, snipping and commenting on. So I don’t want to half-ass anything for you.

4. I actually spent Sunday with my old college roommate in DC after the conference. Then I drove the 2-odd hours back up to PA where I’m staying with my parents.

That being said, I was thinking pretty hard about the conference during that drive up.

I was thinking about my feelings before the conference — how I didn’t like the idea of going to a conference that was about everything I hated about myself. I hated the idea of having to meet new people. I hated introducing myself. I hated seeing the word stuttering everywhere. I never talked about it to others, never sought help or support, and just hated myself for doing it. Why was I doing this?

But then I went to the conference, and my attitude changed about everything. I saw and heard and experienced so many awesome things.

On the drive back to my parent’s house I realized that the NSA Conference did have a lasting effect on me: I didn’t hate anything about myself anymore.

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Stuttering at the Conference Day 4 – Last day

July 6, 2014 by

Well today the NSA annual conference came to a close. It’s been a really amazing experience that definitely blew away any expectations that I had. I’m not sure what I really thought would happen before I showed up — maybe some seminars, sitting and listening, talking to a few people here and there.

It’s been so much more than that. Every workshop that I’ve gone to has really driven through the heart of my stuttering and given me new ways to look at it. There’s acceptance everywhere I turn here. Nobody finishes my words, phrases or sentences for me. They look at me, they make eye contact, and they wait patiently. I can say the words I want to say instead of the words that are easy to say. Nobody says stupid things like “did you forget your name?” or “you hardly stutter at all, you’re fine.”

Next year’s conference is in Chicago. I’ve already made up my mind that I’ll go. Whatever has to be done for scheduling, so be it. (Besides, many of the Middle East airlines fly direct to Chicago). I want to listen to others talk about stuttering again. I want to see the friends who I met over the past week. I want to be moved to tears — as I was twice today. I want to be mentally exhausted at the end of each day again. I want to scribble furiously in my little notebook as yet another speaker blows my mind with a new attitude or outlook that I never considered.

I want to meet new people, and I want to feel comfortable again in a room of a thousand people who get it.

I really wish I had gone to this conference when I was in high school. I’m not sure how different my life would have been, but I would have known that I wasn’t the only one. I would have known other kids going through the same experiences. I could have gone to seminars with adults who could have mapped out the next few years — the college years. I would have talked to people about all the uncertainty, the fear of speaking, and how it’ll be fine at the end of the day. I didn’t do all of that, but I’m doing it now. I’m 35, and I’m less covert in my stuttering as before. And that’s fine to come out on my own terms. And it’s even easier being here to see how others have done it, and how others have embraced it.

I’m going to go back over my notes over the next few days and see about how to relive some of the magic … I think I’ll devote a week to each day of the conference and elaborate on workshops and ideas that were presented. By all means, if you have any comments or stories, do send them along. As I said before, this site has only just started, and we’ve got a lot to cover.

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Stuttering at the Conference Day 2

July 4, 2014 by

Alright, so another great day at the NSA conference. As I said yesterday, I’ll post a few highlights this week and then expand on them in the weeks to come.

1. At the end of the day, I’m pretty tired mentally. I’m spending all day thinking and talking about stuttering. I’m stuttering a lot, and that’s ok. But meeting people is exhausting because well, I’m not used to doing it, and I stutter like crazy when I talk to strangers. So I have to keep “moving on” from the stutter in the conversation. I can’t let a lousy introduction get me down — the listener doesn’t care — they stutter too!

2. I went to a workshop on bilingual stuttering. As in, people who speak foreign languages who stutter. This went ahead and blew my mind because one of the moderators said she speaks a foreign language for work. And she stutters. When I think about my top like, five fears in life, that’s right up there. And here she was, stuttering and speaking in a foreign language and getting paid for it. Damn!

3. As part of the same workshop, she said how we deserve to speak a foreign language. I never really thought about it like this. As in, yes, I do stutter, yes, it’s going to be rough when I speak a foreign language, but hey, the listener can be patient, and I can enjoy speaking to them in their native tongue. I have been afraid of speaking Arabic for a long time, but this may change my mind a bit … slowly but surely. I don’t have to be perfect with everything I say in a foreign language.

4. I did an open mic workshop. It’s a simple concept. People in the room take turns standing up in front of everybody and talking. No prepared material, no specific topic, no order of appearance. So to recap: SPEAKING IN FRONT OF STRANGERS. I did end up volunteering, and I did end up talking. I said what I wanted to say (no real time to prepare or practice anything) and stuttered all the way through it. But you know what? So what. I stutter, so these things happen.

5. I’m also meeting more people slowly. I definitely didn’t have any quota in mind before I came here. But it’s nice just being able to go up to someone, stutter like crazy to introduce myself and then be able to chit-chat for a while. I’ve talked to people who stutter, parents of people who stutter and speech language pathologists.

There’s so much more that happened, but that’s a good roundup for now.

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