Advertising your Stuttering

Since stuttering got a lot of attention over the past few days thanks to International Stuttering Awareness Day, I thought I’d talk about … advertising.

Advertising your stutter, of course. When I went to the NSA Conference, this came up a lot. That we should advertise our stutter to listeners before we get rolling. It’ll take the edge off. It’ll inform them. It’ll make us more comfortable and maybe we’ll stutter less.

I’ve never advertised. I was really trying hard to think back and … no. I never prefaced a single conversation with this. That’s of course thanks to being covert for such a long time. However, now that I’m out about it a little more, I’m still not sure if advertising is something I’ll do. And why not? Well, easy — I know I’ll stutter on the word “stutter.” Yep. Fear of stuttering … when advertising … stuttering. I know it’s maybe the point — if a listener hears you stutter on “stutter,” then they might make the connection rather quickly. Right?

So how do people do this? When is it really worth it? I don’t remember hearing too many examples (if at all) during the conference of how people do this. Isn’t the question or conversation that you would like to ask/have going to be your basis for advertising? That is, if you have a quick question, are you going to preface it with a long, stuttering introduction of yourself?

(Stuttering) “Hi, I wanted to let you know that I stutter. But I don’t want it stop me from talking to people. Do you mind if I ask you for directions?”
Them: Yeah, sure.
(Stuttering) “Ok, well, can you please let me know where the Starbucks is around here? I’m supposed to meeting a friend.”
Them: It’s the next store over.
Me, not stuttering: Oh.

And with people at work, isn’t there a window of opportunity for this? I mean, if you don’t do it your first few days there, can you really pull it off two years later?

My inclination would be to advertise after I’m having a hard time speaking, not before. Like, I’d be in a work meeting with some new people and during the presentation, I’d have a really bad stutter. Then, what, make some off-handed remark about how I stutter and “sometimes it’s a little bad. But we’ll get through this.”

When I’ve been meeting people here in the Kingdom, I certainly haven’t told them that I stutter. My thinking is that they’re adults, and they’ll figure it out. And they won’t judge. None of them have. Am I just lucky with the people around me? Is my stutter not that bad anyway after I get my introduction out (or try to get it out?)

I’m just not sure about this advertising because of my recent decision to try to … say what I want more. I stutter more, yes, but I’m saying what I want. And just carrying on. And forcing people to sit and listen. The stuttering is advertising itself, right?

I think one of the shortcomings of just stuttering on through is that my listeners are still uneducated. I still get the occasional person trying to finish my words, people talking over me because they think I’m done … but then again, maybe some of this is just my own perception of things.

Anyway, sorry for the somewhat rambling post. I think the point of all this is that I’m not sure how to advertise, and I need to connect with people who are good at doing this. Either online over the next few months, or try to make a point of it during the NSA Conference next year in Chicago.

If you advertise your stutter regularly to listeners, I’d love to hear in the comments how you do it. If you can give actual conversational examples, that’d be awesome!

International Stuttering Awareness Day today

Hello and welcome! It’s International Stuttering Awareness Day today. You can find the background on this event here at the ISAD page. I posted this before, but it’s worth repeating — here’s a link to all the older ISAD online conferences.

What I wanted to do for today is round up a few articles and stories regarding stuttering. This will be a bit more than I usually do for a link roundup.

First with some blogs:

Pam at Make Room for the Stuttering is still busy doing interviews and podcasts. Here is her submission for the International Stuttering Awareness Day Online Conference.

Here’s a new blog from someone who stutters, Mark Nolan. He’s posted quite the story about getting stuck on a word.

Second with some conferences:

Outside the US, there were some Stuttering-related events that recently took place. One was the National Stammering Awareness Day 2014 (Ireland). There’s a fantastic write up on the event here.

The next speaker was Conor Tiernan who has recently shaken off his covert cloak to embrace his stammer. I enjoyed Conor’s speech more than any other because his story was my story. His story was our story. His story was honest and raw and it came from his heart. Every single listener sunk into his or her seat as Conor explained his journey from never wanting to accept his stammer to finally admitting that his stammer would be with him forever.

The Indian Stammering Association had their Annual Conference earlier this month, and here’s a detailed summary of the events.

Here’s their blog post from today that really makes me think about what I’m doing with the fluent words in my speech:

When I analysed my recorded conversations, I found that at non problematic words I was unable to pronounce words as it should be, let alone the stuttered words, so it further complicates the already fractured speech to the listener.

Thirdly, the organizations:

The British Stammering Association has a lengthy page regarding today.

I’m still learning a lot about the Stuttering community, and so I should probably get a green wristband at some point — from the BSA’s page:

Why sea green for stammering awareness? Michael Sugarman who founded ISAD writes:
“The color ‘blue’ has traditionally been associated with calm while ‘green’ represents liberty, freedom and justice. The combination of these colors for People who Stutter shows the bond between ‘peace’ and ‘liberation’ when finding support and community with other people who understand and share their experiences.

A few articles about the day:

From the Poconos, here’s a story about a young man helping to raise awareness.

“When I was in high school I was very covert about my stuttering. Actually, even up until a few years ago I used to pretty much hide it and I was very good about hiding it,” said Stavros Ladeas, a 1999 graduate of Stroudsburg High School who’s now a web developer in New York and the chapter leader of the Midtown Manhattan National Stuttering Association.

Here’s a story that came out about a week ago regarding a Kiwi who used to stutter. He’s apparently worked through it and has done very well.

“I have a huge amount of empathy for other people who stutter. I look forward to sharing my experiences with people and telling them how I got through this,” he says, adding that he hopes to inspire others to believe “you too can go on to do great things”.

Also from Australia, teachers are being informed of possible stuttering in students.

“This is maybe the fourth time we’ve held this forum and the idea is to alert student teachers to the fact that they might have children in their class who stutter and they are just not aware of it. Treating school-aged children requires special sensitivity, so it’s critical to regularly host events like this to build awareness and help ensure the next generation of teachers knows where to turn for help.”

(I find this rather fascinating, actually. I am curious what is done in the States for this if anything. I think when I was growing up, it was like, well, one teacher would identify a specific student, they’d get help, but then the others would only hear it through talk in the teacher’s lounge. Or maybe the guidance counselor made a special visit to say, my French teacher?)

The Canadian Stuttering Association is having a conference this month as well. Here’s what they had to say about surviving it …

Imagine you walk into a big conference room full of people. You suddenly start feeling anxious, excited, and a tiny bit scared all at the same time. You start contemplating turning around on your heels and heading back home, when all of a sudden you hear someone experiencing a block. But now what do you do as you stand there listening to everyone else’s conversations? Do you go up and talk to someone, or randomly join a group of people already chatting? What if you stutter on your name or experience an awfully long block?

That pretty much sums up my experience at the NSA Conference! Scared and anxious at first, but now I’m already planning for the next one (Chicago … July 4th weekend).

Alright, so that’s quite a few links from a lot of different places. There’s of course twitter, which has even more links and information. I’ll be going through that over the next few days for even more ideas. I think for now I’ll retweet a few things.

Stuttering with the Doctor

One of the things I’d like to do with this blog is to educate fluent people what specific interactions are like for those of us who stutter. I’ve outlined a few of these already when I talk about what I’ve been stuttering on. So here’s another one — related to the doctor’s office.

I read this article regarding doctors and the current state of health care here in the US. I just want to focus on the bits relevant to stuttering.

I think most of us know that a visit to the doctor’s office is full of a lot of waiting punctuated by a quick conversation with the doctor. I’m not even sure you can call it a conversation at times. More like an interrogation, a pause, and then a diagnosis followed up quickly by a good bye and then wondering how to get through the maze of offices back out to the reception area.

The demoralized insiders-turned-authors are blunt about their daily reality. The biggest problem is time: the system ensures that doctors don’t have enough of it. To rein in costs, insurance companies have set fees lower and lower. And because doctors tend to get reimbursed at higher rates when they are in a network (hospitals and large physician groups have more leverage with insurance companies), many work for groups that require them to cram in a set number of patients a day. Hence the eight-minute appointments we’re all familiar with.

Ah yes, the quick appointments. They are intimidating to me as well. I feel like if I start asking the doctor about some other types of medications, other problems I’m having or whatever-else, it’s wasting their time. So I don’t. I also give quick, short answers because I don’t want to stutter. I think in some cases it’s all on the doctor how I’m going to talk … or not. They can easily come off as being rushed, being more important, or being distracted. All of this adds up to a less-than-optimal visit.

I guess my problem is that because of technology, I don’t see the point (and thus justify) in asking the doctor a lot of questions about whatever ailment I have. I can just go home and look it up.

So what can I do? I want to be able to talk, to engage. To get my eight minutes’ worth!

Here’s what I’m thinking. What about advertising my stutter to the nurse who takes my vitals and asks me what’s wrong in the first place? They might put it on the chart for the doctor to read. I’m usually more relaxed for the nurse anyway — more time, less tension … they wear bright happy, colors. I don’t know. It’s just easier to talk to them.

Yes, I could certainly just advertise to the doctor anyway, but that might not go well considering the aforementionned intimidation and perceived time constraints. At least this way if the doctor reads it, he might even ask about it. Or understand that it’s hard for me to talk — so no, I don’t need pills for anxiety or anything like that.

Maybe what else I can do is prepare a short list of questions so I don’t forget to ask something.

