Something in between

I think we all have, with regards to being loquacious, a bell curve of friends. And we tend to be on the quiet end (well, during those covert years). And we notice a lot more how much people do or do not talk.

I think if you asked any of my friends at this point, they’d say I was pretty talkative. Not overly so, but certainly not shy and quiet. Certain coworkers would have a different opinion.

The problem is that as someone who stutters, we tend to focus on those who talk a lot. Either loudly, quickly, confidently, or a combination of those. We think, why not me? I need to be that confident! But we can’t; our voices betray us.

I was out the other day with a friend who talks a lot. Not in a “I like to hear myself talk” kind of way. It’s innocent. He’s curious, he’s friendly, it’s just what he does. I know the deal. I know when he’s at the table he’ll drive the conversation. That’s good.

We were at a store buying something for our sons, and he struck up a conversation with another patron. They talked for a solid 15 minutes as I just stood around. Before I knew it, he was exchanging phone numbers. I thought, is this how fluent people are all the time? No, it’s definitely not.

I think the point is that we shouldn’t get frustrated or down on ourselves in that kind of situation. It’s one end of the bell curve. What I’d like for myself is something in between.

Somebody Famous

I had the chance again to do some international travel over the past few weeks (and no, that’s not an excuse for my horrid posting schedule). But as I was walking through airports, it occurred to me — what if I saw someone famous?

I think a lot of people are like this — they go to events, they wait around outside clubs and airports and whatever else, hoping to catch a glimpse of a movie star or sports hero. And sometimes, just carrying on with your normal routine, you run into someone famous. You’re in the same space, there’s an exchange of looks or smiles or whatever. An acknowledgement of existence. And then?

Hi? Hello?

I think I need to ask someone fluent about what they are so eager to say to a famous person. What bits of conversation are you looking to start with? How will the small talk open? Because despite the strides I have made with my stuttering, it’s not something I think I would do. See someone famous … ok, great, move on. Not going to talk to them, not going to engage, not even going to bother snapping a photo — because then someone will ask, “did you go up to them?”

For me it starts with the name — not mine, theirs. There are thoughts that for those of us who stutter, we stutter on our own names a lot more because there’s no alternative — no substitution is possible. Well, it’s the same for anybody else, really. When you’re sitting in a meeting and have to go around the room — and tell someone on the phone who’s in the room. So the opening hello is fraught with fear — and of looking silly or nervous or whatever. And it’s not that I’m nervous, famous person. I stutter.

And then I think, ok, say somehow I get past that. Then? Think of not overly famous people — just the ones who are big in whatever sport or tv show you enjoy. One that’s not sweeping the world. I like cycling — there are plenty of cyclists who could probably walk through airports completely unnoticed. So then? I have to quickly think — ok, where were they, what did they just accomplish, are they in the middle of some big event or great season? And then find something witty to ask. More stress, more uncertainty.

So you add all that up, and … no thanks. Carry on, famous person. Have a good time.

Minding the Gap

I’ve been thinking a lot lately about the gap. There’s that space for all of us who stutter — between who we are now and who we think we should be. It covers everything — our job, our spouse, our friends, our relationships, our outlook on life. There’s a gap to be found in them all. How would life be different if I didn’t stutter? If I had been more confident during that interview for the job I didn’t get? If I had asked about a different neighborhood or apartment when I moved into a new town? If I had spoken with my guidance counselor or friends of parents about career choices?

Even people who don’t stutter have these gaps as well. They’re constantly comparing themselves to this that or the other.

Career-wise, I’ve been very good about not ever doing this. It wasn’t terribly hard. My friends who I grew up with basically didn’t have the same college degree as me, nor did they have the same kind of job. They didn’t have the same upbringing, and didn’t have the same goals. We are different, and that’s fine.

But things always change. You find out someone at work is the same age as you, someone who is more charismatic, outgoing, talkative, and ambitious. And you start to wonder. You think that you’ve got all the same tools, all the same opportunities. The same amount of experiences in similar projects, and are now in the same office. So you start to wonder. Is he slightly ahead of me because I’m not more outgoing? Because he can talk a good game? Because people find it easier to talk to him?

