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Brain Surgery

I had brain surgery back in late May. No, it’s not why I haven’t posted since April. That’s because I’m lazy.

I had what’s called a hemifacial spasm. Basically there’s a nerve in your brain that controls one half of your face. It was rubbing up against a blood vessel. Whenever it happened, my face would twitch. Sometimes it was my eye, sometimes my mouth, sometimes both, just … annoying.

I had this condition for years. Probably about 5. Before they would just treat it with Botox injections. This required going to see my neurologist four times a year. And having needles stuck into my face. Including my eyelid. That was the worst. But the Botox was over in a matter of minutes, and I was somewhat good to go for another three months.

Eventually my doctor pointed out that well, I have to do this for the rest of my life. And that as I got older, one side of my face would start to look different than the other.

In case you’re curious, this is probably not a stuttering story. It’s just a story about me and what I went through this year.

I guess as far as stuttering is concerned, I never felt afraid to ask my neurosurgeon any questions. Although with something like this, I did read up heavily on it beforehand, so I knew what he’d say.

I had the surgery at Johns Hopkins. I live on the East Coast, and my surgeon has done hundreds of these before.

Of course I did make a joke about fixing my stuttering. Well, when I woke up, it wasn’t “fixed,” so, ha, ha. I still stutter.

My family came to support me during the surgery which was great. I also had several friends come by. I will say that the old me would have relied more on me telling my family (quietly) if I had a problem with the care. I’m at the point now where I’m comfortable speaking directly to the nurses, doctors or whoever comes into the room checking up on me. And there were questions every day — what should I do or not do, can I go for a walk, where’d that doctor go, who are you, can you turn off that computer screen so I can sleep, and so on.

Another thing that helped me reduce stress during this whole ordeal was going through FMLA with work. I completely disconnected for over a month. No calls, no e-mails, no texts. And I had to keep telling myself, look, they’re fine, just focus on taking it easy and getting better. Completely better. Having those feelings wash over me indirectly helped my speech, I’m sure.

Talking to talk

This morning I went for my quarterly botox appointment. This is always less than fun. I mean, it’s a bunch of needle sticks to the face. A very tiny, skinny needle. But still. It doesn’t hurt necessarily, but it’s just uncomfortable.

Anyway, the point is that I usually have problems talking to strangers … just to talk. And no, my doctor isn’t necessarily a “stranger” because I’ve seen her a few times now, but still. Not very often. Normally when I go to the doctor I don’t talk that much. Or when I go for any procedure (donating blood) there’s not too much chitchat. But my botox doc is very open and nice, so it’s easy to talk to her about what’s going on with my face and a few other things in life.

So she started sticking me with needles while chatting, asking me about the kids. I kept on talking as much as possible. Nothing hard to say, but there was some stuttering. But the talking definitely kept my mind off the needle getting stuck in my face. And she didn’t mess around, one part of my face to the next, quickly and efficiently. Also helpful.

There are people who talk when they’re nervous or want to kill time or just … talk to talk. I’m not like that, and I’d say very few people who stutter are. But sometimes it helps. Stuttering isn’t always as painful as having an actual medical procedure!

I suppose this proves a point

Been a month since I posted! I suppose this proves a point, though. As I’ve said before, I get more comfortable in situations — new city, new job, new people. I moved into this job back in January. It’s been nearly 10 months, and yes, I’m pretty comfortable.

What was intimidating and a bit nerve-wracking at first (speaking up during some meetings, making a call here and there, explaining things to strangers) has become a normal routine.

And so, since I’m not thinking about stuttering as much (but still, of course, stuttering) I think my mind is off of the blog.

That being said! I still have plenty of conference stuff to go through as well as the ISAD on Oct 22 and the ongoing online stuttering conference. And of course the twitter feed on the right is always a good source for stuttering articles.

I think I need to still find a good balance between posting and living with my stutter. I’m thinking a 2 or 3 times a week thing would be good. Daily was definitely too ambitious, but it did work out for a while when I had stuttering on my mind more.