This of course is all for back home in the States. Here in Saudi it’s a whole other ball of stress because of the language. None of the doctors at our local hospita/clinic are native English speakers. And they’re not used to any kind of stuttering anyway. I’m not even sure advertising would do me any good. I also don’t have a doctor who I see all time because I go so infrequently.

Stuttering and traveling

This is going to be a sort of “what I’ve been stuttering on lately” post that focuses on my recent trip to England. The thing about my trip is that other than the thought of stuttering with the bike fitter, I wasn’t sure what else to worry about. I didn’t spend any time getting worked up or worried. That’s how my stuttering usually goes — the fear and worry only manifests itself minutes before the event. Unless of course there’s a meeting that I’ve known about.

That being said, here we go —

I flew from Saudi to Istanbul to Manchester. So in Istanbul, I stopped at the Starbucks. I didn’t have to, but I wanted to. (We don’t have one in our small town in Saudi — so it’s a treat). As I was standing in line, I was slowly starting to sweat over my impending stuttering. I knew I would. The distance between me and the person behind the counter was pretty great, there were people in front of me in line, there were a lot of people in the airport in general, it was noisy … but nobody behind me … well, for a few minutes anyway. I did stutter on “mocha” as I usually do. Also, I’d rather not have cream which always end up as, “oh, and no … cr-….” Cream? Yeah. “cream.” There’s a certain point when you’re standing in line and freaking out that you think, you know what, I actually could just walk away…

Getting into Manchester, I was a little nervous at the passport control. She asked where I had flown in from, and I dragged out the sssss for Saudi Arabia. Then some mundane stuff — what do you, how long will you be here. She saw that I was from the States, so asked where. I replied with a smile, “Pennsylvania.” She seemed happy with that and made a comment about how nice it was. It left a positive taste in my mouth at least.

Right after that, I was walking out — no checked bags — and a customs person asked where I had flown in from. I told him Ssssaudi as well. He said, “through …?” Oh, Istanbul. “Ok, you’re fine then.” And off I went.

During the few days I was there, my buddy would usually do the food ordering. He didn’t do this because he was considering my stuttering — he did this because that’s just how he is. He’s got three kids, so he goes around, gets their orders, considers it as the whole, then figures out what’ll work out best. So I just add in my needs. For the drinks though, I was usually on my own. I had some relative success saying “diet coke” for the four days.

When I checked into the bicycle fit, I didn’t actually tell them my name. Just that I had a 1 p.m. appointment for a fitting. They already knew what was up. I had considered advertising to the fitter that I stuttered, but then thought, no, there’s really no point, is there? And would I advertise to the person who checked me in — eh, no. Here, just fill out this form, have a seat there, he’ll be right with you.

Lastly from what I can remember at the moment was ordering pizza at the Istanbul airport on the way back home. Sbarro. A counter. A man behind the counter. So I just held up two fingers, and I pointed to the two types I wanted. I suppose I could have said “that one,” and “that one,” but there was really no need. He knew what I was pointing to. See, it’s things like this that make me wonder — am I justifying my silence or avoidance, or just being practical? I think it’s a fine line at times. I mean, if I didn’t stutter, wouldn’t I do it the same way? The guy in front of me basically did the same thing.

I stuttered pretty fiercely on that particular diet coke at Sbarro which was annoying because there were people standing around. Then I didn’t even check to see that he filled it up with the right stuff. It tasted a little off …

After the Bike Fitting

Well, I’m back from a few quick days in England, and so I thought I’d first start with how the bike fitting went. Then I’ll get into other stuttering aspects of the trip later this week.

To summarize — the bike fitting went really well and exceeded all my expectations. I didn’t think I’d worry too much about stuttering during the process, and that’s how it turned out.

My work colleague joined me for the adventure — since he drove me there — so I was at ease a little bit already. The studio wasn’t that big and had two offices that were separated by glass. There were people in them working. I didn’t think about how they couldn’t hear me. I don’t think I would have been too bothered even if they could — the whole studio gave off a strong air of professionalism.

The first part of the fitting process was just a quick conversation — what kind of riding I do, how often, what the problems are. I was obviously pretty familiar with all of these, and also filled out part of it on a form anyway. Then we got into a physical assessment — not much talking — just standing, sitting, stretching (or not) to see what my joints and muscles were capable of. I suppose during this time I could have asked what each assessment was going to help determine further down the line as far as the fit — but it didn’t occur to me to do so.

After that, he checked my feet to see what size they were. And then quickly sorted out why my foot was going numb — I had placed the cleat in a horrible position, so my foot was compensating … a lot. My feet are the same size as well. So the shoes are fine. Again, not much talking other than answering what part of the foot goes numb, and when.

A good thing to point out now is how quiet and relaxed the whole setup was. I don’t remember seeing a clock. I wasn’t in a hurry. I never felt rushed. My fitter seemed to have a set path to follow and did so confidently — which made me feel better, too. There was no uncertainty about any concern or problem I had — he heard the issue, considered it, then gave his assessment. Then fixed it, then asked for feedback.

Once that was all done, it was time to get on the fit bike and started turning the pedals. After putting on sensors on various joints, he monitored me and the various angles that my joints were making. He’d come up to the fit bike, made a change, and then see how that would affect the angle. It wasn’t a process of “is this better? Or this?” as I thought it might be. It was getting the angles within a specified range (based on years and years of collected data, I’m sure) and then going back to see what might be fine-tuned.

I won’t get into too many more of the fit details (you can e-mail me separately if you want them) but as for the stuttering, I managed to ask just a few things that were bothering me at the time — my hands were really hurting, my butt started to hurt after a while (he changed the saddle which took care of that issue quickly), where is my butt actually supposed to be on this saddle, and I asked for a fan to be placed back near my face since I was warming up. But that was really it. During the fit he gave some commentary on what was going on and how changes would impact my riding. Very informative.

I can happily say that the stuttering didn’t affect the fitting process at all. Win.

Bicycle Fitting and Stuttering

I’ve mentioned before my fondness for bicycling, and I thought I’d let you all know I’m traveling this week to Manchester, England for a bike fitting. Well, it’s actually in Newcastle, but the friend I’m staying with (and the airport I’m flying into) is in Manchester.

We have a few days off this week in Saudi for the Hajj holidays, so I thought it would be a good time to go. The problem I’ve been having is that after an hour on the bike my left foot starts going numb. Then the left hand goes numb off and on. Random back pain (probably due to not being in the greatest shape, actually). But the main thing is that I think my feet are slightly different sizes, and one foot is wiggling around in the shoe a lot more causing the numbness.

I bought the cycle-specific shoes I have now online. I ended up buying three pairs and returning two of them just to get what I thought was a decent fit. For the first few months I had them, I was only doing an hour or less on the indoor spin bike. So I never noticed or really felt any discomfort. But when I started riding with other people — and doing much longer rides — the pain started.

Anyway, so … stuttering? Right. The point is that I’m going to use a bit of vacation and a bunch of money to travel to England for what’s mostly a bike-fitting holiday. They’ll put me on a Retul Muve bike and get me sorted out. I’ll have to … answer questions. And pose questions (I’m sure) to get the fitting and comfort right. That means saying what’s on my mind and not holding back. That’ll also probably mean using specific words no matter how hard they might be to say at the time.

Honestly though, I’m actually not thinking about the stuttering right now. I mean, I’m not imagining the conversation ahead of time, what he might say, what I might say, what I might have to ask … just … no. Not doing that.

I know I’ll have to talk, but I think my mind will likely be on pedaling and thinking about comfort and responding to slight changes they make for me. Maybe it’ll be like the optometrist — what’s better, this … or … this? First one, or … second one … or … third? First or … third? Now … ok… third or … fourth …

This all being said, I’ll definitely give a little wrap up on the whole deal to let you know how it goes.

Cycling and Stuttering

Continuing from yesterday …

She got a house number. Let’s say it was 540. Ok. I headed out the door. As I was walking over to 540, I saw a guy walking toward me. He had skinny legs. Could this be one of them?

I said hello to him and asked him if had been riding on his bike earlier. I said all of this, and I stuttered badly. But I wanted to just stop him and start talking before I could think twice about it.

I kept talking to this guy. I kept on stuttering. A lot. I was not happy with myself. But I eventually strung a few decent phrases together. He didn’t laugh at me or look at me strangely. He did mention that his boss rode. Ah, so now we’re getting warmer. He pointed in the direction of his house. That’s where I was going. I was on the right track.

I said goodbye and headed over to house 542. That’s right. I was off on the number. So I went to the wrong house (but didn’t realize it at the time.) Again, before my stutter could protest (we just stuttered so much with that last guy!) I knocked on the door. No response. Another knock, still no response.

Well, I tried. Maybe I’ll track them down eventually. But before going home, I went to the first house I knocked on. Might as well try again.

The door opened. Oh crap! What was I going to say?

I stuttered a lot. I asked if they had gone out riding — well yeah, the bike is right there. The guy was nice and invited me in. I introduced myself and stuttered while doing so. He stood there patiently. He told me about the other guy and how long they’d been riding. He didn’t acknowledge the stuttering either. Awesome! We sorted out how far and how fast and well, they’re heading out tomorrow morning, so would I like to join? Yes!

The next morning I headed out with them for a ride. They talked, I talked, I stuttered, they didn’t mind. And it was a beautiful morning. The miles ticked by quickly. And we’ve gone out a few more times since.

Being out there and stuttering is still a new concept for me. But as I get older, my patience for my stutter grows less and less. Sometimes I just want something, and I’m not going to use stuttering as an excuse.

A Hundred Stuttering Posts!