This has thrown me off lately because it’s entirely new. I’m trying to handle it by breaking it down into smaller pieces and rationalizing my way out of it. Asking myself, well, sure we’re here in Saudi, and it’s easy for him, but I want to move back to the States sooner than later. And maybe doing the sales thing instead of engineering isn’t really my thing. Maybe a technical job again would be nice.

And even bigger than all of that is how much importance I’ve placed on work. Is that really necessary? Sure, there’s going up and doing a good job and all that, but there’s also extracurriculars to focus on — like this blog, more writing, and doing more stuttering-related things when I get back. It’s all been helping. The gap is getting smaller. I’m going back to, his goals are different than mine. We want different things out of life.

That annoying way you talk

(seems to have been a ridiculously long time since I’ve posted. Shall I use the busy excuse or the laziness one?)

I’ll get caught up on posting about the NSA Conference, but just to get me going again, I was thinking about a show I watch somewhat-regularly on You Tube. (This of course, is because I live overseas and have small children, so watching any show with any regularity is somewhat tricky. Also, this particular show isn’t a tv show anyway. It’s online-only.)

Anyway, the specific show isn’t important, but it’s got a few presenters. I like three of them. The fourth, though … he seems like a nice enough guy, but I hate the way he talks.

Am I allowed to, though?

He doesn’t stutter, he doesn’t have any other speech impediment that we normally think of. It’s just the way his … accent? is. But he’s an American. I grew up hearing the words the way he’s saying them. But his intonation and the way he stresses certain syllables. It’s just … annoying.

I’m letting myself not like this presenter though. And why not? I don’t like other presenters (on other shows, etc.,) for the bland information they give, or their too-fast or too-slow delivery.

I understand that people might not like my delivery if I were on television. I’d stutter, there’d be pauses, and it might be awkward or uncomfortable. But many wouldn’t mind. And maybe that’s the same with this guy.

I think if stuttering is one of those things that we want everybody to accept, then we’ve also got to accept that some will be ok with it, and others won’t. Just like some people like how a fluent person talks, and others don’t.

What are you after?

I’d venture to say that those of us who stutter listen to not only what people say, but how they say it a lot more than someone who is fluent. The fluent person will hear the message; we will notice speed, accent, pauses, filler words, word choice and facial expressions.

I say this because in a given office, over the course of a given day, there are a lot of conversations. And we tend to fixate on the people who are the most confident, the fastest, and the most coherent. We want to be them! Our televisions — dramas, comedies, sports commentators — are filled with fast-talking, eloquent people. They barely stumble, they always have something to say, and they never stutter.

But isn’t life on a bell curve?

Listen to everybody else. All the presenters during a team meeting aren’t the best speakers. But they are all communicating. Some are speaking slowly, carefully choosing their words. Others are neither fast nor slow. Some people know how to think on their feet, others don’t.

I’ve often looked at my boss (past and present) to hear how they’re speaking and what they’re saying. I use it to sort of gauge whether or not I’d be able to eventually do that. But that’s not a good approach. Because people around the world have the same title as my boss; I don’t know how they talk. I don’t know how they communicate. And the same for his boss or other senior folks at the office — they have counterparts across the globe who have different ways to speak and still get results.

The point is also that the smoothest talking people aren’t always the ones getting the results. You don’t have to be the most polished speaker to move on and move up. If we stutter, we should continue to work on our acceptance and our message.

Critical Stuttering Mass

Growing up, I knew one other person who stuttered. And I didn’t feel comfortable talking to him about stuttering. He wasn’t as covert (as I tried to be). After that, I indirectly met one other much older person (once, for a few minutes) who stuttered. This all changed last year when I went to my first NSA Conference.

But as far as becoming more accepting of my stutter and reaching out to people, it didn’t happen until very recently. I’ve been trying to think of why. I see some people on Facebook who are very young and reaching out, and others who are much older and reaching out for the first time, surprised and overjoyed at the community’s response.

I think there’s a sort of “critical mass” effect that’s going on. When you’re covert, you deny stuttering at every level. It’s my problem. It’s my daily hell. It’s my limitation. It’s my challenge to overcome. I can do this on my own, and I don’t want to reach out to anybody. If I reach out, it’s admitting that it’s holding me back. It’s not! (Even though it is, mentally and maybe socially).