The other thing that’s been happening is simply the busy of work. The days are passing by very, very quickly now. The weather in Saudi is changing (for the better) and the days are heinously short.

And what am I stuttering on? Well, I did have to make a few doctors appointments this evening. I did that in person. And I felt comfortable. Took a big deep breath, explained what I needed (checkup for the daughter, Botox refresh for me — yes, it’s already worn off!). And it was sorted as I hoped. I even managed to stutter only a little bit on the “one” in my telephone number. Nice win.

Feeling sick …

I’ve not been too well the past few days. Been to the doctor and back. Nothing serious, just the annoying stuffed head, nose and scratchy throat. I suppose it happens once in a while and can be chalked up to not enough sleep and possibly too much exercising.

The one upside of course is practicing talking to total strangers (the doctors/nurses/check-in desk people). I’ve been able to stay pretty calm and collected and fluent. Although I have stuttered when the questions start going on and on (and of course my phone number). I also keep on forgetting to collect my thoughts before opening my mouth. And they’re simple questions! What’s the problem today? Well, my head is all stuffed up, my nose is runny, my throat is scratchy. And yet somehow I bumble through it.

I also had the follow up with my MRI. I was able to ask the doctor a bunch of things I already had pretty good answers too — stuttered a little here and there, but at least I got to practice. And overcome my fear of talking and asking things to somewhat-strangers.

I’ve got some Botox injections slated for this evening. At least it’ll make this annoying eye twitching go away. Lately it’s not only been a discomfort, but as the muscles get tired, it’s a little painful by the end of the day.

I have written out a list for the next few weeks of posts — don’t worry about that. I think the first thing will have to be another link roundup. I’ve been seeing some really good things on Twitter lately.

What I’m Stuttering on Lately

Of course right after mention the things that I stutter on the most, I end up having to say a few of them.

For a few months (well, 2 years) I’ve had some slight eye twitching going on. It’s more annoying than anything else. It’s random. I had an MRI over a year ago, and they said it’s probably just not enough sleep and stress. Well, it’s still acting up, and my family is still concerned, so I finally went to the doctor here in Saudi to get another opinion.

Since I haven’t been to this particular hospital before, I had to register. I knew this, and I wasn’t looking forward to it. The first thing she asked me, even before my name (which she didn’t ask at all) was my phone number. Awesome!

After that, I had to call a number (from a phone at the hospital … to the hospital) to register for an appointment. The connection was bad, and of course I had to give my phone number. And I stuttered on it. Again. I set up an appointment to see the neurologist. She said they had an appointment that day. Within two hours. Perfect …

Once that was done, I had to go back to the first lady and tell her that I had registered. She asked me for my phone number. I just kept on stuttering, because, well, I stutter, and that’s life. Then she asked me for an alternate number. I took my mobile from my son and looked up my wife’s number. I handed the phone to the lady (for some reason, I felt rushed. Ugh.) Anyway, then she asked whose number it was. Of course. Stutter on …

I got through it, though. Didn’t suffer tremendously, and I got the appointment set up. So success there.

That’s it for the stuttering portion of this story. The remainder is well, par for the course here and pretty amusing. So I’ll share.

I went to the appointment at 1 p.m. as directed. It was in the neurology department. I told the receptionist I had an appointment. She said … no. “You have an appointment with urology, not neurology.”

Of course.

Um, so can I schedule an appointment with the neurologist instead? No, they’re booked today. And all week.

What about next week? Well, that’s the next month, so the schedule isn’t made yet. You will have to call (call!) back on the 29th for the appointment.

Ok, fine. No problem. And then I left. A few minutes after I got back home, the receptionist called me on the phone. The doctor is in, and he can see you now. How soon can you come back? Well, I can be back by 2, I said.

Anyway, I talked to the doctor and explained to him what was going on. I stuttered. He sat there patiently and listened. He told me I had a hemifacial spasm. They’d do an MRI and then probably Botox. Sounds like more fun blog fodder …

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