So here we are at a hundred stuttering posts. Thanks of course to all the visitors from 66 different countries who have stopped by. I think things are still going pretty strong. It’s getting difficult to post every day (not through lack of ideas, mind you), but hey, a few times a week is still pretty decent, right?

I put this two-part story below together for Tom over at Stuttering Brain as a guest post, but he ended up being busy and didn’t put it online … so I’ll share it here instead. I think it sums up nicely where I am with my stuttering and being determined to push through it when I really want something.

Please keep on reading, commenting and sharing! I appreciate any and all feedback.

Cycling and Stuttering

I’m someone who stutters, and I’m someone who also likes to ride my road bicycle. But when I came to Saudi Arabia more than three years ago for work, I didn’t know anybody who also rode. And since I was a covert stutterer, I didn’t really ask around too much either. I would occasionally go on solo rides on the wide open roads we have in our small town, but I missed the camradarie of riding with even one other person.

One Friday morning just a few weeks ago I was coming back into the compound with my family. I saw something strange. Two guys. Road bikes. They were also heading back into the compound. Finally! Other people who rode! I was in our car, about 500 feet behind them as we went through the security checkpoints. My wife knew about my cycling angst and thought I should go up to them and find out who they were. Yes, I needed to find out.

Excuse time. Remember, I’m a covert stutterer. Pulling up to cyclists in a car would necessitate an immedate greeting and question. They probably wouldn’t stop. I’d be stuttering. It’d be horribly awkward. What to do? I was trying to figure it out as they pulled away — I had to stop for some checkpoints that they sailed through.

I was getting angry and frustrated with myself. Here it was, the perfect opportunity to go riding with some guys, and my stuttering was getting in the way. Unacceptable. We followed them into the compound, but they split up. After parking the car, I thought I saw one of them go into a nearby house, but wasn’t sure. Great. Thanks stuttering. Thanks a lot.

As we got out of the car, my wife said she thought she heard a door nearby close. Oh? I was angry enough at my stuttering that I said to her, ok, you take the kids and go to our house, and I’ll catch up. I went over to the door that she said was probably it.

I knocked. No response.

I knocked again. I had no plan on what to say. I just wanted to start doing something before my stutter protested.

No response. Oh, fine. Still angry at myself. I went back to my house and told my wife that nobody was there. She mentioned that she knew the security guards pretty well and that she could call them and find out. Really? Yes, can you please call them? I felt like a coward for not making the call myself, but I’d make up for it soon enough.

To be continued …

Summing up a Day of Stuttering

For the past three posts, I’ve outlined a hypothetical day in the life of a cover stutterer. I wanted to show how easy it can be to hide your stuttering from coworkers and friends. By “easy,” I mean doing things to minimize talking and interacting. All the mental planning to do so is certainly not easy and quite exhausting at times.

Here’s the Morning, Afternoon, and Evening.

Let’s review some of the actions from the entire day. Most of it was probably pretty obvious. For those of you who stutter or are covert, you can laugh and nod along. For your friends and family, I hope they see how sneaky we are really being. And what might seem like a “quiet” person may in fact be a covert person who stutters…

After about an hour, his buddy comes by and asks about going downstairs to the cafe for some coffee. They both go down, and when his buddy orders, he follows up with “the same.”

The nice thing about having a work buddy is familiarity. For me at least it’s easier to talk to them, and I don’t stutter as much. But then again, the pressure is also on in speaking situations to not stutter in front of them … even though they probably already know. The interesting thing about a drink order is that after a while, you’ll justify to others why you like it so much — even though several months ago you didn’t want it in the first place. It’s all you could pronounce. Small stores are also nice because you can just collect your snacks and drinks and put them on the counter, quietly giving cash or a card.

Back at his desk, he pulls out the power bill. Thankfully he sees that there’s a Web site on there.

Yeah, it’s 2014, and this is certainly possible. But not necessarily for every utility company. In the past, depending on the fee or problem, I would just let it go instead of calling to correct it. This is of course is annoying because on just about every personal finance page they talk about calling your credit cards and asking for reduced interest rates. Or calling your cable company to ask about a different package to save money.

Before going to the staff meeting, he prints out the spreadsheet that his boss will review during the meeting.

For me being prepared and comfortable with a situation reduces the stuttering possibility. I’ll know what I’m talking about. I can say, and hold up a piece of paper, yes, it’s been done. The other good thing about being organized is being able to bail out a coworker who isn’t.

He’s got a dentist appointment on Wednesday afternoon. But he’ll just send an e-mail to his boss who should be cool about this.

Yeah, because saying a “d” word during a staff meeting would have been pleasant …it’s also easier to e-mail a reason, date and time than say it.

“Can we talk about this?” The other person responds, “Eh, well, I’ve got a meeting in a few minutes, so …”

I don’t do this that often, but there’s the cousin of this action — checking a calendar, finding someone busy, and then calling them to leave a voicemail. (painful in and of itself, but maybe you just hang up and then they’ll see your number.) The evasive maneuvre above is high risk, high reward, though. The person could easily just have said, “yeah, let’s talk. I was going to go to a meeting, but they cancelled it.”

Our PWS offers up the fast food place, “I ate healthy over the weekend,” but his buddy turns it down, “I didn’t.” Ok, well then how about no. 4 — we can get sandwiches there, and it shouldn’t take too long.

Ah lunch. A special kind of social pain. Again, this is a high risk, high reward tactic. Ordering fast food is also pretty nerve wracking. So his buddy could have agreed to it. But remembering what they did last week (maybe a lot of fast food) and maybe a text or two from the weekend about his buddy’s activities, he figured it was worth a shot. The restaurants were definitely not a viable option — having to talk to people — unnecessarily. And option 4 — I’m looking at you, Wawa and Sheetz, with your glorious touch-screen sandwich-making awesomeness.

Our PWS dials the number. As it’s ringing, he swings his chair towards the side of his cubicle and begins going through some folders.

The other option of course is to let the person who you called pick up, and then not say anything. And just look at the other person in the room like, “um, if you want to start talking right now, that’d be super helpful …” The best part is they’ll often say into the phone who they are as well as who you are! One less time of having to say your own name!

Our PWS whips out his iPhone and pulls up the pizza place’s web site. He puts in an order and hits submit.

Our PWS could have pre-empted this by asking on the invite call — should I stop by somewhere and get anything? Or, can you order pizza/sandwich for me? I’ll admit that no, there aren’t too many pizza-ordering apps out there. And maybe the local place doesn’t have an app after all. What our PWS would do in this case is maybe search around online for coupons to the local pizza place (but not call). Then when the buddy comes back from his errand and asks what’s wrong, say, oh, nothing, just looking for a coupon. Or do you have any? No? Then push it onto the buddy to call because it’s his place and he knows his own phone number and address …

Our PWS quickly gets up from the couch and walks to the kitchen to talk.

He’s being polite! He doesn’t want to interrupt the tv-viewing experience of his buddy.

They do this off and on for the second half of the game.

By doing this, he’s staying connected to his family without the added stress of the telephone. And it’s become such a regular thing, that his family doesn’t make a big deal out of it.

So there you go. Day after day, week after week … and so on. Pretty soon you can avoid having to talk to people without too much effort.

Days without Stuttering

Many years ago, after learning how to drive, I learned something else: that you have to pump and pay for gas. It’s simple, yes, but of course it’s an additional interaction that I had to deal with. More stuttering.

In those days (Let’s say the late 90s when I was leaving high school and getting into college) you’d pull up to the pump, get out, pick the gas you wanted, pump it, hang the pump back up, and then walk inside to pay. All the pumps had numbers, so you simply told them what number pump you were on.

Tell them. Numbers. Easy words. Not many words. Just one, really. Maybe a hello first.

I hated this. Some of the numbers were easier to say, sure, but you never knew how many other cars were going to be there. And you never knew how many other people would be standing in line inside, waiting to pay for sodas and Twinkies. And of course it was like, why would you hesitate on this answer? They’d ask, you’d say. How can you not know? The number is right there — it’s huge. And if there was a line, you’d feel the pressure of that as well.

Miraculously, a few years later, most of the pumps started to change. They took credit cards. I had a credit card. You swipe, pump, and go. No talking. No pointing helplessly. No anxiety. Swipe, pump, go. Swipe, pump, go. Everything should be this easy!

Over the past few years a lot of things have become this easy …

So over the next few days I wanted to write out a thought experiment of sorts — morning, noon and night as someone who stutters but has decided to not talk to anybody for anything. What would that look like?

I think it’s important to consider technology in our lives and what it can do to help those of us who stutter. If I have 30 activities in a day, I can choose a path where I don’t talk to anybody for all of them. The next day, I can challenge myself. I can talk on one of them. Then the next day, two, and three, and so on. I can slowly build confidence on my own terms.

Another way of putting this is to show people (those who don’t stutter) just how easy it can be to be a covert stutterer. (Note — I’m not talking about the emotional stuff — just the interactive stuff.)

Your Stuttering Associations

The second thing that I picked up from Tom is closely related to the first but slightly different:

2. During the stutter, we feel that if we are stuttering, it’s a negative situation. Thus, we make negative connections with situations. Then avoid them in the future. However, these connections can be broken and positive associations made.

Whereas the first thing I talked about — theories — is more of a drawn out, lots of thinking approach, this is more of a gut feel. These are the results of actually having engaged and stuttered in a situation. These are ones we don’t even bother thinking about anymore. With the theory, we talk ourself out of calling the credit card company or approaching a stranger. With these associations, we either make a quick excuse to friends first, or just change the subject or walk away.