I think thanks to social media (and the King’s Speech, I suppose) it’s more out there. You can search online for a group, or if you insist on being covert, someone will pass something along to you eventually. If you start listening to enough small bits of information from various sources, it’ll eventually reach that critical mass. You’ll start to see that other people stutter. They make videos about it (even if you never watch them). They record podcasts (even if you never listen to them) and they write (even if you only skim a post here and there).

It took me a long time to reach a point where I could put even a few words out on this blog. But signing up for the NSA conference gave me something to be accountable to. And once I was there, the rest of the critical mass was formed — everything about stuttering was normal. If you think you’re alone stuttering, go to the conference and start talking to one person — you’ll exchange the exact same stuttering stories, and you’ll be laughing together for a long time.

I don’t know if I could have kept up with this blog if I hadn’t gone to the conference last year. It wouldn’t have lasted. I would have probably gone back into my shell, content to continue practicing my covert behaviors, and wondering what could have been if I had kept writing.

For people who are considering making the transition from covert to overt, know that there are a lot of people out there to support you. Facebook groups may only have a few thousand people in them, but I assure you there are many more lurking. For me life has gotten better now that I’m not dreading every single social or work interaction. It’s not perfect, but it’s definitely improving.

Stuttering Silence in College

I’d be very interested to hear what others might have to say about this — particularly what you were feeling during your first weeks of college as someone who stutters.

I read this article a few days back about the death of Madison Holleran. I had a really long think about it afterward because parts of it really resonated with me.

When I was a senior in high school, things were very good, and I was really happy. By this time, my stuttering wasn’t bothering me too much — I had a strong support group, good grades, and a clear path to college.

When I entered Pitt in the fall of 1997, e-mail and the Internet were relatively new. AOL instant messenger was a thing, sure, but none of us were obsessed with checking our e-mail every five minutes. That being said, we were still connected to our friends at other colleges. Going home for a weekend or Thanksgiving was a pretty big deal since freshman year you could usually find everybody at home.

Those first few weeks were, at times, pretty dark. I remember distinctly thinking one day while walking back to my dorm that I had gone to too big of a school. I wanted to transfer. There’s the idea that you see about college on television and in movies — red brick dorms, people laughing and playing in the Quad (whatever that was), going to parties and meeting cute girls, and having a lively discussion in small classes.

Brochure? Yes. Reality? Not so much. And it was getting to me.

Of course the stuttering wasn’t helping much. There was no partying for me, nor engaging with professors in class (or in recitation, really, cause those were smaller). And my grades were just slowly drifting downward, which was also having a negative effect.

What did end up helping were two things — a few guys who I met on my floor, and the student newspaper that I had joined. I managed to make strong bonds with people who may have heard but didn’t care about my stuttering. I didn’t advertise or anything, but I wasn’t afraid to lean on them when things started getting bad.

If I had been more tuned in to my stuttering, I think I would have tried to join a group. That’s the advice that I would give to anybody who stutters and is going to college. You’re being thrown in with 20,000 other people, so even the fluent people probably think they’re alone, too.

I think we also need to try a lot harder to communicate. We hate doing it because of the stuttering, but you can’t be alone with 20,000 people, questioning your decisions and not feeling like you’re getting what you paid for and just let it all fester inside.

I understand that depression and suicide are completely different from stuttering. I get that. But my point is that there is a tendency for those of us who stutter to really hold everything in. And when there are a lot of huge changes in your life in a short timeframe, it’s a recipe for disaster if you don’t have the right outlet — and you have to be able to communicate to that outlet.

Overthinking Things

Two hundred posts! Finally made it. The past few days were slow due to the fun times at the hospital and the MRI (they didn’t find anything in my head).

I wanted to talk today about how those of us who stutter may end up overthinking things. I know I do this all the time. It’s a well established base — because I stutter, I don’t like to communicate, because I don’t like to communicate, I don’t get the right answers all the time. Because I don’t get the right answers, I have to spend more time and energy finding things out on my own. Because of spending that time and energy, I either get bored or tired and then the overall objective isn’t met. Something along those lines. Then I associate any failure in communication or achievement with my stuttering.

What happened with this MRI thing? Well, when I talked to the doctor, I told him (and stuttered) about my previous MRI experience. It wasn’t pleasant — I had a go in a smaller, older MRI and freaked out. Then I was told about the more “open” MRI. I was able to do that without any kind of sedation. It was fine. The doctor here said the MRI they have is smaller, so it can get a better scan. So I automatically asked about the sedation or anesthesia. This lead to a longer road of testing and waiting and whatever else.