For example, if we are listening to a radio station, and they’re asking trivia questions. And you know the answer. Eh, whatever. Not going to bother calling in. Of if the teacher is asking for volunteers for some kind of speaking role. Or if you’re in a room full of mostly strangers — you just hang on to the those who you know and talk to them.

The point of this is that these are all negative associations we have built up. But what Tom said is that they can all broken. And not only that, but they can be built again in a positive fashion.

Again I’ll reference my France trip — I went up to a stranger in a small town. Sure he was an older gentlemen, but a stranger nonetheless. I didn’t want to. I didn’t have to. But I did. I made a connection. I spoke, I stumbled, but overall it was positive. Score one for talking to strangers.

Is it a long process? Oh yes. Is it pleasant? Probably not. But can it be done? With enough work, yes. We can go from not wanting to pick up the phone to hesitating to pick up the phone to picking up the phone. These are small victories, but slowly those associations and pathways are being rewired. As I said yesterday, the world isn’t going to end.

I suppose one thing I could do to nerd this up a bit is to make it objective, put it all down on paper. I write down those situations that scare the crap out of me (still). Write down the experiences that I can remember that make now feel this way. (I bet I would struggle to do this). And then seek out opportunities to engage people and change my negative associations.

It would also then be worthwhile to write down all the positive experiences. And weigh them against the negative. I know it’d be way out of balance. I know the stuttering isn’t a big deal for the casual listener. But it’s so engrained that it’d really take a lot of practice to change my own perceptions. But I’m willing to do that.

Are you?

Your Stuttering Theories

So here’s the first part of what I got from Dr. Weidig, the Stuttering Brain

Before the stutter, we imagine what horrible things are going to happen to us if we stutter and if we are found out. But that’s just a theory. And theories should be tested.

What do we mean by this? Well, it’s rooted in fear and shame. We have fears of speaking and feeling humiliated. We are ashamed of our stutter, and how we are not perfect. So what we do is dream up scenarios (often elaborate) of why things will go south if we open our mouths:

1. If I call about reducing the APR on my credit card, they will ask for my name and date of birth. And other numbers. I don’t want to stutter through them. The APR is fine.

2. If I ask the police officer or security person for directions, he might think there’s something wrong with me. He might start asking me questions that I’ll stutter on. Better to just try to find a map and figure out where I am by myself.

3. If I ask the stranger on the subway next to me how to make a transfer, I might stutter. He’ll think I’m weird or on drugs or who knows what. I’m better off staring at the map and trying to figure it out myself.

4. If I advertise my stutter during an interview, they might not hire me. I’d better just suck it up at my current job.

5. If I speak up during a company meeting, my colleagues will think less of me. I’ll just stay quiet.

And so on.

So these are all theories. They deserve to be tested, no? Why not just speak and see what happens? Either what you think will happen will happen, or the opposite will. If it’s the opposite, then you got the information. You made a connection. You make your life easier. You conveyed information successfully. You’ve boosted your confidence. Your colleagues went up to you after the meeting and thanked you for speaking up and saying what they were all thinking.

If you stutter and crash and burn, so what? Did you die? No. (Tom made a strong point about this — it’s our caveman reaction to run from fear and avoid it. But we’re just talking. We’re asking for no whip on our venti nonfat mocha. We’re not facing down a mastodon). Did the world come to a halt? Did everybody at the Starbucks suddenly stop sipping and stare at you while you stuttered out your order in line? No, of course not.

I loved this idea because I really lived it while in France. I would go up to the bakery or whatever, roll out a “bonjour,” and then think of what I wanted and what I wanted to say. I was testing out theories. And in all cases, the world didn’t end. I didn’t get deported. My friend didn’t look at me funny. I got what I wanted when I tried to order.

Most importantly, I still want to go back and speak more.

Meeting the Stuttering Brain

After the shenanigans in France, my buddy and I headed up to Luxembourg to meet Tom Weidig of the Stuttering Brain. And yes, it was a full-on stuttering vacation, complete with three countries and plenty of people who stutter.

I met up with Tom, and he gave me a great walking tour of Luxembourg City. What I noticed first was that Tom stuttered, but he just plowed on through, still talking, still communicating. And none of it bothered him. I was still getting used to listening to other people who stutter, but this was inspirational for me. Tom didn’t slow down one bit in his tour (he also walked pretty fast) and as someone whose family is from Luxembourg, he had a lot to tell.

We ate dinner, and he shared his thoughts about stuttering and his attitude toward it. A lot of what he said echoed the workshops during the NSA conference. But with Tom, it was more direct. It was great to meet and talk to someone who had such a healthy relationship with his stutter.

After dinner we walked through the city some more. Tom even tried to find someone who he knew just so I had to introduce myself! Fortunately he wasn’t successful. We had some ice cream — I ordered what I wanted — and then we parted ways.

Let me briefly summarize my understanding of Tom’s points on Stuttering. Then I’ll get into them more this week.

He didn’t state them this way per se, but after thinking more about it, it follows a natural sort of course.

1. Before the stutter, we imagine what horrible things are going to happen to us if we stutter if we are found out. But that’s just a theory. And theories should be tested.

2. During the stutter, we feel that if we are stuttering, it’s a negative situation. Thus, we make negative connections with situations. Then avoid them in the future. However, these connections can be broken and positive associations made.

3. After the stutter, we feel regret or shame. We identify ourselves with the stutter, and thus become covert. This becomes who we are instead of our true selves. Thus, we lose our authenticity.

You can see how they are tightly connected and flow into each other.

What I really enjoyed about Tom is that I felt challenged after talking to him. Everything he said was clear and made perfect sense. Everything he said could be put into practice to make myself more accepting of my own stutter.

Stuttering in France Part 3

Chasing the Tour wasn’t too difficult for these early stages — the peloton traveled on smaller roads near a larger highway. So right after Epernay, we made for the highway, and made as much time as we could.

We looked at the map and found a small town — Fresnes-en-Woëvre. It was sort of near the highway, and the peloton would be there shortly — there is a timetable on the Tour’s Web site. So we parked up about 200 meters away and walked over to the route.

There were a bunch of people from the small town just standing around. No cars were going through yet. As we walked around a little (to take some photos of sunflowers, etc.,) we ran into an older man. We said hello, but he realized that we didn’t speak French. And he called to some people across the road — in French, he said we don’t speak French! And did anybody speak English? No!

Ah, here was my chance! So I said to this older man (in French!) that yes, I did speak French. He was quite surprised! So, in whatever French I could muster, I explained to him that we were from America, we were here to chase the Tour, and that we worked as engineers. I also said we just arrived yesterday, and that we would be leaving tomorrow. (Yeah, I know, it’s real simple stuff. But seriously, this was a huge win for me).

Then he began talking, and it was a bit difficult to understand. But I did make out that he was retired, and he had worked with disabled children when he was working.

And that was pretty much that!

Did I think about stuttering at all while talking to the old man? Not really. I was more focused on what I wanted to say and making sure I had some sort of accent so he would understand me. If I didn’t say something, it wasn’t because I was avoiding — it’s because I flat out didn’t know how to express myself.

But just to review: Did I approach a complete stranger? Yes. Was I anxious about it? Yes. Did I stutter? Eh, maybe a little. Did the world end? No. No it didn’t. Positive reinforcement.

We had brought along a large American flag to wave around on the side of the road. Using a tour tracking app, we found out that American Matthew Busche was in the breakaway! So as they were about to go past, we busted out the big flag and screamed Matthew’s name. They went by in a blur, but it was still really exciting. A few moments later the peloton went by.

Then we hustled back to the rental car, checked the map, and pointed ourselves toward Pannes.

Stuttering in France Part 2

I know the expression “best day of my life” gets thrown around a lot, but hey, sometimes it’s appropriate. Of course there are the standard ones, birth of children, graduation from college, first job, etc., and so on. So let’s just throw this in the Top Ten of other stuff that doesn’t go in those categories.

And yes, one of the best days of my life involved talking to strangers. In a foreign language. And being anxious about stuttering. Continuing on yesterday’s post …

On our second day of chasing the Tour, we woke up in Reims and then drove down to Epernay. This was nice because the hotels in Reims were cheap that night! And it was easy to make the drive. Not too much traffic. We tried to get as close to the center of town as we could, but didn’t have any idea of where to really park or be. No matter. Just park about 2-3 km away and walk down. We got there pretty early — maybe around 10 — so we had time to walk around, get some food and take in the crowds that were already forming.

Before the riders pass through, there is the publicity caravan. They get going really early. So we stood around and watched them go by on the course, throwing out little samples and other stuff.

After that we noticed a large empty parking lot. We didn’t know where the teams were though — the buses? Were they parked up someplace else? We didn’t have any kind of local map or guide book to help us.

But after a while I figured, no, this giant parking lot is where the team buses are going to go. But when? Let’s let the stuttering try to take over:

Stuttering: Look, you already figured out that the buses and thus the teams are going to be here. Why do we need to talk to anybody?
Me: Because maybe they won’t be. Maybe there’s another parking lot within walking distance. It’s entirely possible.
Stuttering: No it’s not. C’mon. Think about it.
Me: Ok, smartypants, then when are the teams going to be here then?
Stuttering: They’ll be here when they’ll be here. Be patient.
Me: Unacceptable!

I saw a security-guard type fellow standing near the entrance of the parking lot — the parking lot led into a VIP-looking area. There were some other tourists milling about and talking to the security guard. I didn’t want to ask him something in French when people were around. (So, see, here we go — I’ll speak a foreign language to a complete stranger, but dammit, I’ll do it on my own terms.) Suddenly the security guard was alone, and I moved in quickly. My friend was right next to me the whole time even though I said, “hang on, let me check something.” I think my friend just wanted to hear the exchange.

I asked the security guard, in French, where the teams are. He said they would be here, in this parking lot. When, I asked. He said at 11 (I remember understanding the answer — pretty sure it was 11 … or maybe he said thirty minutes?). And that was all we needed. Ok! So, high school French used without issue! Did I stutter? No? Did I think about stuttering? A little — the anxiety part. Did I think I was going to stutter? Yes. But did I? No. So did anything bad happen speaking a foreign language? NO! Confidence boosted.

We then walked around to the other side of the parking lot, and when we got there, the buses started pulling in. Perfect! Apparently the parking lot was a wrist-band only VIP type area, but some of the buses parked along the perimeter fence so the public could walk right up. That’s where we were. First the mechanics came out to set up the bikes, and then a few riders came out to do interviews. As a cycling fan, it was all a dream come true!

After milling about for nearly an hour, we walked a block to the course and took up a spot with thousands of others. The peloton slowly rode by (they were still being neutralized) and then we ran back to the car to drive out into the French countryside and wait for the peloton to roll by again.

Next stop: Fresnes-en-Woëvre, and a lot more French speaking.

Stuttering in France Part 1

So after going to the NSA Annual Conference, I flew back to Saudi. But on the way, I stopped off in France for two and a half days to catch the Tour de France. I’m a casual cycling fan and like to get out on my bike as often as possible. Watching the Tour in person was something I’ve been hoping to do for many years.

I talked my best friend from high school into coming for a few days as well. The more the merrier. The plan was pretty simple — we were going to catch two of the earlier stages — flat ones — and that’s it. I wasn’t interested in seeing Paris or any specific tourist trap. All I wanted was to see the peloton a few times.

With regards to stuttering, I was somewhat juiced up by the workshop where others talked about stuttering in foreign languages. And how we all deserve to speak a foreign language. Yes!

Before even going on the trip, I talked to the French couple who I met here in Saudi. I actually practiced some French with them — what I wanted to say at the rental car counter. I wanted a Skoda! (all the Tour cars are Skodas … so … yeah, I dunno. Seemed like a nice idea). Anyway, when I was talking to them, they told me my French was actually pretty good.

I didn’t go to France with any specific amount of French that I wanted to speak, but I wanted to try at every opportunity.

The first chance was at the rental counter. I got a few words in — hello, I have a reservation, here’s my passport … and then she realized I was American and spoke English, sot he rest of the transaction happened in English. No problem. We’re making progress. The other positive thing that happened was that she said she didn’t have the specific car I wanted. But I didn’t back down. I wanted a stick shift car, and well, not the VW Beetle she had. She looked and said it would be tough. Please? I really want this type of car. Ok, so she found something, but it was at the next terminal. Can I go over there? Well, I have some time before my friend arrives, so can they bring it here? Yes, they can. Super.

Since I had taken French in high school, I was able to read and understand mostly everything in and around the airport. I was pretty comfortable and very happy about it. I was also thinking I could make a life in France work …

After my friend showed up, we drove straight for a small town (he took Spanish in high school, so was completely useless with regards to … reading anything). We parked up, strode into town, and waited for the peloton. While standing there, we turned around and realized we were right in front of a bakery. Hungry! So we headed inside, bonjour, s’il vous plait, and well, they’re speaking English as well to us. But I wasn’t letting the stutter get any advantage at all.

The rest of the afternoon and evening was much the same — a little French at the beginning of an interaction, and then they started speaking English. Maybe they were practicing as well? No. Probably not. But I liked the confidence that knowing French gave me in France. And I felt more comfortable because everybody was speaking French and making it all sound normal.

During my French classes in high school, it all seemed so … textbook. And there was no “reality” around it — back in those days before the Internet (as it is today) we didn’t really watch any French speakers on YouTube or shows or anything like that. So it remained very … foreign.

Tomorrow I’ll get into Friday in France. One of the best days of my life for a variety of reasons — including how I spoke to a complete stranger (in French!) and other authority figures.

Stuttering and Exercising

I got up today and yesterday at about 5 a.m. to head out for an early bike ride with one of the guys here on the compound. I really enjoy going out for a ride.

However, it’s been really, really hot here. About 100F early in the morning, and 110F or more by mid-afternoon.

I’ve been exercising inside (in the evening) for the past few days because I knew this ride was coming up.

Here’s the thing — I could have made excuses on Friday about not being fit enough to go out. Or being too tired. Or lied about having a mechanical issue with my bike. Or expressed concerns about the heat. My friend would have forgiven me and gotten on his way, doing the ride alone. No hard feelings.

But Friday morning I got up. And within the first five minutes, I was so happy I did. This kind of thing always happens. I dread having to wake up and get ready. But when I’m out on the road in the silent morning, I’m glad I did.

Friday ended up being a little rough for me, but I got through. I could have made excuses for Saturday. But I sucked it up and headed out.

What’s the point? Well, I was thinking about how this is like stuttering — you can easily avoid a situation. You can easily make excuses, and you can easily walk away usually. You don’t have to talk. You can send that e-mail or text. You can drive by a business (or look it up on the Internet) instead of calling it for opening hours.

For me at least getting past that first painful stutter is always the hardest part. After that it doesn’t get “easier,” but it gets better. I take a breath. I slow down. I smooth things out. And then I’m glad I went through the pain of that engagement. I’m glad I picked up the phone. I’m glad I introduced myself.

Authenticity in Stuttering

Onto the penultimate workshop from the NSA Annual Conference.

I attended Authenticity: Stuttering’s Greatest Gift.

What I got from this workshop was that we need to stay true to ourselves even if that means stuttering and not being as covert as we would like. If we’re covert, if we’re hiding, if we’re avoiding, then that’s not really who we are. We aren’t saying what we want to say. We’re not engaging with who we want to talk to. We’re not standing up for ourselves in our times of need.

Obviously being 100% authentic as someone who is covert and who wants to be overt isn’t going to happen overnight. They talked about weighing the costs of being authentic. How important is this issue that you need to speak and struggle?

Emma made a comment to the group that I thought was very interesting, and I’ll use my own name — “Rehan who stutters is not the same as Rehan who has a stutter.”

My understanding of this point (and what they said at the workshop) is like this — we attach a lot of labels to ourselves: Engineer, father, husband, American, photographer, etc., But we also add “stutterer.” And what happens is that instead of seeing all of those labels and those traits, we only shine the light on the stuttering. But it should be only a part of who we are. What I started thinking is that as someone who stutters, other people are only ever shining the light on the stuttering. And that bothers me.

But it turns out that no, I’m the one shining that light on my own stuttering. It’s me who has issues with stuttering, not anybody else. They have their own problems!

It almost seems like the stuttering permeates every other trait. I want to be a better photographer, but I’m afraid to engage with experienced photographers to get better. I am a father, but I change words when talking to my kids. I am a husband, but I don’t always communicate clearly and concisely with my wife.

The key I think is to isolate the stuttering and kick it out of everything else. Deal with it on its own. But obviously that’s pretty tough to do.

Stuttering at the open mic

The second workshop on the second day was Open Mic.

It’s a simple premise, really. There’s the microphone, a room full of conference-goers, and that’s it. So you suck it up, take the mic, and start talking. To a bunch of strangers. About whatever you want.

Deep breath. I’m doing this, I’m doing this, I’m doing this.

I walked in there with someone who I met the first day. After the host explained the deal, my friend stood up and took the mic. Just like that. He didn’t even think about it, he just did it. Again, seriously? This is how people are rolling here?

After he was done, another hand went up, another person got up to speak. Everybody stuttered. Everybody in the audience listened attentively. I sat there in awe. Yes, I had just been to a few workshops where people made comments and stuttered. Or the presenters stuttered. But here are a bunch of people just getting up and putting themselves out there. Strangers to strangers.

About half an hour in, I looked around the room and started doing the math. There were way more people in here than time allowed. There was another open mic event later in the conference, though. I started making excuses in my head. The covert in me made an appearance and started making really persuasive suggestions.

No.

I came here to listen, yes, but I also came here to talk.

I put my hand up after someone finished. Don’t think about it. Just stand up and get up there. Start talking. Stop thinking so much.

I had been doing some thinking while in my seat. What would I say? I would talk about how I told my friends I would be attending a stuttering conference. And how all of them said the same thing — that they knew I stuttered, but it didn’t seem like a big deal to them (or me). But of course it was.

So I got up there. And tried to introduce myself. And stuttered. And then I started in on this little reflection. And stuttered some more. And more. But again, nobody reacted negatively. They just sat there and listened. I kept things short, and then sat back down. That was it. I felt good. I had faced the stuttering head on, and it didn’t do anything to me. I lived through it.

What was becoming a little alarming to me was how badly I was stuttering during the conference. This public speaking attempt really highlighted it. But then I thought, well, I’m definitely out of my comfort zone, I didn’t prepare anything, and I barely do any public speaking to strangers anyway. And oh yeah, you do stutter, and that’s not going to just go away because you think it should.

All in all it ended up being a pretty taxing speaking morning. First making a comment at the bilingual workshop and now this. Between all the introductions from the day before, I had spoken more to a room full of strangers in the past two days than in the past year.