When I finally got the call to go down to the MRI (after waiting in a hospital room all morning) they asked me again if I really wanted or needed the anesthesia. I told them about my concerns. The tech asked if I wanted to see the unit. Sure, why not. (Note that when I got into the MRI suite and realized that this was actually going to happen, my heart starting pounding a bit. Hilariously, I compared this to heart pounding when everybody is “going around the table” doing introductions, and it didn’t even come close.)

And which MRI was I going to go into? It was the bigger one. The one I could deal with without any drugs.

So all this runaround with the sedation or anesthesia — was that because of stuttering? No. Sometimes you just don’t think to ask. There’s no need to be hard on myself at every turn in the road. Now I’ve learned a little more. Ask to see the MRI. Someone’s definition of small or old might not be the same as mine.

I think part of accepting my stuttering is also accepting that if I’m going to get across what I want to get across, things are still not going to be perfect. I still need to work on other parts of my life. I need to continue to learn from experience and grow as a person.

Here’s to another 200 posts — and hopefully many more than that. I can’t believe it’s already May and the NSA Conference is less than two months out. In 60 days from now, I’ll be blogging about workshops and experiences from Baltimore!

Stuttering Moments

Yesterday I talked about a really hard moment I had speaking. It was one of the worst in recent memory, and I let myself dwell on it for a few hours afterward. Not really completely getting me down, just in awe of how bad it was and what happened during and after.

What I’ve noticed on Facebook posts lately is people refer to having a “bad day” with regards to stuttering.

I’ve certainly been guilty of this myself, but I’ve changed my attitude in recent years. I don’t have bad days. I have bad moments. That’s it. A few minutes, an instance, an exchange. Nothing that should cloud the next question, the next conversation.

I think it’s so important to have this mindset. Since I’ve started this new job, there are discussions all day. Meetings all the time. I can’t let something at 9 a.m. cloud events at 11, 2 and 3:30. I’d be a total mess. And I have to talk when I have to talk. I’m not going to hide anymore.

I think one of the ways to keep moving on is to see your speech from your listener’s viewpoint. Especially at the office. They probably won’t dwell on it. They probably won’t say anything about it later that day, or week or month. So if they’re not thinking about it, then why are you?

What happens to me is that I might stutter hard with someone in the morning, and then have another meeting with them in the afternoon. I can’t be shy about speaking up if the need arises.

Listening to my Stutter

What would make all the feelings go away — fear, loathing, shame, embarrassment — if the stuttering never goes away? A perfect listener? What would I want?

The important thing to remember is that it’d have to be a blanket deal. I mean, everybody at once would have to do this, and I’d have to know that everybody is on board. So what would I want?

Patience. Don’t finish my sentence, no matter who you are. Don’t look at the person standing in line behind me. Don’t look away like I don’t know what I’m talking about. Don’t start on some weirdo-smile and try to stifle laughter. Don’t sigh heavily and look down at the ground.

Like I said yesterday, I know, deep down, that this isn’t “special treatment.” Because it’s how I treat everybody who I talk with. So I’d just want the same thing.

If I know that people are never going to react negatively to my stutter, then I create a positive feedback loop. The stuttering happens, I don’t feel bad, they don’t say anything, and I get my message across. That will give me the comfort and confidence to engage people in the future on speaking occasions.

Will we ever spend interaction after interaction with our perfect listener? Nope. If you can string two in a row, that’s quite an achievement. So we’re left with educating. Advertising. Sending links.

A few months ago the ice bucket challenge was going around. It was to raise awareness for ALS. Did you know anything about ALS before the ice bucket challenge? I didn’t know a thing. A cycling buddy explained it all to me on a ride during the height of the challenge. Do we need to do something similar with stuttering? Maybe. Maybe not. The King’s Speech certainly helped when it came out, but we have to keep on reminding people. Because we have to keep on talking. Every day.

Even though the world won’t wake up tomorrow and become perfect listeners, we can work toward surrounding ourselves with them. We can slowly make inroads to our family, friends, and coworkers. Our instances of embarrassment and fear will lessen. We can come out more if we’ve been covert. We can brush off a stumble here and there.

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