And through it all, nothing negative was happening.

Bilingual Stuttering Workshop

The first workshop that I attended on Day 2 of the NSA Annual Stuttering Conference was Bilingual Stuttering.

Again, I didn’t really know what to expect, and again, I was really impressed with the discussion and comments people made.

For me, I grew up in a bilingual household — my parents spoke Urdu as well as English. But I only picked up on the Urdu as far as some understanding. I rarely, if ever, spoke Urdu growing up. This was because others would usually laugh at what I was trying to say. So coupled with my self conciousness as someone who stutters, it was a receipe for never bothering to learn. And what was the point? Everything in the States is in English anyway.

In junior high and high school I took French. Again, I did pretty good “on paper” but rarely spoke because I was self-concious about how I sounded.

And now, here in Saudi, I’m surrounded by Arabic-speakers. I can read Arabic, but can’t speak or understand it.

So what did I take away from this workshop? The first thing that blew me away was that one of the presenters (a native English speaker who stutters) speaks a foreign language. At work. As part of her job. So, in front of clients, on the phone, the whole thing. I sat there in awe. Seriously? And here I am, afraid of practicing a few Arabic words at the office with friendly company?

Some said they stuttered while speaking another language, others said they didn’t. Some stuttered more because they couldn’t be covert — they couldn’t use another word to substitute because well, they didn’t know many vocab words.

I was sitting there getting a little nervous, though. I had a comment! And damned if I was going to come all this way and not say what I wanted to say. I was remembering the goals that I had set before the conference. Ok! So here we go.

Sutter, stutter, stutter, point sort of being made, stutter a lot more, nobody’s laughing, stutter, stutter, everybody’s just patiently waiting, stutter, stutter, make comment, ok, done.

Alrighty then.

What I managed to say is that I am afraid to speak in a foreign language because I know it won’t be perfect. And I want it to be perfect. I don’t want the listener to grab onto how I’m saying something instead of what the message is. This of course is a direct tie with stuttering — the person who stutters is afraid of how the message is perceived instead of what the message is actually saying.

I said that I needed to be more rational about this — it didn’t have to be perfect. Case in point, I’ve got a bunch of non-native English speaking engineers who report to me. Their English isn’t perfect. But they carry on anyway, not really caring. And I don’t care about how they’ve said something — and I can usually decipher the message.

Another important point they made is that we deserve to speak a foreign language. We don’t have to let our stutter get in the way of that, either.

Yes. I do deserve to speak the French that I learned. And Urdu. And Arabic. Need to get that into my head.

Another workshop done and another really great perspective on something that I had thought wasn’t going to change. I got a lot of encouragement and inspiration from those around me who were stuttering but still speaking foreign languages without any hangups.

This definitely had an impact on the trip to France that I took a few days after my Stateside vacation. But we’ll get to that in a few days.

This Is Stuttering

The third workshop that I went to was a movie, thisisstuttering.

It was made by Morgan Lott.

Now, remembering that I’m a covert stutterer who doesn’t like to talk about stuttering, I had never seen his movie. Or even heard of it. I only found out about it while reading the description in the NSA program.

So I didn’t know what to expect.

I hadn’t even read this which is on his site:

Morgan is a filmmaker from Simi Valley, CA. During the summer of 2012, he began another round of speech therapy with a new speech therapist, Mrs. Alyssa Lukiewski. Upon her asking Morgan to film all of the sessions and weekly vlogs, simply for her own usage in studying her client, Morgan realized he was filming a fascinating documentary on accident. thisisstuttering has already drastically changed his life and he hopes the story will encourage and motivate others not only with stutters, but in any difficulty life decides to through our way.

This isn’t going to be a review of the movie. It’s more of my feelings during the viewing. That being said, the movie is basically about Morgan and some “confessionals” during his time in speech therapy. There are also numerous shots of him stuttering — out in public, on the phone, etc.,

My thoughts? Wow. Just, holy crap. He is out there, he is on video, and it’s forever! I really, really hate hearing myself on tape (or mp3, I guess) and seeing myself on video. (That’s why I haven’t done a YouTube channel or Podcast) I’ll leave the room if a video of me comes on (even if I’m not stuttering in it). When I’m making videos of the kids, I don’t even like to talk. If I do, it’s slow and very deliberate. And I make sure I won’t stutter. If I stutter badly enough. I’ll delete the video. That’s right. My stuttering supersedes childhood memories that will never happen again. That being said, I’m getting better — if it’s a little stutter, I’ll let it go. I suppose my kids may appreciate a nasty stutter when they’re older though. That’s how dad is.

Back to Morgan’s movie.

I’m watching this movie, and all I can think of is, well, that’s my life right there. He’s on the phone, stuttering to say a word. He hangs up, turns to the camera and says the word without stuttering at all. Over and over again. And just shakes his head about it.

What was amazing is hearing what he said about the movie afterward. Particularly that these snippets were all never to be seen by anybody else. And yet he had the strength to put them together into a really powerful movie. He also talked about how vulnerable he’s felt since making the movie and being out there. That’s an insane amount of courage. I mean, I’m only writing a little blog — put to make a movie and put it forth for festival consideration — chapeau.

(When Morgan stood in front of us after the movie was over to talk, I had the same thoughts that I did about the previous presenter — he’s hardly stuttering! But then he talked about how he’s been doing these presentations for a few months now. So again, confident and familiar.)

For someone who stutters, there’s nothing new or earth-shattering here regarding treatment or putting yourself out there. But I think if you’re fluent and want to know what stuttering is like, this is a perfect place to start. If you don’t stutter but know someone who does, you might hear a few minutes of their stutter here and there. Maybe every day, maybe only once or twice a week. And not think it’s a big deal. (And if your stuttering friend is trying to be covert, they’ll likely stutter even less). But thisisstuttering strings it all together and shows just how emotionally taxing stuttering is.

Stuttering your way to financial ruin and social ridicule

The second workshop that I attended had the subject title and was done by Steve Brown.

For the record, here are all of the descriptions for these workshops — so you can read the description on there of who Steve is and what this was going to be all about.

Alright, so I had just come from the First Timer’s Workshop and was feeling good. I was feeling good about jumping into the deep end and actually going to this conference. But I was mentally taxed a good bit already — I usually have to stutter our my name once a month (or even less) — and I had just done a year’s worth of really rough introductions in less than an hour. Thankfully everybody had name tags, so even if I forgot someone’s name, they happily pointed to it. They also had our hometown on there. Mine was listed as Lancaster. That’s true, but I’m living in Saudi now … I can’t remember if the registration form had that space on there or if they just used the billing address for our credit card. Anyway, at first during the first timer’s I wasn’t saying much about my hometown. But by the end of the conference, people were pretty surprised that I was living and working in Saudi.

I walked from the first workshop to the second — and had to go past hundreds of other conference-goers to do so. Should I have been jumping in again and introducing myself? Yeah, probably. But the old me was still leading the charge. You’ve just stuttered your head off! Look at these people! You stutter still! Avoid at all costs! Go put on more deodorant, too!

Ok, ok. Fine, but we’re going to meet some new people eventually, dammit.

I went into the next workshop room and assessed the situation. Smaller room. The speaker would be standing up front, so he might call on me if I sat in front. Unacceptable. But I can’t sit in the back! No! I didn’t come all the way here to hide in the back. I’ll sit in the middle. Should I slide in next to someone who I know? I don’t know anybody. What about a stranger? I could meet someone here, right? You will! No, let’s just sit down and see what this is all about.

Let me just summarize what Steve ended up talking about — his stutter, how he overcame it through really hard work, and how some of those techniques to avoid and use other ways to communicate made him stand out from his peers. He also talked about the importance of body language and setting ourselves up for success before our mouths are even open — don’t slouch! He told us to focus on the message, not the stutter.

Body language is something I really need to read up on. I find myself slouching or tightening up my shoulders all the time. I’ve been trying to practice more eye contact as well.

I liked Steve’s talk. It was funny, it was upbeat, and I could definitely relate.

But as a first timer, there was something off (for me). Something didn’t add up.

I mean, I’m sitting there, someone who stutters, and this guy says he does too. Yet he’s fluently telling us about his past and present. He’s easily walking back and forth on stage, making eye contact, telling jokes, waving his hands here and there.

But then that was the point.

I started thinking about it more — he’s done this before. He’s told these stories before. He’s confident with his material and being in front of people. That was inspirational for me. That could be me. I want to be up there telling my story some day.

So what did I take away from this? Well, that your stuttering really doesn’t have to stop you from your goals. That you can either stutter openly and fight through it, use alternate communication methods or a combination of the two.

(Also, looking back on it, I should have taken more detailed notes — but hey, I’m learning for next year.)

Just for reference, on the first day of the Conference there were 17 workshops across three timeslots. This is a lot of the reason why I want to go next year (and forever after) — I saw a bunch of stuff on the program that looked/sounded interesting that I wasn’t able to attend.

Link Roundup – Who I Met

Alright, I’m going to do two days of link round up goodness. Today will be a look at the people who I met at the NSA conference. I’ll have to update my Resources pages as well …

Tomorrow I’m flying out from the States to France for 3 days. Going to chase the Tour and meet up with Tom from The Stuttering Brain over in Luxembourg. It’s turning out to be quite the stuttering vacation. I will certainly try to set up some entries to post during my European adventures.

Ok, so first up is Pam from Make Room for the Stuttering. She spoke at the First Timer’s workshop, and I talked to her a little bit there and during the conference. She also spoke at the online panel discussion listed below.

What really got me right off the bat at the conference was that the people doing the workshops mostly stuttered. They were just up there, saying their piece, stuttering, smiling, and carrying on like it’s another normal day at the office.

Here’s a look at some of the leadership who were at the conference.

On I think what was the second day, I met Ben North at the Starbucks in the hotel lobby. He was standing in front of me. The person behind me asked what this conference was all about, and Ben replied. I thought, well, here we go, I’m here to meet people, so let’s keep meeting people. My usual state of sweating and being nervous surfaced, but Ben responded as everybody else did at the conference — with patience and understanding.

I was on a panel discussion hosted by Katie Gore regarding online communities for stuttering. Katie reached out to me through reddit. There’s a few people on reddit who discuss stuttering on a regular basis. Jump over there and join their discussion.

On that panel were:

Daniel Rossi, who wrote a book on stuttering. I bought the book and will start reading and reviewing it soon. He and Sam (below) work on Stutter Social.

Jacquelyn Revere. She’s started a vlog on stuttering.

Samuel was also on the panel. He talked about Stutter Social:

Stutter Social is an organization that connects people who stutter (PWS) through Google+ Hangouts. Participating in a Hangout is a fun, free, and safe way to connect with other PWS. Discussion often revolves around stuttering-related issues, but sometimes we just chat about our day or a good movie. We are a very welcoming and friendly bunch so don’t be shy and come join us whenever is convenient for you.

Not on that panel, but during the conference, I met Dhruv from the Indian Stammering Association. He’s working on setting up an annual conference for the Indian Stammering Association this October. Unfortunately I won’t be able to attend, but will find ways to help them out anyway.

I got to watch a movie about stuttering — not the King’s Speech, mind you. And no, I still haven’t seen that yet, either. Maybe I’ll finally watch it on the plane ride back to the Kingdom.

This Is Stuttering was shown during the conference. Watching Morgan stutter while talking on the phone during the film was just like watching myself. Morgan was also at the conference to talk about the movie and what has happened since releasing it to the public. If your friends don’t know what stuttering is like on a daily basis, by all means, send them the link.

Lastly, some people had mentioned going through therapy with the American Institute for Stuttering. I’m not going to pick one organization over another. I just happened to go to an NSA conference. My opinion is that the larger organizations are all there to help those of us who stutter, our parents, and children and teenagers.

So tomorrow will be a more traditional link roundup with stories from this past week and a half. If you’ve got any stories to share, do pass them along!

Excuses, excuses

Clearly I missed the Sunday link roundup, but I have four somewhat-legitimate excuses:

1. I’m on vacation … so I am constantly losing track of what day of the week it is. No, really.

2. I went to the NSA Conference (see above) and well, the losing-track was in full effect. I often didn’t know what time it was — no windows + not a lot of clocks = casino-like state.

3. Because of the conference, there are a lot more links that deserve a lot more time in researching, snipping and commenting on. So I don’t want to half-ass anything for you.

4. I actually spent Sunday with my old college roommate in DC after the conference. Then I drove the 2-odd hours back up to PA where I’m staying with my parents.

That being said, I was thinking pretty hard about the conference during that drive up.

I was thinking about my feelings before the conference — how I didn’t like the idea of going to a conference that was about everything I hated about myself. I hated the idea of having to meet new people. I hated introducing myself. I hated seeing the word stuttering everywhere. I never talked about it to others, never sought help or support, and just hated myself for doing it. Why was I doing this?

But then I went to the conference, and my attitude changed about everything. I saw and heard and experienced so many awesome things.

On the drive back to my parent’s house I realized that the NSA Conference did have a lasting effect on me: I didn’t hate anything about myself anymore.

Stuttering at the Conference Day 4 – Last day

Well today the NSA annual conference came to a close. It’s been a really amazing experience that definitely blew away any expectations that I had. I’m not sure what I really thought would happen before I showed up — maybe some seminars, sitting and listening, talking to a few people here and there.

It’s been so much more than that. Every workshop that I’ve gone to has really driven through the heart of my stuttering and given me new ways to look at it. There’s acceptance everywhere I turn here. Nobody finishes my words, phrases or sentences for me. They look at me, they make eye contact, and they wait patiently. I can say the words I want to say instead of the words that are easy to say. Nobody says stupid things like “did you forget your name?” or “you hardly stutter at all, you’re fine.”

Next year’s conference is in Chicago. I’ve already made up my mind that I’ll go. Whatever has to be done for scheduling, so be it. (Besides, many of the Middle East airlines fly direct to Chicago). I want to listen to others talk about stuttering again. I want to see the friends who I met over the past week. I want to be moved to tears — as I was twice today. I want to be mentally exhausted at the end of each day again. I want to scribble furiously in my little notebook as yet another speaker blows my mind with a new attitude or outlook that I never considered.

I want to meet new people, and I want to feel comfortable again in a room of a thousand people who get it.

I really wish I had gone to this conference when I was in high school. I’m not sure how different my life would have been, but I would have known that I wasn’t the only one. I would have known other kids going through the same experiences. I could have gone to seminars with adults who could have mapped out the next few years — the college years. I would have talked to people about all the uncertainty, the fear of speaking, and how it’ll be fine at the end of the day. I didn’t do all of that, but I’m doing it now. I’m 35, and I’m less covert in my stuttering as before. And that’s fine to come out on my own terms. And it’s even easier being here to see how others have done it, and how others have embraced it.

I’m going to go back over my notes over the next few days and see about how to relive some of the magic … I think I’ll devote a week to each day of the conference and elaborate on workshops and ideas that were presented. By all means, if you have any comments or stories, do send them along. As I said before, this site has only just started, and we’ve got a lot to cover.

Stuttering in College Part 7

Today’s story comes from senior year. This is when things had really taken off for me in college — I had made it to editor in chief of the newspaper. So it turns out that despite not having read anything about “setting goals, visualizing success or having a positive outlook,” I managed to set a goal freshman year and attain it. Confidence-wise, this was huge — and something I’ve used a lot since.

At some point during the year, I got a call from the US Department of Education. They were having a conference in downtown Pittsburgh, and wondered if I could sit on a panel and talk about alcohol and college kids. Well, if this was the thing that university paper editors did, well, let’s do it, then!

Since I was pretty busy, I didn’t look into what the conference was all about, and who else would be there. I don’t remember the exact details of what the talk was about, but I remember the logistics of it. Naturally since I was a college student, I put off writing the speech until the last minute. Of course since I didn’t drink, I also didn’t know what to say about alcohol and college kids. So two days before it was due, I started asking my friends at the office. There are only two key things that I remember learning from my friends that I incorporated into this speech. The first is that if your friend drinks himself silly and gets hurt badly, this has no affect on your own drinking. You might pause to consider it, but you’ll still carry on. The other is that if colleges think they can stop underage drinking, they’re mistaken. That has to start way before, during the early years of high school.

Anyway, I typed up the speech at the office, and left it there on the computer. For whatever reason, I thought I’d go in the morning, print it out, and then head downtown. Cruelly, the conference was on a Sunday morning. So of course I got up late. And drove up to the office in a huge hurry, printed it out, and headed downtown. I think I actually woke up about 10 minutes before I was to give the speech. Who makes a college kid go downtown early on a Sunday morning?

I parked up downtown and ran over to the hotel. I found the room, and got up on the little stage at the table. There were three of us, I think. Someone else was already talking. I don’t recall if I had to sit or stand to give the speech. Anyway, soon it was my turn, so I looked at my page and opened my mouth.

If there were 500 words on the page, I stuttered on 600 of them. Seriously, it was a total train wreck. I tried to look up once in a while. I saw a smiling face or two, but otherwise a lot of bored looks. I’m sure the audience members probably just thought that I was super-nervous. I mean, hey, here’s a college-kid giving a speech in front of a bunch of strangers. Everybody is afraid of public speaking, right? It was really, really quiet in there. And here I was, trying to drone on. I couldn’t breathe, I couldn’t relax, I couldn’t get any kind of rhythm going. I was like a kite dragging along the ground.

I definitely didn’t take the prep work seriously enough. I also severely underestimated my stutter. I hadn’t given a speech or done any public speaking like that while in college. I probably thought I’d be ok since I had been doing the undergraduate teaching assistant thing. But that was more spontaneous. Reading from a script was awful.

What I should have done is written the speech a few weeks before and practiced the hell out of it in front of friends. Gained some confidence. Gained some insight. And really get some ownership of the material. But no. I just winged it, and it was disastrous.

After the speech was over, I just sort of sat there, trying to disappear. There was the rest of the conference to check out, but I sheepishly had a little snack and then got back in the car and went home. I never mentioned it to any of my friends.

Stuttering in College Part 4

Let me wrap up freshman year today with this article — it’s something I talked about earlier. As I said before, the whole of an article may not be what point I want to make, but sometimes I find something in there that’s interesting and applicable.

The negative thoughts took different forms in each individual, of course, but they mostly gathered around two ideas. One set of thoughts was about belonging. Students in transition often experienced profound doubts about whether they really belonged — or could ever belong — in their new institution. The other was connected to ability. Many students believed in what Carol Dweck had named an entity theory of intelligence — that intelligence was a fixed quality that was impossible to improve through practice or study. And so when they experienced cues that might suggest that they weren’t smart or academically able — a bad grade on a test, for instance — they would often interpret those as a sign that they could never succeed. Doubts about belonging and doubts about ability often fed on each other, and together they created a sense of helplessness. That helplessness dissuaded students from taking any steps to change things. Why study if I can’t get smarter? Why go out and meet new friends if no one will want to talk to me anyway? Before long, the nagging doubts became self-fulfilling prophecies.

So my stuttering basically made me doubt whether I could ever fit in or not, and a few bad grades in a bunch of classes made me wonder if I could ever succeed long-term. It would have been nice to have someone there to give me a lot more guidance on all of this.

The counselors who we had there would help in selecting classes and figuring out a rough idea of a major. I wanted to do the whole pre-med thing. But there was never any follow-up. They never asked that we come back to see them and make sure we were making adequate progress. And since I was so good at hiding my stutter, they never said anything about that either.

For whatever reason, during freshman year I also signed up to become an undergraduate teaching assistant. I probably thought this would help my confidence out a little bit and get me some “public” speaking practice. I had done some one-on-one tutoring in high school and enjoyed it. I probably also thought I should do something extracurricular that’s academically-inclined to keep up that whole medical school dream.

Basically at Pitt they had math classes that were also given at the high school level. That is to say if a student wasn’t very strong at math, they still had to take algebra or trigonometry as part of their major. It was also for adult students who had to meet minimum requirements. So the teaching assistants could be undergraduates instead of graduate students.

The deal was that you’d take this single-semester course, and then in the next semesters, you’d be able to have a recitation of your own — going through course material, grading papers, helping the professors proctor exams. The odd thing was that I only remember doing one presentation in front of this class — and I’d be “presenting” during my recitations. I still don’t understand how I didn’t freak out and bolt this course. I mean, it’s public speaking. Weekly. With questions.

Despite all of that, during my sophomore and junior years, I enjoyed doing this a lot. I think along with the student newspaper, it helped keep my confidence in the black despite the heavy anchor of lousy grades.

Alright so next week I’ll take a break from talking about college to getting back to some situations I run into on a daily or weekly basis. Fun simple things like ordering food at Subway and then getting ambushed by friends bringing new people to lunch.

Stuttering in College Part 3

During my senior year of high school, I took photography. I enjoyed this a lot. I wanted to keep on taking photos in some capacity come college time. What I found was at the newspaper, The Pitt News, they had some openings.

I managed to go up to their offices and introduce myself to the photo editor. He was a pretty big guy, very jovial, great sense of humor. I think he had a lot of other things going on in his life, so he was happy to show me around and take some of the load off. He had an assistant editor as well — but he was just as busy with other things.

For whatever reason, I remember that I would just go up to some of the people in the newsroom and happily introduce myself, stutter-be-damned. There weren’t too many introductions to be made, and once I met everyone, that was that. I wanted this to be my group. Joining theatre wasn’t an option, and clearly the academic-inclined groups were too intimidating.

Since I was only going to be taking photos, the stuttering thing wouldn’t be a big issue. I didn’t have to call and interview anybody.

There were basically two types of photos to be taken — news and sports. The problem with taking news photos was that I thought I’d have to introduce myself. And that I was from the paper. And then ask the person what their name was so I could make sure the caption was right. I was definitely not a fan of this. I gravitated more toward shooting whatever sports I could and let the others take news photos. Also, remember, it’s 1997, so we’re still shooting film and processing it in the darkroom.

By the end of my freshman year, there were definitely some strong forces in play. On the one hand, I was still struggling academically since I didn’t have any good friends in any classes. I was still afraid of raising my hand in class or talking to professors afterward. On the other, I had made a great group of friends at the newspaper and was spending a lot of time in those offices. It was basically the confidence thing again. I’d say that by the end of the year, I was slightly positive on the confidence scale.

The older friends who I had at the newspaper basically took me in and, during my freshman year, plotted the next three years out for me. They said that if I stuck around, I could be editor in chief of the paper. It was a simple path — start writing during your sophomore year, then be assistant news editor your junior year. That was the tried-and-true path. And there weren’t many others interested.

Awesome. People are helping me plot out my life, and they want me to succeed.

Now only if I had gotten that kind of help in plotting our my major.

Stuttering in College Part 2

I know a lot of this will sound like “woe is me,” but really, that’s not the point. First of all, it’s got a nice happy ending. Second of all, I want to show that although the journey may be difficult, it’s entirely doable — and by the way, try not to make the same mistakes I did!

Also, please do feel free to comment and share your own story. We’re all in this together.

On to the next bit of college.

One of the goals that I had my freshman year was to get involved in more extracurricular activities. During high school, I did the theatre thing, and that was it. I sat at home bored a lot. So at a minimum, I should get into this theatre thing again, right? I found out that auditions would be held for several plays. Clearly I needed to get in on this.

What I of course didn’t realize is that theatre at a university wasn’t just another extracurricular activity. Oh no. It was a major. This was supposed to be taken a lot more seriously. I just kind of showed up, unprepared, and tried to find out what I should be doing. There were a few short pieces available for reading. For whatever stupid reason, I chose one from Shakespeare.

Now, did I think I was going to stutter during this? Of course. But the mentality was No Regrets! I had done some theatre-esque public speaking in high school! I can do this! I need to do this! Even if they don’t give me a part, I can say I tried. And who knows, I might be able to meet some people.

So I get up in front of the directors and professors with this piece in hand. It’s dark. They’re sitting, staring, very serious. I don’t have to introduce myself, so bonus there.

They asked me a few quick questions, and I responded — without stuttering. I was loose! I was happy! This was going to be great! No pressure!

Then I started reading from this piece. (I was probably supposed to memorize and “perform” it.) Also, I can’t say that I completely understood what bit of Shakespeare I was reading.

Total disaster.

I could barely get the piece out, sweated a lot and then ran out of there. No Regrets! Oh well, let’s move on to the next thing, whatever that may be.

I thought I had screwed the entire thing up, so of course I didn’t follow up at all. The only people who saw this awful stuttering were those professors who I’d probably never see again. Minimal amount of damage done.

By this time I had joined the student newspaper (story to follow soon) and while I was up in the offices a few days later, one of the writers told me that I had gotten a callback. He was involved in the theatre.

What? How was that even possible? I ran over to check the list. Sure enough my name was on there. Twice. The first call back had already gone, but there was still another.

I went to that one. Maybe they need a tree in one of their plays to say a few words?

The director was interested in how I was able to freely talk before the audition but then got all gummed up as I spoke the piece. But more importantly, he said how these plays will take a lot of time, and they’re really meant for students who are pursuing this as a major. I told him I wasn’t planning on majoring in this.

Probably should have talked to someone and figured that bit out before auditioning.

Maya Angelou’s Stuttering Brother

Maya Angelou passed away yesterday. The Stuttering Foundation brought up an interesting fact about her and her brother regarding how she got her name.

Working as a Calypso dancer at the San Francisco club The Purple Onion, Angelou, performing as Marguerite Johnson or Rita at the time, was told she needed a more theatrical stage name. By combining “Maya,” the name her stuttering brother Bailey had given her when they were children, and a variation of her ex-husband’s last name, she became “Maya Angelou.”

The Foundation then posed the question on their Facebook page about changing our own names. Is this something you would do?

For me? I wouldn’t change my name. But maybe the way it’s pronounced …

My name is Rehan. Growing up in the States, I pronounced it as the ‘re’ in ‘return’ and the ‘han’ as in ‘con.’ As someone who stutters, my name definitely gives me the hardest time. I’ll probably fill a week’s worth of posts on it, but the short version is that it only comes out with enormous effort. Any kind of introduction — in person or on the phone — is the worst.

When I came to Saudi 3.5 years ago for work, I actually changed the way I pronounced my name because the way that I’ve been pronouncing it is not the way a native Arabic speaker pronounces it.

The word Rehan is actually an Arabic word meaning something like a scent or odor. (A good one).

For a native Arabic speaker, the first syllable sounds more like “ray” than “ree.” But it’s not really “ray,” because you’re softly bouncing your tongue off the roof of your mouth. It’s a sound that’s not in the English language. The second syllable also comes more from the throat. Anyway, it’s a totally different pronunciation, and basically a totally different word to me. More importantly it’s a different word to my brain as well. My brain seems hell-bent on stuttering on the usual pronunciation of my name, but in the first year or two of coming to Saudi, it didn’t get as hung up on the new pronunciation.

Things in years 3 and 4 are sort of leveling out, but saying the “Arabic” pronunciation isn’t too rough for whatever reason. Even on the phone. The funny thing is that I use a different pronunciation based on the listener — if they’re a native English speaker, I’ll use the version I’ve grown up with. And stutter. I do this because they are used to those sounds and pronunciation. If it’s someone from Saudi/India/Pakistan, I’ll use the more Arabic pronunciation. Make sense?

Did I change my name to try to hide my stutter? Maybe so. But I’m saying it to some people the way they would say it anyway. And it’s easier for me! And just getting through my name right off the bat builds a huge amount of confidence.

So what is the deal with saying our own names — and why is it so difficult? Here’s on take from an old posting on the Stuttering Forum:

Basically, we can’t substitute our names.

And of course when we do stutter on our names — don’t you know your own name?! — a Reddit thread.

Lastly, I found some very inspirational quotes from Maya Angelou as well:

“There is no greater agony than bearing an untold story inside you.”

Well, my stuttering is a long untold story. So now it’s slowly coming out. And it does feel great.

“Try to be a rainbow in someone’s cloud.”

I’d say that this nicely summarizes the long term mission of this site.